Development of a Psychosocial Risk Screener for Siblings of Children With Cancer: Incorporating the Perspectives of Parents

Long, Kristin A.; Pariseau, Emily M.; Muriel, Anna C.; Chu, Andrea; Kazak, Anne E.; Alderfer, Melissa A.

doi:10.1093/jpepsy/jsy021

Cited by 18 publications

(29 citation statements)

References 29 publications

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“…Our review found that positive parent and family functioning are important antecedents to perceptions of social support and well‐being among siblings, similar to previous research 9 . A thorough family assessment and screening may help identify at‐risk siblings who need additional support through counseling, education, validation, or instrumental support with homework or in attending peer activities 76,77 …”

Section: Discussionsupporting

confidence: 80%

“…9 A thorough family assessment and screening may help identify at-risk siblings who need additional support through counseling, education, validation, or instrumental support with homework or in attending peer activities. 76,77 Based on our findings, both formal supportive care and informal social support overlap may be working together to enhance sibling…”

Section: Discussionmentioning

confidence: 80%

“…Use of the Psychosocial Assessment Tool (PAT), 79 validated in families of children with cancer, may be particularly useful in this regard. Currently, a sibling specific module is being developed and tested for the PAT to identify siblings who may have greater risk and require more support 76 . In addition, the Sibling Cancer Needs Assessment, 80 used in several studies cited in this review, is validated to assess the specific types of support needs of siblings.…”

Section: Discussionmentioning

confidence: 99%

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Social support and siblings of children with cancer: A scoping review

et al. 2021

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Objective Social support is essential in healthy adjustment to life stressors. This scoping review examines how social support has been conceptualized, operationalized, and studied among siblings of children with cancer. Gaps in the current literature are identified, and future research directions are proposed. Methods A rigorous systematic scoping review framework guided our process. Medline, Embase, CINAHL, PsycINFO, and Scopus were searched for literature regarding social support and siblings of children with cancer. After screening, 57 articles were identified (n = 26 quantitative, n = 21 qualitative, and n = 10 multi‐method) and their content extracted for summarization. Results The majority of studies (n = 43, 75.4%) were descriptive; 14 (24.6%) included interventions, and of those, four were experimental. Few studies used a clearly defined theoretical framework, or validated tools to measure social support. Studies explored perceived social support needs of siblings, the provision and availability of formal support through interventions and related outcomes, and informal family social supports. A variety of support types were found to be helpful to siblings in different ways. Conclusions Social support is a prevalent topic in the literature regarding siblings of children with cancer. It is unclear what types of support are most important due to how it has been conceptualized and measured. Despite some methodological limitations, greater levels of social support have been linked to better adaptation among siblings of children with cancer. Future work is warranted to identify the most beneficial types of support for siblings based on their age, developmental stage, and the cancer trajectory.

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Section: Discussionsupporting

confidence: 80%

Section: Discussionmentioning

confidence: 80%

Section: Discussionmentioning

confidence: 99%

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Social support and siblings of children with cancer: A scoping review

et al. 2021

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“…The current analyses are part of a larger program of research focused on psychosocial screening for siblings of children with cancer (Long et al, 2017; Long, Pariseau, et al, 2018). In brief, families of children with cancer were recruited through the pediatric oncology service at Dana Farber Cancer Institute to participate in semistructured interviews aimed to develop feasible screening procedures for siblings of children with cancer.…”

Section: Methodsmentioning

confidence: 99%

Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer.

Pariseau¹,

Chevalier²,

Muriel

et al. 2020

Journal of Family Psychology

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Childhood cancer is a significant psychosocial stressor, and sibling adjustment ranges from resilience to clinically significant psychopathology. Siblings and parents often describe siblings' psychosocial functioning differently, which may reflect parental unawareness of siblings' adjustment to cancer and increase the risk for negative sibling outcomes. The present study characterizes siblings' and parents' perceptions of parents' awareness of siblings' psychosocial functioning and describes how family functioning influences parental awareness. Parents (N ϭ 13) and siblings (N ϭ 17, ages 8 -17) from 13 families completed in-depth qualitative interviews regarding siblings' psychosocial adjustment to cancer. Interviews were coded for dimensions of family functioning based on the McMaster Model and analyzed using applied thematic analysis. Families were stratified based on higher or lower levels of parental awareness (i.e., knowledge of the presence, severity, or content of siblings' cancer-related feelings). Themes related to communication, affective involvement, roles, problem-solving, and affective responsiveness influenced parental awareness. Parental awareness was hindered by siblings' reluctance to communicate their feelings to parents due to the messages they received about cancer (e.g., be positive/helpful), siblings' hesitancy to rely on parents for emotional support, and parents not consistently asking about siblings' emotions. Additionally, parents' cancer-related stress and family disruptions reduced parental focus on siblings and decreased parents' tolerance of siblings' negative emotions. Higher parental awareness was facilitated by closer relationships prediagnosis, consistent communication, and affective problem-solving in response to cancer-related changes. Findings provide a more comprehensive understanding of the family processes underlying parental awareness and inform best practices for sibling assessment and support.

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“…18 There is now an increasing number of instruments that may be utilized in the identification of at-risk siblings of children with chronic health conditions. 19 We must ensure that residents can identify appropriate screening tools as well as utilize, interpret, and apply the results of these screening assessments in their clinical practice.…”

Section: To the Editormentioning

confidence: 99%

Pediatric resident knowledge, experience, comfort, and perceived competency in providing sibling psychosocial support

et al. 2020

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Development of a Psychosocial Risk Screener for Siblings of Children With Cancer: Incorporating the Perspectives of Parents

Abstract: Psychosocial screening requires sibling-specific screening items that correspond to preexisting risk (at diagnosis) and reactions to cancer (several months after diagnosis). Validated, sibling-specific screeners will facilitate identification of siblings with elevated psychosocial risk.

Cited by 18 publications

References 29 publications

Social support and siblings of children with cancer: A scoping review

Social support and siblings of children with cancer: A scoping review

Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer.

Pediatric resident knowledge, experience, comfort, and perceived competency in providing sibling psychosocial support

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