Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

Economou, Denice; Walshe, Catherine; Brearley, Sarah

doi:10.1007/s00520-020-05956-2

Cited by 2 publications

(2 citation statements)

References 49 publications

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“…These experiences of the participants are similar to those conveyed in the research conducted by Thornton et al, who mentioned that one of the themes found in their research was an emotion with a sub-theme of anger caused by feelings of envy because the patients felt that they had done everything correctly according to the doctors' instructions (37). This is also as stated by Economou et al, who indicated that patients who received bad news felt anger and sadness early during a recurrence (38). Psychological responses to bad news can affect the QoL of patients.…”

Section: Resultssupporting

confidence: 80%

Psychological and sexual problems of cancer survivors

Tisnasari

Nuraini

Afiyanti

et al. 2023

Arch Ital Urol Androl

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Objective: To explore: 1) the unmet needs of breast cancer patients; 2) the sexual needs experienced by breast cancer survivors; 3) the experiences of cancer patients at the time of relapse, including the biopsychosocial- spiritual aspects of their experiences. Materials and Methods: Interpretative phenomenological qualitative research by conducting direct in-depth interviews with participants who met the inclusion criteria. Sample analyzed were breast cancer survivors who had experiences related to unmet needs (14 participants) or sexual problems (12 participants); adult cancer patients who experienced recurrences (10 participants). Results: Themes identified for breast cancer patients with unmet needs were i) overcoming health problems in breast cancer survivors; ii) need to access the best health services; iii) women’s unmet information needs concerning cancer treatment. For breast cancer survivors: i) information is needed to overcome sexual problems, ii) family support is needed to get sexual information, and iii) health care facilities need to provide sexual information. For patients experiencing recurrences: i) the reaction that occurs when receiving bad news; ii) efforts made during a relapse, iii) self-concept during a relapse. Conclusions: Health-related problems of breast cancer survivors, such as fatigue and fear of cancer recurrence, can lead them to have trouble with social relationships, question their spirituality, and struggle with sex and sexuality. Oncology nurses and other professionals need to be aware of the unmet needs of breast cancer survivors, especially in relation to resolving the sexuality issues of cancer survivors. Understanding of the experiences of patients with relapse of different types of cancer should be improved.

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Section: Resultssupporting

confidence: 80%

Psychological and sexual problems of cancer survivors

Tisnasari

Nuraini

Afiyanti

et al. 2023

Arch Ital Urol Androl

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“…To our knowledge, this is the first study to specifically focus on the Latina population, which is concerning given the great need to ameliorate health disparities, and more specifically the disproportionate burden associated with the cancer experience, in Latina breast cancer survivors. In addition, a major difference between our study and those previously conducted with women diagnosed twice (e.g., Economou et al, 2021;Park & Hwang, 2012) is that participants were in remission and did not have the physical and psychological challenges of women with metastatic cancer. This allowed us to focus on psychosocial rather than physical adjustment, and on the nature of being a survivor as a chronic experience.…”

Section: Discussionmentioning

confidence: 84%

“¿Qué viene después?”: Latina women diagnosed with breast cancer twice.

Buki¹,

Ramos²,

Sabet³

et al. 2022

Journal of Latinx Psychology

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There is a growing body of literature on Latina breast cancer survivors. However, little is known about women diagnosed twice. In this qualitative exploratory study, we examined in depth the experiences of five Latina breast cancer survivors diagnosed twice recruited at a community-based organization. Using grounded theory analysis, we identified three themes representing major aspects of their experiences: (a) Experiencing the First and Second Diagnoses, (b) Coping with Breast Cancer, and (c) Living With Uncertainty. Although participants transferred coping skills from their first diagnosis to the second, their experience with the second diagnosis was more challenging. Additionally, living with the uncertainty of a third diagnosis represented a chronic challenge. Overall, participants reported many unmet support needs. Findings raise several implications for research as well as clinical practice and advocacy. In future studies, researchers should consider examining separately the experiences of women diagnosed once from those diagnosed twice. Moreover, research is needed to understand whether the current practice of referring women diagnosed twice to a support group with a majority of women diagnosed once adequately addresses their unique needs. Advocacy is needed to ameliorate financial and language barriers as well as to enhance access to health care for this growing population. Public Significance StatementThe present study suggests that Latina women may find a second breast cancer diagnosis more challenging than the first. A particular psychological burden for these survivors was their chronic fear of a third cancer. In coping with the second diagnosis, they reported receiving less support than they had for the first diagnosis, leaving them with many unmet support needs.

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Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

Abstract: The datasets generated and analyzed during the current study are available from the corresponding author on reasonable request.

Cited by 2 publications

References 49 publications

Psychological and sexual problems of cancer survivors

Psychological and sexual problems of cancer survivors

“¿Qué viene después?”: Latina women diagnosed with breast cancer twice.

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