31.5 DAGSY: A Novel Clinical Framework to Address a Currently Unmet Need in Child and Adolescent Psychiatry (second presenter)

Support to caregivers who have received genetic information about neurodevelopmental and psychiatric vulnerability in their young children: A narrative review

“…Overall, the literature we reviewed is consistent with our experience in the DAGSY clinic (Developmental Assessment to Genetically Susceptible Youth), initiated in 2018 to provide multidisciplinary developmental, academic, adaptive, and psychiatric evaluations to children and youth with genetic variants associated with neurodevelopmental vulnerability 51 . As described in the literature caregivers share their struggles with how, and when, to reveal the genetic diagnosis to their children, lack expertise and knowledge about their child's rare genetic variant outside of the clinic, the longer‐term implications of the diagnosis, and their concerns about their child's future given the lack of treatment or preventive interventions.…”

“…9 Overall, the literature we reviewed is consistent with our experience in the DAGSY clinic (Developmental Assessment to Genetically Susceptible Youth), initiated in 2018 to provide multidisciplinary developmental, academic, adaptive, and psychiatric evaluations to children and youth with genetic variants associated with neurodevelopmental vulnerability. 51 As described in the literature caregivers share their struggles with how, and when, to reveal the genetic need to be developed and tested. 9,52,53 In this context, the broader field of child development and psychopathology may offer viable approaches that can be tailored to children with genetic variants at vulnerability for, or with early symptoms of NPD.…”