Spätfolgen einer Krebsbehandlung im Kindes- und Jugendalter

Gebauer, Judith; Lehnert, Hendrik; Schmid, SM; Spix, Claudia; Stein, Alexander; Langer, Thor﻿s﻿ten

doi:10.1007/s00108-018-0496-0

Cited by 9 publications

(3 citation statements)

References 14 publications

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“…In the second case study, we are aiming to address challenges which are typically experienced by transition patients 68. We decided to describe a male transition patient based on prevalence of chosen diagnoses 67.…”

Section: Methods and Analysesmentioning

confidence: 99%

“…67 In the second case study, we are aiming to address challenges which are typically experienced by transition patients. 68 We decided to describe a male transition patient based on prevalence of chosen diagnoses. 67 We have chosen a former patient with brain tumour who completed a typical complex treatment followed by unavoidable late effects.…”

Section: Focus Groupsmentioning

confidence: 99%

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VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Aleshchenko,

Swart,

Voigt

et al. 2024

BMJ Open

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IntroductionThis article presents the study design of the qualitative part of the VersKiK study (Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence: study protocol of a large scale multi-methods non-interventional study) aiming to explore actual follow-up needs of childhood and adolescence cancer survivors and their informal caregivers, gaps in current follow-up care provision and trajectories of cancer survivors’ transition from paediatric to adult healthcare.Methods and analysisWe will conduct up to 30 interviews with survivors of childhood and adolescence cancer and their informal caregivers with up to 20 participant observations of follow-up appointments. The results of these will be discussed in up to four focus groups with healthcare professionals and representatives of self-help groups. The study design aims to evaluate follow-up care after childhood cancer considering perspectives from survivors, their informal caregivers as well as healthcare providers. The combination of different data sources will allow us to get an in-depth understanding of the current state of follow-up care after paediatric cancer in Germany and to suggest recommendations for care improvement.Ethics and disseminationThe VersKiK study was approved by the Ethics Committee Otto von Guericke University on 2 July 2021 (103/21), by the Ethics Committee of Johannes Gutenberg University Mainz on 16 June 2021 (2021-16035), by the Ethics Committee University of Lübeck on 10 November 2021 (21-451), by the Ethics Committee University of Hospital Bonn on 28 February 2022 (05/22). For each part of the qualitative study, a separate written informed consent is prepared and approved accordingly by the ethics committees named above.Trial registration numberRegistered at German Clinical Trial Register, ID: DRKS00026092.

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Section: Methods and Analysesmentioning

confidence: 99%

Section: Focus Groupsmentioning

confidence: 99%

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Aleshchenko,

Swart,

Voigt

et al. 2024

BMJ Open

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“…These aim for the best possible continuity of health care by targeted, planned transition from child-centeredness to adult-orientation [26]. Nevertheless, to this day, many survivors are discharged into routine care carried out by general practitioners after completing therapy [6]. To assist those patients is the central mission of the Network for Oncology Specialist Advisory Service (NOF) which offers survivors support in individual life planning.…”

Section: Introductionmentioning

confidence: 99%

Network Oncolgy Specialist Advisory Service – A Survey of the Psychosocial Situation of Long Term Cancer Survivors During Childhood or Adolescents

Toenne¹,

Baumeister²,

Koch³

et al. 2021

Klin Padiatr

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Background The number of long term cancer survivors during childhood or adolescence is increasing steadily. Survivors often suffer from physical or psychosocial long term effects. There is currently little data on the arrangement of long term aftercare in the field of psychosocial care. Methods In November 2017 a questionnaire was sent to 1900 cancer survivors aged between 18 and 35 years whose diagnosis dated at least five years prior. The obtained data serve as a condition and needs assessment, how the (psychosocial) long-term aftercare is perceived by the survivors and what else is desired. The analysis was conducted using descriptive statistics as well as the calculation of bivariate correlations. Results The response rate was 54.9% (n=1.043). The median interval from the first diagnosis was 20 years. In total 666 survivors (63.9%) stated that they suffered from at least one long term effect. Within this, especially neurocognitive themes played a role. 87.2% of the respondents had the feeling that they had overcome the illness/therapy well. Conclusion Through a stronger patient-focussed orientation concerning the current care and advisory services, the situation of long term survivors could be improved. This especially includes access to relevant information that focuses on the available psychosocial and welfare services, as well as to advisory and care services. Additionally, the development and expansion of care structures in the areas of neurocognition and psychotherapy is important to ensure long term participation attendance.

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Long-Term Follow-Up Guidelines and Organization of Long-Term Follow-Up Care for Childhood and Young Adult Cancer Survivors

Langer¹,

Beck²,

Stein

et al. 2020

Late Treatment Effects and Cancer Survivor Care in the Young

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Spätfolgen einer Krebsbehandlung im Kindes- und Jugendalter

Cited by 9 publications

References 14 publications

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Network Oncolgy Specialist Advisory Service – A Survey of the Psychosocial Situation of Long Term Cancer Survivors During Childhood or Adolescents

Long-Term Follow-Up Guidelines and Organization of Long-Term Follow-Up Care for Childhood and Young Adult Cancer Survivors

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