An exploration of communication within active support for adults with high and low support needs

Iacono, Teresa; Bould, Emma; Bigby, Christine

doi:10.1111/jar.12502

Cited by 12 publications

(8 citation statements)

References 27 publications

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“…The findings reported a pattern of active support and engagement levels when the appropriate communication was received, with staff develop-ing� their skills in augmentative and alternative communication and informal, nonspeech techniques. (Iacono et al, 2018). �Further observational study combined with staff-related measures explored the impact of personcentered, active support.…”

Section: Socialmentioning

confidence: 99%

Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities

Lennard

Sharpe

Goodey

et al. 2020

Journal of Mental Health Research in Intellectual Disabilities

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Introduction: People with learning disabilities� in the United Kingdom are being incarcerated in hospital settings due to lack of suitable community care and support. �Factors influencing discharge from institutional/hospital care to enable successful community living have not been explored systematically. Method: A systematic review using the PRISMA guidance identified studies via five electronic database searches of Medline, CINAHL, Embase, psychINFO, and Cochrane Library. A predesigned inclusion/exclusion criterion was applied to selected articles. A thematic analysis approach was used. Results: Six qualitative and twelve quantitative articles were identified and divided into three broad themes of support, housing, and health. A further nineteen articles were identified as of peripheral interest. Conclusion:Factors affording a successful transition from hospital/institution to community are discussed. Suitable standards of housing, staff support/training, and health-care access influence the success of sustainable repatriation. An evidence-based tool kit is proposed from available factors to enable safe, sustainable, and timely discharge.

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Section: Socialmentioning

confidence: 99%

Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities

Lennard

Sharpe

Goodey

et al. 2020

Journal of Mental Health Research in Intellectual Disabilities

View full text Add to dashboard Cite

show abstract

“…More specifically, good communication is associated with higher levels of engagement. 37 Unfortunately, the bigger the organisation, the lower the commitment in MA. 33 When asked, PID suggest that quality of care is related to their immediate situation in receiving care and services, such as the relationship with the DSPs.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

“…The quality of the communication between DSPs and PID is associated with engagement of PID in MA. More specifically, good communication is associated with higher levels of engagement 37. Unfortunately, the bigger the organisation, the lower the commitment in MA 33…”

Section: Introductionmentioning

confidence: 99%

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Supporting direct support professionals in enabling people with intellectual disabilities to engage in meaningful activities: protocol for the Meaningful Activities 4 All (MA4A) study based on the human-centred design process

et al. 2022

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IntroductionMeaningful activities (MA) have a positive impact on identity, well-being, participation and inclusion. Although people with intellectual disabilities (PID) depend on their direct support professionals (DSPs) to engage in MA, the DSPs need support which could enable them to offer more qualitative care and support.Methods and analysisTo identify DSPs’ needs, and to develop a tool/service, an innovative and iterative approach is developed, based on the human-centred design (HCD) process, combined with traditional qualitative and quantitative research methods. In the inspiration phase (needs analysis), in-depth interviews will be conducted in two day care centres in Flanders using an interpretative phenomenological analyses, one with a supply-driven approach and the other with a demand-driven approach, followed by a survey sent to all Flemish day care centres. In the ideation phase, the insights of phase 1 will guide a cocreation process (comprising a World Cafe, brainstorm and prototype sessions) with the DSPs, PID and other stakeholders. In the implementation phase, the solution will be tested in the two day care centres from phase 1 by means of living labs and a realist evaluation. By adopting this protocol, the functionality, quality, usability and acceptance are expected to increase. This protocol adopts all phases of the HCD process and shows the complementarity of HCD with traditional research methods. PID and the DSPs will benefit as the end result is truly grounded in their specific needs and wishes.Ethics and disseminationEthical approval by the Ethics Committee of the University Hospital Ghent, Belgium (reference numbers: B670202042983 and PA2021-091). All participants will sign informed consent forms. Results of this study will be submitted for publication in relevant peer-reviewed journals and will be presented at relevant conferences.

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“…Anecdotally, it is often assumed that provision of training for support staff working with adults with learning disabilities is effective. However, outcomes from such studies are varied and cultural and motivational factors are difficult to quantify (Iacono et al, 2018).…”

Section: Using Aac With People Who Have Learning Disabilitiesmentioning

confidence: 99%

Promoting positive communication environments: a service evaluation

Patel¹,

Roche²,

Coward³

et al. 2018

TLDR

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The purpose of this paper is to present an evaluation of a programme of training and support provided to staff, which aimed to encourage supported communication environments for people with learning disabilities. Design/methodology/approach-Training, monitoring and support for communication, specifically augmentative and alternative communication (AAC) strategies, was provided by speech and language therapy staff to two residential services over 46 weeks. Staff and service user communications were observed pre-and post-intervention. Findings-In one provision there was an increase in service user initiations and the use of some AAC strategies by support staff. In the other provision there was no change in service user initiations and a decrease in the range of AAC strategies used. It appears that some forms for AAC remain challenging for staff to implement. Originality/value-This evaluation explores ways of using specialist support services to improve communication environments for people with learning difficulties. Possible reasons for differences in the outcome of the intervention are discussed. Future research into the types of communication interactions experienced by people with learning disabilities across the range of communication styles may be useful so that support staff can be better helped to provide sustained and enriched communication environments.

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An exploration of communication within active support for adults with high and low support needs

Cited by 12 publications

References 27 publications

Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities

Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities

Supporting direct support professionals in enabling people with intellectual disabilities to engage in meaningful activities: protocol for the Meaningful Activities 4 All (MA4A) study based on the human-centred design process

Promoting positive communication environments: a service evaluation

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