Stakeholder Engagement to Enhance Interventions for Family Caregivers of People with Dementia: A Case Study of Care to Plan

McCarron, Hayley R; Finlay, Jessica; Sims, T; Nikzad-Terhune, Katherina; Gaugler, Joseph E.

doi:10.1080/01634372.2018.1505797

Cited by 10 publications

(8 citation statements)

References 37 publications

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“…This limited stakeholders, giving them no voice or power to influence decisions on the programs to be implemented. Collaborations with stakeholders allow program developers to tap in to the unique perspectives and insights held by various stakeholders [26] whose interests are varied. Discrepancies between expert and user views exist in the context of parent alcohol programs [94], suggesting expert designed programs may be failing to meet the unique needs of parents.…”

Section: Discussionmentioning

confidence: 99%

“…This involves the meaningful engagement of individuals or groups who are either affected by program implementation or have the power to affect the outcome of the program (e.g. government, local communities, target user groups, health care providers) [26]. For example, stakeholder involvement may involve collaborating with target users and key community members during the formative research process to generate insights to guide program development [22].…”

Section: Introductionmentioning

confidence: 99%

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A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

2019

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BackgroundAdolescent alcohol consumption is an issue of ongoing concern and programs targeting parents have been identified as an important component in minimizing and preventing alcohol related harm in adolescents. This paper aims to evaluate existing parent based alcohol education programs with a focus on understanding parent specific outcomes including parental attitudes, parent-child communication, alcohol specific rule setting and parental monitoring; study quality, the extent of stakeholder engagement in program design and the level of theory application.MethodA systematic review of electronic databases EBSCO, Emerald, ProQuest, PubMed, Ovid, ScienceDirect, Taylor and Francis and Web of Science was conducted from database inception to August 2019. A total of 4288 unique records were retrieved from the eight databases. Studies were included if they evaluated school based alcohol education programs that included a parent component and detailed outcome measures associated with parent data. The methodological quality of the included studies was assessed using the Effective Public Health Practice Project (EPHPP) quality assessment tool.ResultsIn total 17 studies qualified for assessment, detailing 13 individual parent programs. Of these, ten programs demonstrated positive effects in at least one parent reported outcome measure. Stakeholder engagement during the design of programs was lacking with the majority of programs. One third of the programs did not report theory use and when theory was used reporting was weak with three programs applying theory, five testing theory and none building theory. According to the EPHPP tool, overall ten programs were rated as weak, three as moderate and none as strong.ConclusionFuture studies are recommended to further enhance the effectiveness of parental programs by improving study quality, increasing stakeholder engagement and increasing the level of theory application and reporting.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

2019

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“…Caregivers who experience excessive burden are at an increased risk of mood disorders, cognitive decline, cardiovascular diseases, and other ailments that decrease their health [ 3 ]. Compounding their burden, caregivers may lack quality information about support strategies that can alleviate the potential challenges of dementia care [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Delivering Personalized Recommendations to Support Caregivers of People Living With Dementia: Mixed Methods Study

et al. 2022

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Background Estimates suggest that 6.2 million Americans aged ≥65 years are living with Alzheimer dementia in 2021, and by 2060, this number could more than double to 13.8 million. As a result, public health officials anticipate a greater need for caregivers of persons with Alzheimer disease or related dementia and support resources for both people living with dementia and their caregivers. Despite the growing need for dementia caregiver support services, there is a lack of consensus regarding how to tailor these services to best meet the heterogeneous needs of individual caregivers. To fill this gap, Care to Plan (CtP), a web-based tool for caregivers of people living with dementia, was developed to provide tailored support recommendations to dementia caregivers. Objective The aim of this study is to formally explore the feasibility, acceptability, and utility of CtP for 20 family members of people living with dementia within a health system over a 1-month time period using a mixed methods parallel convergent design. Methods A moderately sized health system in the mid-Atlantic region was selected as the site for CtP implementation, where 20 caregivers who were family members of people living with dementia were enrolled. The web-based CtP tool was used by caregivers and facilitated by a health care professional (ie, a senior care navigator [SCN]). Caregivers were given a 21-item review checklist to assess barriers and facilitators associated with reviewing CtP with an SCN. Following the 21-item review checklist, semistructured telephone interviews, which included 18 open-ended questions, focused on the facilitators of and barriers to CtP implementation and recommendations for future implementation. Results Quantitative results suggested that 85% (17/20) of caregivers indicated that CtP was helpful and 90% (18/20) would recommend CtP to someone in a similar situation. The qualitative analysis identified 4 themes regarding facilitators of and barriers to implementation: caregiver factors, SCN factors, CtP tool system factors, and recommendations and resources factors. Conclusions CtP was found to be not only feasible but also a valuable tool for caregivers seeking resources for themselves and their people living with dementia. Long-term evaluation findings aim to generate results on how CtP can be integrated into care plans for caregivers and how SCNs can provide additional support for caregivers of people living with dementia over an extended period.

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“…This limited stakeholders, giving them no voice or power to influence decisions on the programs to be implemented. Collaborations with stakeholders allow program developers to tap in to the unique perspectives and insights held by various stakeholders [26] whose interests are varied. Discrepancies between expert and user views exist in the context of parent alcohol programs [95], suggesting expert designed programs may be failing to meet the unique needs of parents.…”

Section: Limited Stakeholder Engagement In Program Designmentioning

confidence: 99%

A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

Hurley

Dietrich

Rundle‐Thiele

2019

Preprint

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Background. Adolescent alcohol consumption is an issue of ongoing concern and programs targeting parents have been identified as an important component in minimizing and preventing alcohol related harm in adolescents. This paper aims to evaluate existing parent based alcohol education programs with a focus on understanding parent specific outcomes including parental attitudes, parent-child communication, alcohol specific rule setting and parental monitoring; study quality, the extent of stakeholder engagement in program design and the level of theory application. Method. A systematic review of electronic databases EBSCO, Emerald, ProQuest, PubMed, Ovid, ScienceDirect, Taylor and Francis and Web of Science was conducted from database inception to August 2019. A total of 4288 unique records were retrieved from the eight databases. Studies were included if they evaluated school based alcohol education programs that included a parent component and detailed outcome measures associated with parent data. The methodological quality of the included studies was assessed using the Effective Public Health Practice Project (EPHPP) quality assessment tool. Results. In total 17 studies qualified for assessment, detailing 13 individual parent programs. Of these, ten programs demonstrated positive effects in at least one parent reported outcome measure. Stakeholder engagement during the design of programs was lacking with the majority of programs. One third of the programs did not report theory use and when theory was used reporting was weak with three programs applying theory, five testing theory and none building theory. According to the EPHPP tool, overall ten programs were rated as weak, three as moderate and none as strong. Conclusion. Future studies are recommended to further enhance the effectiveness of parental programs by improving study quality, increasing stakeholder engagement and increasing the level of theory application and reporting.

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Stakeholder Engagement to Enhance Interventions for Family Caregivers of People with Dementia: A Case Study of Care to Plan

Cited by 10 publications

References 37 publications

A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

Delivering Personalized Recommendations to Support Caregivers of People Living With Dementia: Mixed Methods Study

A systematic review of parent based programs to prevent or reduce alcohol consumption in adolescents

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