Longitudinal Self-Management and/or Transition Readiness per the TRANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

Zhong, Yi; Gilleskie, Donna B.; Tilburg, Miranda A.L. van; Hooper, Stephen R.; Rak, Eniko; Javalkar, Karina; Nazareth, Meaghan; Pitts, Brian; Ndugga, Maggwa; Jain, Nina; Hart, Laura C.; Bhansali, Suneet; Richards, James M.; Detwiler, Randal K.; True, Karin; Pomposo, Alexandre S.F. de; Ferris, Maria

doi:10.1016/j.jpeds.2018.06.052

Cited by 29 publications

(17 citation statements)

References 41 publications

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“…Nine studies (39.13%) developed or used self-care instruments only for one type of chronic condition: spina bifida ( n = 1; 4.76%) ( 46 ), type 1 diabetes ( n = 3; 14.28%) ( 47 – 49 ), epilepsy ( n = 2; 9.52%) ( 50 , 51 ), asthma ( n = 1; 4.76%) ( 52 ), cystic fibrosis ( n = 1; 4.76%) ( 38 ), and congenital heart disease ( n = 1; 4.76%) ( 40 ). Ten studies focused on multiple chronic conditions such as kidney disease, systemic lupus erythematosus, inflammatory bowel disease, hypertension, renal transplant, and systemic lupus erythematosus ( 2 , 29 , 53 – 61 ). Four studies did not specify the chronic condition of their sample ( 57 , 62 – 64 ).…”

Section: Resultsmentioning

confidence: 99%

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

et al. 2022

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Children and young adults (CYAs) with chronic conditions need to engage in self-care to improve their quality of life. This study aimed to retrieve the literature on instruments to assess self-care in CYAs living with chronic conditions and evaluate the psychometric proprieties of the instruments retrieved. A systematic literature review was conducted on six databases to identify peer-reviewed papers that described or used an evaluation instrument of self-care in CYAs with chronic conditions. Twenty-three articles describing 11 instruments of self-care were identified. Five instruments (45.45%) were developed for specific diseases, while six (54.54%) for various chronic illnesses. Most of the instruments were focused on treatment adherence within self-care maintenance (i.e., behaviors to maintain illness stability), excluding the monitoring of clinical parameters or the management of exacerbations. This review provides an overview of available instruments that measure self-care in CYAs with chronic conditions, which health professionals could use for patient education.

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Section: Resultsmentioning

confidence: 99%

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

et al. 2022

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“…A more detailed score that has content validity across a wider age range (12-22 years) is the UNC TRxANSITION score uses 10 domains and the ability to cross-reference with medical history. 73,74 However, the tool, like TRAQ, must be individually examined for external validity as the domain of health insurance will not be applicable to all health care systems.…”

Section: Mental Health and Transitionmentioning

confidence: 99%

<p>Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology</p>

Palman¹,

McDonagh²

2020

OARRR

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“…Cross-sectional studies have identified the following predictors of greater HCT readiness: female sex, older age, White race, better socioeconomic status, private health insurance, family cohesion, greater parental education, greater internal locus of control, shorter duration of diagnosis, and type of primary diagnosis (Cohen et al, 2015; Fenton et al, 2015; Ferris et al, 2015; McManus et al, 2013; Nazareth et al, 2016; Sawicki et al, 2011; and Scal and Ireland, 2005). In longitudinal measurements of HCT readiness, AYAs with chronic conditions achieve self-management until their 20s (Zhong et al, 2018). Health literacy and nutrition knowledge have received less attention in HCT research.…”

Section: Introductionmentioning

confidence: 99%

Health literacy, nutrition knowledge, and health care transition readiness in youth with chronic kidney disease or hypertension: A cross-sectional study

Zhong

Patel

Ferris

et al. 2019

J Child Health Care

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This study evaluates the associations of nutrition knowledge and health literacy with health care transition (HCT) readiness and self-management in adolescents and young adults (AYAs) with chronic kidney disease (CKD) or hypertension. Chronically ill AYAs with poor HCT or self-management skills are less likely to achieve favorable health outcomes as they enter adulthood. Health literacy and nutrition knowledge, which are identified as important contributors to health outcomes, may suggest important points of interventions to improve self-management skills. For the study, we enrolled 59 consecutive patients ages 12–29, with a diagnosis of CKD or hypertension at pediatric- and adult-focused clinics in the United States. Participants completed measures of nutrition knowledge, health literacy, and the Self-management and Transition to Adulthood with Rx = treatment (STARx) questionnaire. Correlation tests and multivariate regressions were employed for data analysis. The findings show that health literacy was positively associated with self-management skills ( p = .050), communication with providers ( p = .002) and overall HCT ( p = .001) after adjusting for key variables. Disease-specific nutrition knowledge positively predicted communication with providers ( p = .002) and overall HCT ( p < .001) after adjusting for key variables. Therefore, health literacy and nutrition knowledge predicted self-management and transition readiness. Testing for these skills should be considered in clinics and HCT preparation for AYAs with chronic conditions.

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Longitudinal Self-Management and/or Transition Readiness per the TRANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

Cited by 29 publications

References 41 publications

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

<p>Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology</p>

Health literacy, nutrition knowledge, and health care transition readiness in youth with chronic kidney disease or hypertension: A cross-sectional study

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