Effect of a health literacy intervention trial on knowledge about cardiovascular disease medications among Indigenous peoples in Australia, Canada and New Zealand

Luke, Joanne; Lambert, Michelle; Smylie, Janet; Reid, Susan; Harré-Hindmarsh, Jennie; Kelaher, Margaret

doi:10.1136/bmjopen-2017-018569

Cited by 25 publications

(20 citation statements)

References 43 publications

(23 reference statements)

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“…Our finding suggests that customised, structured (Beverly et al 2013) and community-based HL interventions are more likely to empower patients and yield significant improvements in T2DM selfmanagement behaviours (Rosal et al 2011;Hill-Briggs et al 2011;Kim et al 2015;Graumlich et al 2016;Cortez et al 2017;Lee et al 2017;Wichit et al 2017). This might be explained by the fact that tailored and community-oriented HL interventions are more likely to address patients' real needs, learning styles and cultural values, which are essential for providing integrated care (Crengle et al 2018).…”

Section: Discussionmentioning

confidence: 78%

Association of health literacy and diabetes self-management: a systematic review

Dahal

Hosseinzadeh

2019

Aust. J. Prim. Health

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The purpose of this review is to summarise the existing evidence about the association of health literacy (HL) with type 2 diabetes mellitus self-management. The PubMed, Medline, CINHAL, Scopus and Web of Science databases were searched for randomised control trials of type 2 diabetes mellitus (T2DM) self-management and HL published between 2009 and 2018. Fourteen randomised control trials were included in this review. Our findings showed that HL was instrumental in improving diabetes knowledge, physical activity, self-efficacy and quality of life; however, its associations with glycaemic control, self-monitoring of blood glucose, foot care and medication adherence was inconclusive. Customized and community-based HL interventions were more efficient compared to patient-focused HL interventions. This review concludes that HL is key for T2DM self-management, but customised, structured and community-based interventions are more likely to yield better outcomes.

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Section: Discussionmentioning

confidence: 78%

Association of health literacy and diabetes self-management: a systematic review

Dahal

Hosseinzadeh

2019

Aust. J. Prim. Health

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“…Geographical coordinates for program implementation sites were available for 41 of the included programs (82% of all included programs). However, one program was omitted from the analyses as the evaluation was undertaken outside of Australia as part of a multi-site program evaluation [47]. A total of 81 implementation sites for the 40 programs (80% of all included programs) with available locations were geo-coded and geographically analysed (Table 3).…”

Section: Resultsmentioning

confidence: 99%

Geographical analysis of evaluated chronic disease programs for Aboriginal and Torres Strait Islander people in the Australian primary health care setting: a systematic scoping review

et al. 2019

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Background Targeted chronic disease programs are vital to improving health outcomes for Indigenous people globally. In Australia it is not known where evaluated chronic disease programs for Aboriginal and Torres Strait Islander people have been implemented. This scoping review geographically examines where evaluated chronic disease programs for Aboriginal people have been implemented in the Australian primary health care setting. Secondary objectives include scoping programs for evidence of partnerships with Aboriginal organisations, and use of ethical protocols. By doing so, geographical gaps in the literature and variations in ethical approaches to conducting program evaluations are highlighted. Methods The objectives, inclusion criteria and methods for this scoping review were specified in advance and documented in a published protocol. This scoping review was undertaken in accordance with the Joanna Briggs Institute (JBI) scoping review methodology. The search included 11 academic databases, clinical trial registries, and the grey literature. Results The search resulted in 6894 citations, with 241 retrieved from the grey literature and targeted organisation websites. Title, abstract, and full-text screening was conducted by two independent reviewers, with 314 citations undergoing full review. Of these, 74 citations evaluating 50 programs met the inclusion criteria. Of the programs included in the geographical analysis ( n = 40), 32.1% were implemented in Major Cities and 29.6% in Very Remote areas of Australia. A smaller proportion of programs were delivered in Inner Regional (12.3%), Outer Regional (18.5%) and Remote areas (7.4%) of Australia. Overall, 90% ( n = 45) of the included programs collaborated with an Aboriginal organisation in the implementation and/or evaluation of the program. Variation in the use of ethical guidelines and protocols in the evaluation process was evident. Conclusions A greater focus on the evaluation of chronic disease programs for Aboriginal people residing in Inner and Outer Regional areas, and Remote areas of Australia is required. Across all geographical areas further efforts should be made to conduct evaluations in partnership with Aboriginal communities residing in the geographical region of program implementation. The need for more scientifically and ethically rigorous approaches to Aboriginal health program evaluations is evident. Electronic supplementary material The online version of this article (10.1186/s12889-019-7463-0) contains supplementary material, which is available to authorized users.

