Caregiver's burden, coping and psycho-education in Indian households with single- and multiple-affected members with schizophrenia

Chakraborty, Surajit; Bhatia, Triptish; Anderson, Carol; Nimgaonkar, Vishwajit L.; Deshpande, Smita N.

doi:10.1080/14623730.2013.856633

Cited by 7 publications

(8 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Various social support programs have thus been designed to serve family caregivers of PwS, such as psychoeducation interventions, family therapies and group counseling (Chakraborty, Bhatia, Anderson, Nimgaonkar, & Deshpande, 2014; McDonell, Short, Berry, & Dyck, 2003; Ran et al, 2003; Sharif, Shaygan, & Mani, 2012). Identifying determinants associated with caregiving burden is essential in developing more appropriate strategies for these family interventions and home-based services (Tse, Ran, Huang, & Zhu, 2013).…”

Section: Introductionmentioning

confidence: 99%

Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China

Peng¹,

Chen

Tin³

et al. 2019

Int J Soc Psychiatry

View full text Add to dashboard Cite

Background: Little is known about the impacts of schizophrenia on different types of caregiving burden. Aim: This study aims to examine how the severity of schizophrenia, social functioning and aggressive behavior are associated with caregiving burden across different kinship types. Method: The analytic sample included 300 dyads of persons with schizophrenia and their family caregivers in Xinjin, Chengdu, China. The 10th edition of the International Classification of Diseases (ICD-10) was utilized to identify the patients, whose symptom severity, social functioning and aggressive behavior were measured. Caregiving burden was estimated using the Burden Scale for Family Caregivers–short (BSFC-s). Results: A higher level of burden was significantly associated with female caregivers, larger family size, lower income, worse symptoms, poorer functional status and more aggressive behaviors. Parent caregivers showed greater burden if the patients had better functioning of social interest and concern or more aggression toward property. Mother caregivers showed greater burden than fathers. Spouses tended to perceive greater burden if the patients had better marital functioning, poorer occupational functioning or more aggressive behaviors toward property. Patients attacking others or a father with schizophrenia was related to a higher burden of child caregivers. A heavier burden of other relatives was correlated with patients’ more verbal aggression and self-harm. Conclusion: This study shows the distinct impacts of disease-related factors on the caregiving burden across different kinship types. Our findings have implications for health-care professionals and practitioners in terms of developing more targeted family-based or individualized intervention to ameliorate burden according to kinship types and deal with behavioral and functional problems in schizophrenia.

show abstract

Section: Introductionmentioning

confidence: 99%

Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China

Peng¹,

Chen

Tin³

et al. 2019

Int J Soc Psychiatry

View full text Add to dashboard Cite

show abstract

“…Chakraborty et al (37) evaluated an 8-session psychoeducation session for caregivers. This comprised of course, prognosis, outcomes, emotional and behavioural effects on patients, treatment, side effects, stressors, the role of the family in rehabilitation and problem solving.…”

Section: Resultsmentioning

confidence: 99%

A systematic review of the effectiveness and implementation readiness of psychosocial interventions for psychosis in South Asia

Lyles

Khan

Qureshi

et al. 2023

Preprint

View full text Add to dashboard Cite

Background: Little is known about the effectiveness and implementation of psychosocial interventions for psychosis in low- and middle-income countries (LMICs). In South Asia, specialist psychiatric resources are scarce. Support for psychosis often falls on the family or caregiver which can increase feelings of burden, impact caregivers’ wellbeing, and increase mental health stigma. Psychosocial interventions are increasingly used for psychosis in South Asia and could reduce relapse and symptoms, reduce caregiver burden, conserve cost and resources. The aim of this review was to appraise the effectiveness and implementation readiness of psychosocial interventions for people with psychosis in LMICs within South Asia. Method: A systematic search was conducted. Studies were rated on two scales assessing quality and implementation readiness. Results: Twenty-six papers were included, nine intervention-types including community-based interventions/assertive outreach; CaCBTp; FAP; psychoeducation; cognitive retraining/rehabilitation; social cognition/skills; family/ caregiver intervention; telehealth intervention; yoga-based intervention in six South Asian countries. Findings suggest a multicomponent community-based intervention (MCBI) was the most implementation ready due to its standardisation, good clinical outcome outcomes for patients and caregivers, and training and cost evaluations. Conclusion: Of the included studies, MCBI and community-based outreach interventions utilising lay health workers appear to be the most implementation ready and are suggested to best address the treatment gap in South Asia.

