The Role of Media in Non-Directed (Altruistic) Living Kidney Donation

Yaghoubian, Arezou; Connor, Sarah E.; Hicks, Elisabeth; Vargas, Grecia B.; Nassiri, Sima; Maghen, Ariella; Kwan, Lorna; Waterman, Amy D.; Maliski, Sally L.; Veale, Jeffrey L.

doi:10.1080/10410236.2017.1405480

Cited by 9 publications

(3 citation statements)

References 29 publications

(44 reference statements)

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“…In fact, directed altruistic potential living kidney donors were almost exclusively generated through social media [ 25 ]. Another study by Novogrodsky et al explored the effect of multiple types of media in non-directed living donors decision to donate, and reported that more than half (57%) of these donors identified the media as the cause for their initial interest in donation [ 26 ]. The majority stated that patients’ stories and personal narratives influenced their decision to donate [ 26 ].…”

Section: What Can We Learn About Use For Social Media For Living Dono...mentioning

confidence: 99%

“…Another study by Novogrodsky et al explored the effect of multiple types of media in non-directed living donors decision to donate, and reported that more than half (57%) of these donors identified the media as the cause for their initial interest in donation [ 26 ]. The majority stated that patients’ stories and personal narratives influenced their decision to donate [ 26 ]. Thus, social media could enable motivated altruistic individuals to become potential living donors and enhance living donor transplantation by connecting donor-recipient pairs who may not have been able to engage otherwise.…”

Section: What Can We Learn About Use For Social Media For Living Dono...mentioning

confidence: 99%

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Utilizing Social Media to Identify Potential Living Donors: Learning from US Living Donor Programs

Nishio-Lucar

Hunt²,

Booker³

et al. 2022

Curr Transpl Rep

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Purpose of Review Living donor transplantation provides the best possible recipient outcomes in solid organ transplantation. Yet, identifying potential living donors can be a laborious and resource intensive task that heavily relies on the recipient’s means and social network. Social media has evolved to become a key tool in helping to bring recipients and potential living donors together given its ease of utilization, widespread access, and improved recipient’s comfort with public solicitation. However, in the USA, formal guidelines to direct the use of social media in this context are lacking. Recent Findings To better inform the landscape and opportunities utilizing social media in living donation, the OPTN Living Donor Committee surveyed US transplant programs to explore programs’ experiences and challenges when helping patients use social media to identify potential living donors (September 2019). A large majority of survey participants (N = 125/174, 72%) indicated that their program provided education to use social media to identify potential living donors and most programs tracking referral source confirmed an increase utilization over time. The use of social media was compounded with program and recipient’s challenges including concerns about privacy, inadequate technology access, and knowledge gaps. In this review, we discuss the results of this national survey and recent literature, and provide suggestions to inform program practices and guidance provided to patients wishing to use social media to identify potential living donors. Summary Transplant programs should become competent in the use of social media for potential living donor identification to empower patients interested in using this tool. Social media education should be provided to all patients regardless of voiced interest and, when appropriate, revisited at multiple time points. Programs should consider developing a “team of experts” that can provide focused education and support to patients embarking in social media living donor campaigns. Care should be taken to avoid exacerbating disparities in access to living donor transplantation. Effective and timely guidance to patients in the use of social media could enhance the identification of potential living donors.

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Section: What Can We Learn About Use For Social Media For Living Dono...mentioning

confidence: 99%

Section: What Can We Learn About Use For Social Media For Living Dono...mentioning

confidence: 99%

Utilizing Social Media to Identify Potential Living Donors: Learning from US Living Donor Programs

Nishio-Lucar

Hunt²,

Booker³

et al. 2022

Curr Transpl Rep

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“…In the United Kingdom, NDDs faced higher financial loss from out-of-pocket donation costs compared to bridge donors. 3 However, research on the experiences of US NDDs is limited, 4,5 and questions about their decision-making and barriers to donation have yet to be explored.…”

Section: Introductionmentioning

confidence: 99%

How Can We Help Alleviate the Financial Concerns of Non-Directed (Altruistic) Living Kidney Donors?

et al. 2020

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Introduction: The recent increase in non-directed donors (NDDs) in the United States (U.S.) may help reduce the overwhelming number of patients on the waitlist. However, non-directed donation may be limiting its full potential. Out-of-pocket donation costs upward of $8,000 may be a barrier to potential donors with altruistic tendencies, but inadequate financial support. This study aimed to describe the financial concerns of 31 U.S. NDDs. Methods: We conducted qualitative interviews and administered quantitative demographic surveys between April 2013 and April 2015. Interview transcripts were analyzed using grounded theory techniques to describe and expand on themes relevant to the NDD experience. Findings: We identified 4 sub-themes related to the theme of financial concerns: (1) direct costs related to transportation, lodging, and parking, (2) indirect costs of lost wages encountered from taking time off work to recover from surgery, (3) sources of financial support, and (4) suggestions for alleviating donor financial burden. Two thirds of participants (20) expressed concerns about direct and indirect donation costs. 11 NDDs reported the negative impact of direct costs,15 NDDs had concerns about indirect costs; only 7 donors received supplemental financial support from state mandates and transplant programs. Discussion: Understanding the financial concerns of NDDs may guide improvements in the NDD donation experience that could support individuals who are interested in donating but lack the financial stability to donate. Removing financial disincentives may help increase nondirected donation rates, increase the living donor pool, and the number of kidneys available for transplantation.

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The Onus for Altruism in Kidney Transplantation

McDonald

Veale

2018

European Urology Focus

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The Role of Media in Non-Directed (Altruistic) Living Kidney Donation

Cited by 9 publications

References 29 publications

Utilizing Social Media to Identify Potential Living Donors: Learning from US Living Donor Programs

Utilizing Social Media to Identify Potential Living Donors: Learning from US Living Donor Programs

How Can We Help Alleviate the Financial Concerns of Non-Directed (Altruistic) Living Kidney Donors?

The Onus for Altruism in Kidney Transplantation

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