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“…A growing literature supports the significant potential contribution of health literacy to reducing the burden of disease . Robust evidence highlights the need for individuals to gain contextually relevant knowledge, skills and abilities to self‐manage health conditions, especially for migrant and refugee populations where linguistic and cultural barriers often exist .…”

Section: Discussionmentioning

confidence: 99%

“…42 A growing literature supports the significant potential contribution of health literacy to reducing the burden of disease. 4,5,43,44 Robust evidence highlights the need for individuals to gain contextually relevant knowledge, skills and abilities to self-manage health conditions, especially for migrant and refugee populations where linguistic and cultural barriers often exist. 45 Health literacy has recently been established as 'an identifiable and manageable risk in clinical care', 9 p.3 specifically within the management of chronic and complex conditions that depend upon successful patient engagement.…”

Section: Discussionmentioning

confidence: 99%

Understandings of disease among Pacific peoples with diabetes and end‐stage renal disease in New Zealand

Schmidt-Busby

Wiles

Exeter

et al. 2019

Health Expectations

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BackgroundCompared with New Zealand Europeans, Pacific peoples in New Zealand develop type 2 diabetes at a higher rate and a younger age, and have 3.8 times higher incidence of end‐stage renal disease (ESRD).ObjectiveTo investigate contextual factors that shape understandings of disease for Pacific peoples with diabetes and ESRD.MethodsFocussed ethnography. In‐depth interviews were conducted with 16 Pacific people on haemodialysis for diabetic ESRD, in Auckland, New Zealand. Study participants aged between 30 and 69 years old were of Samoan, Cook Islander, Tongan, Niuean or Tokelauan ethnicity. Thematic analysis was used to code and identify themes.ResultsParticipants were embedded in a multigenerational legacy of diabetes. The limited diabetes‐related education of earlier generations influenced how future generations behaved and understood diabetes. Perceptions were compounded by additional factors including the invisibility of early‐stage diabetes; misunderstandings of health risks during communication with health providers; and misunderstandings of multiple conditions’ symptoms and management. Participants had limited engagement with health services until their diagnosis of ESRD acted as a trigger to change this behaviour. However, this trigger was not effective in itself—rather, it was in combination with relevant education delivered in a way that made sense to participants, given their current understandings.ConclusionsIllness representations drive choices and behaviours with respect to self‐management of diabetes and engagement with health services. Diabetes is often present in multiple generations of Pacific people; therefore, illness representations are developed and shared within a family. Changing illness representations requires engagement with the individual within a family context.

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Effect of a health literacy intervention trial on knowledge about cardiovascular disease medications among Indigenous peoples in Australia, Canada and New Zealand

Cited by 25 publications

References 43 publications

Association of health literacy and diabetes self-management: a systematic review

Association of health literacy and diabetes self-management: a systematic review

Geographical analysis of evaluated chronic disease programs for Aboriginal and Torres Strait Islander people in the Australian primary health care setting: a systematic scoping review

Understandings of disease among Pacific peoples with diabetes and end‐stage renal disease in New Zealand

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