“Capturing the magic”: identifying the active ingredients of a physical activity participation intervention for children and youth with disabilities

Willis, Claire; Elliott, Catherine; Reid, Sharon J.; Nyquist, Astrid; Jahnsen, Reidun; Bölte, Sven; Rosenberg, Michael; Girdler, Sonya

doi:10.1080/09638288.2021.1907458

Cited by 8 publications

(6 citation statements)

References 36 publications

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“…Interventions such as the Pathways and Resources for Engagement and Participation (PREP) ( 46 – 50 ) and programs such as the Local Environment Model (LEM) ( 51 , 52 ), where re/habilitation professionals work with stakeholders such as community personnel directly to implement participation-focused strategies, might be one way to reduce workload concerns among caregivers trying to support community participation. This collaboration may also enhance the community personnel's knowledge of disability and inclusion, thus supporting efforts toward a more inclusive community environment.…”

Section: Discussionmentioning

confidence: 99%

Caregiver strategies supporting community participation among children and youth with or at risk for disabilities: a mixed-methods study

Kaelin,

Saluja,

Bosak

et al. 2024

Front. Pediatr.

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IntroductionThe purpose of this mixed-methods study is to examine the role of caregiver strategies to support community participation among children and youth with disabilities and those at risk, from the caregiver perspective. For the quantitative phase, we tested the hypothesized positive effect of participation-focused caregiver strategies on the relationship(s) between participation-related constructs and community participation attendance and involvement. For the qualitative phase, we solicited caregiver perspectives to explain the quantitative findings.MethodsAn explanatory sequential mixed-methods design (QUAN > qual) was used. For the quantitative phase, we conducted secondary analyses of data collected during a second follow-up phase of a longitudinal cohort study, including 260 families of children and youth (mean age: 13.5 years) with disabilities and those at risk [i.e., 120 families of children and youth with craniofacial microsomia (CFM); 140 families of children and youth with other types of childhood-onset disabilities]. Data were collected through the Participation and Environment Measure—Children and Youth, the Pediatric Quality of Life Inventory, and the Child Behavior Checklist and analyzed using structural equation modeling. For the qualitative phase, we conducted semi-structured interviews with eight caregivers of children and youth with disabilities and those at risk (i.e., three caregivers of children and youth with CFM; five caregivers of children and youth with other childhood-onset disabilities). Interviews were transcribed verbatim and inductively content-analyzed.ResultsOur model reached acceptable to close model fit [CFI = 0.952; RMSEA = 0.068 (90% CI = 0.054–0.082); SRMR = 0.055; TLI = 0.936], revealing no significant effect of the number of participation-focused caregiver strategies on the relationships between participation-related constructs (e.g., activity competence, environment/context) and community participation in terms of attendance and involvement. The qualitative findings revealed three main categories for how caregivers explained these quantitative results: (1) caregiver workload and supports needed for implementing strategies; (2) caregivers careful strategy quality appraisal; and (3) community setting characteristics hindering successful strategy implementation.DiscussionThe findings suggest that the insignificant effect of the number of caregiver strategies may be explained by the intensified need for caregiver effort and support to develop and implement quality strategies that are responsive to community setting characteristics.

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Section: Discussionmentioning

confidence: 99%

Caregiver strategies supporting community participation among children and youth with or at risk for disabilities: a mixed-methods study

Kaelin,

Saluja,

Bosak

et al. 2024

Front. Pediatr.

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“…The survey was a 10 min, three-part online survey in English. It was informed by research outlining the key barriers and enabling factors for children with chronic diseases and their guardians for engaging in PA 13 17 18. The first section included basic sociodemographic information such as age, ethnicity and postcode.…”

Section: Methodsmentioning

confidence: 99%

“…They used realist evaluation12 to review the context, mechanisms and outcomes of their intervention which consisted of a 19-day schedule including social involvement, cultural and PA. ‘Choice, fun, friends, specialised health professionals, and time’ were the mechanisms used to engage these children in a ‘safe, social, learning-based and family-centred’ context. Another qualitative study by Willis et al was based on the views of staff at the same Norwegian rehabilitation centre, as well as service providers (n=20) and identified important factors for an intervention to foster PA behaviours in children with disabilities 13. ‘Support and relationships’, ‘interpersonal interactions’ and ‘services, systems and policies’ were reported most frequently when qualitatively investigating activity participation.…”

