The Effect of a Complementary Therapy Education Seminar on Support Persons of Individuals with Cancer

Searson, Nancy Allen; Balneaves, Lynda G.; Thorne, Sally; Gotay, Carolyn; Truant, Tracy; Porcino, Antony; Kelly, Mary

doi:10.1089/acm.2020.0443

Cited by 3 publications

(3 citation statements)

References 37 publications

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“…As one source of information, many cancer patients share CAM experiences with peers, e.g., in cancer self-help groups (SHG), but this information may be not reliable and not based on scienti c evidence. Therefore, beside information provided by health care professionals, we want to address patients in peer groups are addressed directly by educating them about CAM [31][32][33]. In Germany, self-help groups for cancer patients are an important source of information and psychosocial support for patients and cancer survivors [34].…”

Section: Introductionmentioning

confidence: 99%

Education about complementary and alternative medicine in cancer self-help groups by trained peers

Weis,

Jablotschkin,

Horneber

et al. 2024

Preprint

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Purpose: On average, about 40 % of cancer patients use complementary and alternative medicine (CAM) in addition to conventional oncological treatment. As there is a high need for information, patients search for information about CAM and share also experiences with peers especially in self-help groups. In this study, we tested and evaluated an educational concept for group leaders in cancer self-help groups how to approach the topic of CAM in their peer-groups. Methods: The concept has been developed and piloted with health care professionals and representatives of self-help organisations. It aims to inform and discuss CAM in terms of scientific evidence, its possibilities and limits, to reflect user behavior and to inform how to find and evaluate reliable and evidence-based information sources. First, self-help group leaders were educated in an on-site training including various CAM topics aimed to conduct this in their self-help groups. Then, the educated group leader performed this concept in their groups. The concept was evaluated at the level of participants and group leaders with respect to acceptance, usefulness and satisfaction. In a six months follow-up we interviewed the participants by questionnaire to what extent they used the recommended tools and had profited from the program. Results: A total of n=50 interested group leaders conducted the educational program in their groups. Most common implementation barriers were organizational or structural problems and the feeling of being overwhelmed to manage the program in their groups. A total of n= 423 participants in the group were educated with this program by their group leaders. The majority felt satisfied with the educational program and improved their knowledge about CAM. At the six months follow-up significant more participants consulted their physicians to inform themselves about CAM and felt more confident in finding reliable information about CAM. Conclusions: In this observational study we were able to implement an educational concept how to approach CAM in cancer self-help groups. Due to some results showing that a substantial percentage of group leaders felt overstrained with the concept we suggest to integrate a CAM professional in the education with the groups. For the future, the effects of the program should be tested by a randomized trial.

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Section: Introductionmentioning

confidence: 99%

Education about complementary and alternative medicine in cancer self-help groups by trained peers

Weis,

Jablotschkin,

Horneber

et al. 2024

Preprint

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“… 24–27 A recent study reported on a complementary therapy education seminar for patients with cancer in Canada. 28 These supporting tools cannot simply be generalised across countries, given differences in language, culture and healthcare systems. To the best of our knowledge, there are no nationwide tools available for healthcare providers or patients with cancer and there is no scientific literature reporting on communication about complementary medicine in oncology in the Netherlands.…”

Section: Introductionmentioning

confidence: 99%

Towards an open and effective dialogue on complementary medicine in oncology: protocol of patient participatory study ‘COMMON’

Mentink

Noordman

Busch³

et al. 2021

BMJ Open

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IntroductionApproximately half of patients with cancer use some form of complementary medicine alongside conventional cancer treatment. The topic of complementary medicine often remains undiscussed in consultations between patients with cancer and their healthcare providers. This results in increased risks for adverse or interaction effects and decreased access to the benefits of evidence-based complementary medicine for patients with cancer. This paper describes the design of patient participatory study titled ‘COMMON’ that aims to explore and enhance open and effective communication about complementary medicine in oncology. The study is carried out in collaboration with 12 (former) patients with breast cancer as coresearchers.Methods and analysisThe study complies with the six steps of the intervention mapping framework. Three non-academic hospitals recruit participants (patients with cancer, oncology healthcare providers and managers) for interviews about the organisation, experiences and needs regarding complementary medicine. To assess communication about complementary medicine, recorded oncology consultations are analysed. For an overview of evidence-based complementary medicine available to patients with cancer, a review of reviews is conducted on the evidence on cancer patient-reported outcomes of complementary medicine frequently used by patients with cancer, supplemented with an online search and survey among organisations and persons providing complementary medicine to patients with cancer. Together, these steps generate input for the development of a toolbox that supports an open and effective discussion on complementary medicine in oncology. In a pilot study, acceptability and usability of the toolbox are assessed among patients with cancer and oncology healthcare providers. Dissemination of the toolbox is covered by the commitment of stakeholder parties.Ethics and disseminationThe Medical Ethics Committee Arnhem-Nijmegen declared the study was exempted from formal approval under the Dutch Medical Research Involving Human Subjects Act. The results will be disseminated through open-access, peer-reviewed publications, stakeholder-reporting and presentations at relevant conferences.

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“…These findings were partially supported by the results of previous studies. For example, use of a decision aid to provide information or education was significantly associated with increased decision SE 41,42 and decreased DC in men. 43 To date, however, there is no evidence showing the relationship between decision SE and DC.…”

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confidence: 99%

Information Provision, Decision Self-efficacy, and Decisional Conflict in Adopting Health Behaviors Among Patients Treated for Colorectal Cancer

Lee

Bryant‐Lukosius

2021

Cancer Nurs

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BackgroundHealth promotion is necessary to mitigate the negative consequences of colorectal cancer and its treatment. Rates of behavior modification are low in populations of cancer patients. Studies are needed to determine the factors, such as decisional conflict, which influence adoption of healthy behaviors following a cancer diagnosis.ObjectiveTo examine the effects of information provision, decision self-efficacy, and decisional conflict on the adoption of healthy behaviors among patients with colorectal cancer.MethodsThis cross-sectional study focused on 251 patients with colorectal cancer in South Korea. Information provision, decision self-efficacy, and decisional conflict were measured using validated instruments. Patients rated their decisional conflict related to the adoption of behaviors that include regular exercise and a balanced diet.ResultsMost participants (73%) reported low satisfaction with the amount of information received. Of the participants, 64% had low decision self-efficacy, and 80% experienced decisional conflict. The perception of a higher level of information provision was associated with greater decision self-efficacy (odds ratio, 4.63; 95% confidence interval, 1.61-13.35). Higher decision self-efficacy was associated with lower decisional conflict (odds ratio, 5.19; 95% confidence interval, 2.33-11.59).ConclusionReceiving adequate information is important for promoting patients' confidence in making decisions about their health and reducing decisional conflict in the adoption of healthy lifestyle changes following a cancer diagnosis.Implication for PracticeOncology nurses should assess patient information needs and promote decision self-efficacy, thus empowering patients diagnosed with colorectal cancer to make lifestyle decisions that improve their health and quality of life.

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The Effect of a Complementary Therapy Education Seminar on Support Persons of Individuals with Cancer

Cited by 3 publications

References 37 publications

Education about complementary and alternative medicine in cancer self-help groups by trained peers

Education about complementary and alternative medicine in cancer self-help groups by trained peers

Towards an open and effective dialogue on complementary medicine in oncology: protocol of patient participatory study ‘COMMON’

Information Provision, Decision Self-efficacy, and Decisional Conflict in Adopting Health Behaviors Among Patients Treated for Colorectal Cancer

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