Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors

Miller, Kimberly A.; Ramírez, Candelaria; Wojcik, Katherine Y.; Ritt-Olson, Anamara; Baezconde‐Garbanati, Lourdes; Schlüter, Thomas; Freyer, David R.; Hamilton, Ann S.; Milam, Joel

doi:10.1007/s00520-017-3956-5

Cited by 17 publications

(14 citation statements)

References 37 publications

(41 reference statements)

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“…In support, Tedeschi and Calhoun ( 15 ) cite stronger, more meaningful relationships and an increased appreciation for life as potential positive consequences of past trauma. PTG appears to be strongly related to factors such as social support ( 16 , 17 ), and females may show more benefits in terms of PTG than males ( 15 ). Thus, PTG appears to lie at the heart of the inoculation effect.…”

Section: Introductionmentioning

confidence: 99%

Model of Post-traumatic Growth in Newly Traumatized vs. Retraumatized Adolescents

et al. 2021

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Background: In our analysis of adolescents affected by the 2016 Fort McMurray wildfire, we observed many negative mental health effects in individuals with a prior history of psychological trauma. Elevated rates of depression and markers of post-traumatic stress disorder (PTSD) were observed, consistent with the hypothesis that prior trauma may reduce sensitivity thresholds for later psychopathology (stress sensitization). Surprisingly, levels of anxiety did not differ based on prior trauma history, nor were retraumatized individuals at increased risk for recent (past month) suicidal ideation. These results are more suggestive of inoculation by prior trauma than stress sensitization. This led us to consider whether individuals with a prior trauma history showed evidence of Post-Traumatic Growth (PTG), a condition in which the experience of a previous trauma leads to areas of sparing or even improvement.Method: To investigate this issue, we generated a structural equation model (SEM) exploring the role of anxiety in previously traumatized (n = 295) and wildfire trauma alone (n = 740) groups. Specifically, models were estimated to explore the relationship between hopelessness, anxiety, PTSD symptoms, self-efficacy and potential protective factors such as friend and family support in both groups. The model was tested using a cross-sectional sample of affected youth, comparing effects between the two groups.Results: While both models produced relatively good fit, differences in the effects and chi-squared values led us to conclude that the groups are subject to different causal specifications in a number of areas, although details warrant caution pending additional investigation.Discussion: We found that adolescents with a prior trauma history appear to have a more realistic appraisal of potential difficulties associated with traumatic events, and seem less reactive to potentially unsettling PTSD symptoms. They also seemed less prone to overconfidence as they got older, an effect seen in the adolescents without a history of trauma. Our findings provide preliminary evidence that the construct of anxiety may work differently in newly traumatized and retraumatized individuals, particularly in the context of mass trauma events.

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Section: Introductionmentioning

confidence: 99%

Model of Post-traumatic Growth in Newly Traumatized vs. Retraumatized Adolescents

et al. 2021

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“…Most of the participants had a feeling of uncertainty about treatment and followed various informative behaviors to manage this feeling. [38] Participants claimed that sometimes they asked their questions from their doctor or caregiver, or used internet and supportive groups to obtain information. Information sharing between childhood cancer survivors may promote positive health care engagement, therefore, there is a need for educating and providing information about self-care during survival period.…”

Section: Discussionmentioning

confidence: 99%

“…Information sharing between childhood cancer survivors may promote positive health care engagement, therefore, there is a need for educating and providing information about self-care during survival period. [38] Various support services are required to meet the cancer survivor's information needs. These services may be provided in different forms, such as in-person counseling sessions, educational services, or informational resource centers.…”

Section: Discussionmentioning

confidence: 99%

Experience of Adolescent Survivors of Childhood Cancer about Self-Care Needs: A Content Analysis

Valizadeh

Zamanzadeh

ghahremanian

et al. 2020

Asia-Pacific Journal of Oncology Nursing

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Objective:In cancer care management, patients or their family are usually responsible for continuing health care. Achieving this goal requires identification of their self-care needs. The purpose of this study is to explore the perception of self-care needs of adolescent cancer survivors.Methods:This study was conducted by the qualitative content analysis method. Participants were 19 adolescent childhood cancer survivors and six parents, nurses, physicians, and charity institution staff from children teaching hospitals in Iran. Participants were selected through purposeful sampling, and individual semistructured interviews were used for data collection. Graneheim and Lundman stages of content analysis were employed for data analysis. Data were managed with the MAXQDA10 software.Results:Content analysis revealed nine subcategories as follows: (1) nutritional protection, (2) prevention from infection, (3) prevention from physical damage, (4) control over cancer recurrence, (5) informational needs, (6) pain management, (7) releasing positive thoughts, (8) continuing routine life, and (9) family protection. The first six subthemes were related to protection against physical distress, and the final three ones were related to protection against psychological distress. These two categories form one theme: “protective self-care need” as an essential self-care need in adolescent cancer survivors.Conclusions:Pediatric and school health nurses can prepare strategies to meet these needs by providing effective informational and psychosocial supports, and healthcare providers are able to check periodically the status of survivors care to provide second or third level of care to prevent escalation and incidence of the adverse outcomes of the disease.

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“…All measures have been used among AYAs in other studies and have been reported by our group in several published studies. [25][26][27][28][29][30] Demographics. Demographics were measured through self-reported gender and ethnicity; the socioeconomic status (SES) was taken from census tract information gathered from reported address on the cancer registry site.…”

Section: Methodsmentioning

confidence: 99%

Depressive Symptoms and Quality of Life Among Adolescent and Young Adult Cancer Survivors: Impact of Gender and Latino Culture

Ritt-Olson

Miller

Baezconde‐Garbanati

et al. 2018

Journal of Adolescent and Young Adult Oncology

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Ethnic and sex variations in depressive symptoms and quality of life (QOL) among adolescent and young adult (AYA) childhood cancer survivors were explored among a sample of Latino and non-Latino childhood cancer survivors (CCSs) (n = 194) treated at hospitals in Los Angeles County. Latinos scored higher in depressive symptoms and lower in QOL when compared with non-Latinos. Males had higher depressive symptoms. Among Latinos, higher levels of acculturation were associated with depression and a poorer QOL, and we found that more acculturated Latino males were more likely to have meaningful levels of depression than less acculturated males or females. Interventions addressing depressive symptoms may be most needed for Hispanic male CCSs.

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Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors

Cited by 17 publications

References 37 publications

Model of Post-traumatic Growth in Newly Traumatized vs. Retraumatized Adolescents

Model of Post-traumatic Growth in Newly Traumatized vs. Retraumatized Adolescents

Experience of Adolescent Survivors of Childhood Cancer about Self-Care Needs: A Content Analysis

Depressive Symptoms and Quality of Life Among Adolescent and Young Adult Cancer Survivors: Impact of Gender and Latino Culture

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