“It Just Is What It Is”

Skrastins, Olivia; Fletcher, Paula C.

doi:10.1097/nur.0000000000000345

Cited by 8 publications

(6 citation statements)

References 23 publications

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“…Prior qualitative studies that have assessed the healthcare needs of women with IBS have identified themes related to the unpredictability of IBS symptoms and the impact of symptoms on multiple domains of daily life [33][34][35][36]. This is the first qualitative study to purposefully sample mothers with IBS to understand the impact on parenting.…”

Section: Discussionmentioning

confidence: 99%

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Understanding the Psychosocial and Parenting Needs of Mothers with Irritable Bowel Syndrome with Young Children

et al. 2020

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Women of childbearing age experience the highest prevalence of irritable bowel syndrome (IBS), yet little is known about their psychosocial and parenting needs, which may influence their children’s experience of future gastrointestinal or pain-related conditions. The aims of this study were to conduct qualitative interviews to understand the psychosocial and parenting needs of mothers with IBS who have young school-age children, and to assess mothers’ potential interest in and acceptability of a preventive parenting intervention program. Ten mothers with IBS who have young (age 5–10), healthy children were interviewed. Interviews were coded with thematic analysis and three themes were identified: (1) Guilt about how IBS impacts children, (2) Worry that children will develop IBS, and (3) Already on high alert for children’s health. All mothers expressed interest in an Internet-based preventive intervention and identified tools and strategies they would want included. Results demonstrate that mothers experience guilt about how IBS has impacted their children in their daily lives, concern that they need to pay attention to children’s early signs and symptoms that could indicate gastrointestinal problems, and worry about children developing IBS in the future—suggesting that a preventive intervention may address important concerns for this population.

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Section: Discussionmentioning

confidence: 99%

“…The qualitative interview prompts were created by the study team based on principles of qualitative analysis [29] and prior literature [31][32][33][34][35][36] for the purposes of this study. Participants were asked: How long have you had IBS and abdominal pain and what has it been like for you?…”

Section: Methodsmentioning

confidence: 99%

Understanding the Psychosocial and Parenting Needs of Mothers with Irritable Bowel Syndrome with Young Children

et al. 2020

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Section: Backg Rou N Dmentioning

confidence: 99%

“…One approach to understanding the symptom management needs of patients with IBS and concurrent symptoms of anxiety and/or depression is to conduct a qualitative study of their perspectives. Previous qualitative studies of the lived experiences and needs of those with IBS (Molinder et al, 2015; Parlar Kılıc et al, 2020; Skrastins & Fletcher, 2018) and a recently published systematic review of qualitative studies identified four themes of living with IBS: (1) physical, psychological and social consequences (which included anxiety and depression); (2) impact of IBS on working adults; (3) dealing with IBS and (4) sources of support and support needs (Shorey et al, 2021). However, it is not clear from the review or the studies themselves how many participants had concurrent symptoms of anxiety and/or depression as this information was not reported (Shorey et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Symptom management needs of patients with irritable bowel syndrome and concurrent anxiety and/or depression: A qualitative study

Kamp

Morgan

Yoo

et al. 2022

Journal of Advanced Nursing

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Aims To understand the experiences and needs of symptom management among individuals with irritable bowel syndrome and concurrent symptoms of anxiety and/or depression. Design This study used a qualitative descriptive research design. Methods Individuals with a diagnosis of irritable bowel syndrome and concurrent symptoms of anxiety and/or depression participated were recruited through an online ResearchMatch and a listserv. Semi‐structured interviews focused on symptoms and experiences with symptom management interventions conducted from June to August 2020. Interviews were transcribed and data were analysed based on thematic analysis. Results Twelve individuals participated in this study; all reported current irritable bowel syndrome and anxiety/depression symptoms. The data analysis cumulated with three themes related to symptom management: (a) irritable bowel syndrome negatively impacts physical and mental well‐being; (b) a trial and error approach to symptom management; and (c) challenges with healthcare professionals supporting symptom management including negative interactions with healthcare professionals and lack of nutritional expertize and support. Conclusion There is a need for individualized approaches which consider patients' current symptoms of anxiety and depression, previous experiences with the trial‐and‐error process and consideration for intervention delivery methods. Impact There is a limited qualitative research focusing on the experiences of individuals with irritable bowel syndrome and concurrent symptoms of anxiety and/or depression. This research highlights the need for individualized approaches to enhance symptom management that acknowledges patients' psychological state and past negative experiences with providers and prior dietary regimens.

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“…Among beverages, the participants mentioned alcoholic drinks, carbonated soft drinks, and acidic juices. Many of these foods and beverages overlap with triggers mentioned by people with IBS (Fletcher et al, 2008;Schneider et al, 2009;Skrastins & Fletcher, 2018). These triggers also overlap with foods containing higher quantities of FODMAPs (fermentable oligosaccharides, disaccharides, and polyols), which have been shown to trigger abdominal symptoms such as bloating, flatulence, abdominal discomfort, and diarrhea in, for example, IBS (Gibson & Shepherd, 2010).…”

Section: Coping Strategiesmentioning

confidence: 99%

Primary Immunodeficiency Diseases and Gastrointestinal Distress: Coping Strategies and Dietary Experiences to Relieve Symptoms

et al. 2020

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In this article, we focus on adults with primary immunodeficiency disease (PID) and their experiences with gastrointestinal (GI) distress with the aim of exploring how they experience living with their condition and the actions they take to relieve GI distress. Twelve adults with PID and GI distress participated in semi-structured, in-depth interviews. The interviews were analyzed following the steps of thematic analysis (TA). The study revealed the complexity of the psychosocial aspects of living with PID and GI distress. Participants experienced GI distress to be highly challenging in daily life and felt they had to cope with the condition alone, without adequate help from the health care service. Participants used a wide and diverse range of coping strategies, and the search for normalcy was evident. Health care professionals should be more proactive in supporting individuals with PID in their struggle to find solutions to problems arising from GI distress.

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“It Just Is What It Is”

Abstract: Community health nurses should be aware of the positive and negative effects of living with these conditions to help build relationships and assist with condition management. Other implications are discussed.

Cited by 8 publications

References 23 publications

Understanding the Psychosocial and Parenting Needs of Mothers with Irritable Bowel Syndrome with Young Children

Understanding the Psychosocial and Parenting Needs of Mothers with Irritable Bowel Syndrome with Young Children

Symptom management needs of patients with irritable bowel syndrome and concurrent anxiety and/or depression: A qualitative study

Primary Immunodeficiency Diseases and Gastrointestinal Distress: Coping Strategies and Dietary Experiences to Relieve Symptoms

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