2017
DOI: 10.1016/j.socscimed.2017.09.048
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What is not, but might be: The disnarrated in parents' stories of their child's cancer treatment

Abstract: The study of illness narratives is based on the premise that stories are told for a reason and storytellers make narrative decisions on what to include and leave out of a story, the style of narration, the place where the story is told and the audience. Through this narrative work, they situate themselves in particular ways and make sense of the illness and the world around them. In this article, we explore the disnarrated, a style of narration that features events that do not happen, but are nonetheless refer… Show more

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Cited by 7 publications
(4 citation statements)
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“…“ The participants hope that their child will be able to resume his previous way of life and live again in the realm of normality as defined before the illness onset” (Samson et al, , p. 108) . The possibility of living like healthy children and adolescents resides in the achievement of normality: going to school and college, choosing a profession for the future, marrying and having children (De Graves & Aranda, ; Dupas & Angelo, ; Granek et al, ; Hinds & Martin, ; Kylmä & Juvakka, ; Samson et al, ; Vindrola‐Padros & Brage, ).…”
Section: Resultsmentioning
confidence: 99%
See 1 more Smart Citation
“…“ The participants hope that their child will be able to resume his previous way of life and live again in the realm of normality as defined before the illness onset” (Samson et al, , p. 108) . The possibility of living like healthy children and adolescents resides in the achievement of normality: going to school and college, choosing a profession for the future, marrying and having children (De Graves & Aranda, ; Dupas & Angelo, ; Granek et al, ; Hinds & Martin, ; Kylmä & Juvakka, ; Samson et al, ; Vindrola‐Padros & Brage, ).…”
Section: Resultsmentioning
confidence: 99%
“…For families living with cancer, the ideal future presents a cure, disease remission and full recovery for their ill child (Cornelio et al, ; De Graves & Aranda, ; Granek et al, ; Nicholas et al, ; dos Santos et al, ; Silva, Barros, & Hora, ; Vindrola‐Padros & Brage, ). This spectrum of possibilities is different for families living with other chronic diseases when the cure is not a real possibility.…”
Section: Resultsmentioning
confidence: 99%
“…[10] Sağlıklı kardeşlerin ihtiyaçlarının ve duygusal zorlanmalarının çoğunun farkında oldukları halde, zamanının ve enerjisinin çoğunu hasta olan çocuğa ayırmak zorunda kalmak, ebeveynlerin anneliğini/babalığını sorgulamalarına ve suçluluk hissetmelerine yol açabilmektedir. [7][8][32][33] Kanser tanısı alan çocuğun ebeveynlerine yönelik psikososyal müdahalelerin genellikle etkili baş etme becerilerinin öğretilmesi, problem çözme becerilerinin geliştirilmesi, hastalığa ilişkin bilgi düzeyinin artırılması ve rahatlama tekniklerinin öğretilmesi gibi içeriklere sahip oldukları görülmektedir. [13][14][15][16][17][18][19][20][21][34][35][36] Bu araştırmada diğer psikososyal müdahalelerden farklı olarak, sağlıklı kardeşlerin deneyimlerinden yola çıkarak annelerin sağlıklı ergen kardeşlerin yaşadıklarına ilişkin farkındalıklarının ve uygulanabilir önerilerle onlara yardım edebileceklerine ilişkin inançlarının artırılması amaçlandı.…”
Section: Discussionunclassified
“…Uncertainty regarding fertility was ongoing for many of the women, which makes the search to find 'who she is now' even more difficult. As part of the renegotiation of her identity the social worker may focus on the 'disnarrated', that is all of the events that do not happen though they could have (Vindrola-Padros & Brage, 2017, Prince, 1992.…”
Section: Implications For Social Work Practicementioning
confidence: 99%