Section: Introductionmentioning

confidence: 99%

“…Another qualitative study by Willis et al was based on the views of staff at the same Norwegian rehabilitation centre, as well as service providers (n=20) and identified important factors for an intervention to foster PA behaviours in children with disabilities. 13 ‘Support and relationships’, ‘interpersonal interactions’ and ‘services, systems and policies’ were reported most frequently when qualitatively investigating activity participation. Parental views on PA can influence PA behaviours among children with chronic disease, and can be prohibitive if the parent believes PA may be harmful.…”

Section: Introductionmentioning

confidence: 99%

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Run, walk, cheer or volunteer: a patient and public involvement survey

Ross,

Gunasekera,

Rowley

2024

BMJ Open Sport Exerc Med

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BackgroundChildren with chronic diseases have been reported to participate in less regular physical activity (PA) than peers without chronic diseases; and less than recommended in guidelines. Sheffield Children’s Foundation Trust (SCFT) is an Active Hospitals pilot site, exploring options to facilitate PA for all children. One option is collaboration with Junior Parkrun: a free, weekly 2 km running event for children. The team investigated whether Junior Parkrun was of interest to guardians of children attending SCFT to increase PA.AimsThis patient and public involvement survey assessed perceptions of PA for children attending SCFT according to their accompanying guardians. This will inform a possible collaboration between SCFT and Junior Parkrun.MethodsA three-part, 14-question survey was developed, including demographics (age, ethnicity, postcode); perceptions of PA (barriers and facilitators); PA behaviours self-reported on Likert scales; and perceptions of Junior Parkrun. Guardians were asked whether they and their child would be interested in attending Junior Parkrun with SCFT staff support. This was distributed to guardians of children attending outpatient appointments.Results126 guardians responded. The average age of child was 10 years 10 months. 29.1% of guardians supported daily PA for their child. Almost half of respondents reported their child would be interested in attending Junior Parkrun. Of those not interested, the most common reason was travel.ConclusionThe findings highlighted PA barriers perceived by guardians, and identified that almost half of respondents would be interested in attending Junior Parkrun. A collaboration between Junior Parkrun and SCFT could be explored.

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“…Identifying the active ingredients of interventions (i.e., what makes it work, including elements such as intervention dosage, principles, etc. ), is key to facilitating the implementation ( 11 ). As the F-words may not be explicitly addressed in studies, it is therefore important to reveal ingredients associated with F-words, so that future recommendations can be made on how to design interventions that promote the F-words for children with CP.…”

Section: Introductionmentioning

confidence: 99%

Assigning F-words as ingredients of interventions for children with cerebral palsy functioning at GMFCS IV and V: A scoping review protocol

Longo

Monteiro

Hidalgo‐Robles

et al. 2023

Front. Rehabil. Sci.

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IntroductionChildren with Cerebral Palsy (CP) functioning at Gross Motor Function Classification System (GMFCS) levels IV and V require “on time” identification and intervention. Interventions offered continue to be a challenge, in high-, but even more so in middle-, and low-income countries.AimTo describe the methods developed to explore the ingredients of published studies on early interventions in young children with cerebral palsy (CP) at highest risk of being non-ambulant based on the “F-words for child development framework” and the design of a scoping review exploring these ingredients.MethodAn operational procedure was developed through expert panels to identify ingredients of published interventions and related F-words. After sufficient agreement among researchers was reached, a scoping review was designed. The review is registered in the Open Science Framework database. The “Population, Concept and Context” framework was used. Population: young children (0–5 years with CP and at highest risk for being non-ambulant (GMFCS levels IV or V); Concept: non-surgical and non-pharmacological early intervention services measuring outcomes from any ICF domain; Context: studies published from 2001 to 2021. After duplicated screening and selection, data will be extracted and quality will be assessed with the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and Mixed Methods Appraisal (MMAT) tools.ResultsWe present the protocol to identify the explicit (directly measured outcomes and respective ICF domains) and implicit (intervention features not explicitly intended or measured) ingredients.ConclusionFindings will support the implementation of the F-words in interventions for young children with non-ambulant CP.

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“Capturing the magic”: identifying the active ingredients of a physical activity participation intervention for children and youth with disabilities

Cited by 8 publications

References 36 publications

Caregiver strategies supporting community participation among children and youth with or at risk for disabilities: a mixed-methods study

Caregiver strategies supporting community participation among children and youth with or at risk for disabilities: a mixed-methods study

Run, walk, cheer or volunteer: a patient and public involvement survey

Assigning F-words as ingredients of interventions for children with cerebral palsy functioning at GMFCS IV and V: A scoping review protocol

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