Recommendations from the Salzburg Global Seminar on Rethinking Care Toward the End of Life

Bangerter, Lauren R.; Griffin, Joan M.; Eagan, Arielle Wilder; Mishra, Manish; Lunde, Angela; Roger, Véronique L.; Mulley, Albert G.; Lotherington, Jon

doi:10.1093/intqhc/mzy029

Cited by 5 publications

(5 citation statements)

References 8 publications

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“…Care for the family. The areas discussed in 12 studies (11 for healthcare professionals and one for volunteers) included: giving the bad news to the family [25]; engaging and interacting with the family and caregivers [25,33,46,61]; family involvement in decision making [43]; family-centred care [44]; interacting with Latino caregivers [37]; care for the family, family caregivers, and volunteers [38,48,54]; family assessment [61]; and family perspectives on giving and receiving care [59].…”

Section: Themes Common To Target Audiencesmentioning

confidence: 99%

“…Care for the dying. The discussion in 10 studies (eight for healthcare professionals, one for family caregivers and one for community carers) included: caregiving and management in the last days/at the time of death [29,30,31,32,54,58]; patients' preferences in the end of life [46,61]; common symptoms of dying people [60]; and preparing for death at home for homecare agencies [28]. The program for family caregivers discussed common symptoms experienced by the dying person and ways a caregiver can make the dying person more comfortable.…”

Section: Themes Common To Target Audiencesmentioning

confidence: 99%

“…Healthcare system, institutional issues, and community-based care. Eight studies explored the following topics: lessons from the system failure in end-of-life care [61]; community clinical end-of-life care [55]; healthcare models of excellence in end-of-life care [52]; organisations of palliative care and services provision [33,51]; politics, healthcare system, and palliative care [54,59].…”

Section: Themes Specific To Healthcare Professionalsmentioning

confidence: 99%

“…Three studies developed PCE programs using self-palliative care materials for indigenous community carers [29], volunteers [38], and patients themselves [42]. Six studies did not provide information on what educational resources were used [25,35,45,54,61,62]. Detailed information of the materials is presented in table 1.…”

Section: Educational Resources Used In Pce Programsmentioning

confidence: 99%

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Palliative care education and its effectiveness: a systematic review

Chhabra

Singh

2021

Public Health

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Background: Palliative care education (PCE) is an important public health approach to palliative care and is crucial to improving its utilisation. The current study aims to develop a comprehensive understanding of PCE and its effectiveness.Method: A systematic review approach, including narrative synthesis, was employed to review qualitative and quantitative studies published in the English language between January 1969 and January 2019, focusing on PCE programs.Results: Thirty-nine research studies were included in the systematic review. The target audience of the included studies were mostly healthcare professionals, followed by family caregivers. Definitions of death and palliative care, symptom management, and communication were leading themes in the reviewed PCE programs. The educational resources used in PCE programs were mainly self-developed teaching materials, with some programs utilising eLearning resources. The included PCE programs were effective in improving knowledge, attitude, and confidence in palliative care, and the satisfaction of participant learning experience. Conclusion:PCE is a useful tool to improve knowledge of, confidence in, and attitudes towards palliative care amongst healthcare professionals and carers. To make palliative care a public health issue, PCE should be expanded to the public and policymakers.

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Section: Themes Common To Target Audiencesmentioning

confidence: 99%

Section: Themes Common To Target Audiencesmentioning

confidence: 99%

Section: Themes Specific To Healthcare Professionalsmentioning

confidence: 99%

Section: Educational Resources Used In Pce Programsmentioning

confidence: 99%

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Palliative care education and its effectiveness: a systematic review

Chhabra

Singh

2021

Public Health

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“…Nursing managers can utilize this teaching method to offer nurses self-confidence when encountering situations. In low-resource countries, such as China, innovation in training must also come in the form of academic and medical education that integrates EOLC training across professional silos such that all health professionals will be trained to discuss death, upon the diagnosis of a severe illness, comfortably and provide EOLC 34…”

Section: Discussionmentioning

confidence: 99%

Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU

Tong-Hui,

Qi,

Xiao-Li

et al. 2023

Advances in Neonatal Care

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Background: Although end-of-life care (EOLC) has been well-studied, the experience of neonatal intensive care unit (NICU) nurses in China, where little EOLC training is provided, requires further investigation. Purpose: To explore the lived experience of EOLC delivery among NICU nurses, to provide evidence to enhance nurses' EOLC skills and improve their overall quality. Methods: This qualitative study adopted a phenomenological approach. A total of 11 NICU nurses participated in semistructured in-depth interviews between June and July 2022 at the First Affiliated Hospital of University of Science and Technology of China (USTC). Colaizzi's 7-step method was used to analyze the data. Results: Five main themes were identified: (a) multiple emotions are experienced during EOLC delivery; (b) EOLC delivery is stressful from various sources for nurses; (c) expressing empathy and compassion is important; (d) ethical and clinical decision-making are key components of EOLC delivery; and (e) there are challenges in improving neonatal EOLC understanding and delivery. Implications for Practice and Research: The experience of EOLC among Chinese NICU nurses is multidimensional and intensive. Institutions or units must establish and implement related protocols and guidelines to address differences between clinical practice and ideal protocols for neonatal EOLC. Educational programs that consider nurses' personal and interpersonal factors, including local culture, must be developed. Neonatal nurses in Western countries encountering Chinese-born parents who have lost their infants can gain an understanding of parents' perceptions from this study. Future research should focus on developing and testing interventions to train and support NICU nurses working with end-of-life neonates.

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Consequences of suboptimal communication for patients with limited English proficiency in the intensive care unit and suggestions for a way forward: A qualitative study of healthcare team perceptions

Suárez

Urtecho

Nyquist

et al. 2021

Journal of Critical Care

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Recommendations from the Salzburg Global Seminar on Rethinking Care Toward the End of Life

Abstract: There is a global need to rethink, and ultimately revolutionize end of life care in all countries. This paper outlines key aspects of end of life care that warrant explicit improvement through specific action from key stakeholders.

Cited by 5 publications

References 8 publications

Palliative care education and its effectiveness: a systematic review

Palliative care education and its effectiveness: a systematic review

Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU

Consequences of suboptimal communication for patients with limited English proficiency in the intensive care unit and suggestions for a way forward: A qualitative study of healthcare team perceptions

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