show abstract

“…In biological psychiatry, a multiplex family has been a major concern because it is the key to establishing the crucial gene behind the disease. As an extension of this context, the burden of care was reported to be highly significant for families with more than one ill member (multiplex) compared to families with a single affected individual (simplex) [ 34 ]. Contrarily, what we encountered in this study was not associated with genetic multiplexity.…”

Section: Discussionmentioning

confidence: 99%

Middle-aged and older people with urgent, unaware, and unmet mental health care needs: Practitioners’ viewpoints from outside the formal mental health care system

Takase

Matoba²,

Taga

et al. 2022

BMC Health Serv Res

View full text Add to dashboard Cite

Background Mental health challenges are highly significant among older individuals. However, the non-utilization of mental health services increases with age. Although universal health coverage (UHC) was reported to reduce unmet health care needs, it might not be sufficient to reduce unmet mental health care needs from a clinical perspective. Despite the existence of UHC in Japan, this study aimed to explore the factors related to the non-utilization of formal mental health care systems among middle-aged and older people with urgent, unaware, and unmet mental health care needs. Methods Purposeful sampling was used as the sampling method in this study by combining snowball sampling and a specific criterion. The interviewees were nine practitioners from four sectors outside the mental health care system, including long-term care, the public and private sector, as well as general hospitals in one area of Tokyo, where we had conducted community-based participatory research for five years. The interviews were conducted by an interdisciplinary team, which comprised a psychiatrist, a public health nurse from a non-profit organization, and a Buddhist priest as well as a social researcher to cover the broader unmet health care needs, such as physical, psychosocial, and spiritual needs. The basic characteristics of the interviewees were enquired, followed by whether the interviewees had case of middle-aged or older individuals with urgent, unaware, and unmet mental health care needs. If the answer was yes, we asked the interviewees to describe the details. The interviews pertinent to this study were conducted between October 2021 and November 2021. In this study, we adopted a qualitative descriptive approach. First, we created a summary of each case. Next, we explored the factors related to the non-utilization of formal mental health care systems by conducting a thematic analysis to identify the themes in the data collected. Results The over-arching category involving “the factors related to an individual person” included two categories, as follows: 1) “Individual intrinsic factors,” which comprised two sub-categories, including “difficulty in seeking help” and “delusional disorders,” and 2) “family factors,” which comprised “discord between family members,” “denial of service engagement,” “multiple cases in one family,” and “families’ difficulty in seeking help.” The over-arching category “the factors related to the systems” included four categories, as follows: 1) “Physical health system-related factors,” which comprised “the indifference of physical healthcare providers regarding mental health” and “the discontinuation of physical health conditions,” 2) “mental health system-related factors,” which comprised “irresponsive mental health care systems” and “uncomfortable experiences in previous visits to clinics,” and 3) “social service system-related factors,” which comprised “the lack of time to provide care,” “social service not allowed without diagnosis,” and “no appropriate service in the community,” as well as 4) “ the lack of integration between the systems.” Apart from the aforementioned factors, “the community people-related factor” and “factors related to inter-regional movements” also emerged in this study. Conclusions The results of this study suggest a specific intervention target, and they provide further directions for research and policy implementation. The suggested solutions to the issues pertinent to this study are as follows: the recognition of the ways in which older people may inadequately understand their health or be unaware of available services, the building of a therapeutic alliance for “the individual intrinsic factors.” Regarding the “family factors,” the solutions include the provision of particularly intensive care for families with family discords, families with multiple cases, and families who find it difficult to seek help, as well as making intensive efforts for ensuring early involvement after contact with health care services. Regarding the “the factors related to the systems,” the solutions include the implementation of mental health education campaigns aimed at enhancing mental health knowledge among non-mental health professionals, as well as formulating and implementing reforms ensuring that such professionals are increasingly responsible especially with regard to emergency inpatient care. It also include listening without ageism in clinical practice, the expansion of social services regarding human resources and the flexibility of use which increases the breadth of the types of care, as well as facilitating the integration between the associated health care systems. Further suggestions include encouraging community residents to join social security systems as well as the provision of particularly intensive care for people who have just moved in.

show abstract

Caregiver's burden, coping and psycho-education in Indian households with single- and multiple-affected members with schizophrenia

Cited by 7 publications

References 20 publications

Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China

Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China

A systematic review of the effectiveness and implementation readiness of psychosocial interventions for psychosis in South Asia

Middle-aged and older people with urgent, unaware, and unmet mental health care needs: Practitioners’ viewpoints from outside the formal mental health care system

Contact Info

Product

Resources

About