‘Attending to the wound and the person' – patients’ experiences and expectations of a newly established traumatic brain injury clinic

Abstract

There is much room for improvement in the TBI community care in the UK. Our findings support the development of a holistic service that can address the multifactorial problems which the patients with TBI and their families face.

Team-based rehabilitation after traumatic brain injury: a qualitative synthesis of evidence of experiences of the rehabilitation process

“…The search retrieved 10 studies that met the inclusion criteria. (Table II): 6 from Australia (23)(24)(25)(26)(27)(28), 2 from the UK (29,30), and 2 from Scandinavia (31,32). The studies included a total of 138 persons, of whom 52 were women.…”

“…Participants experienced the rehabilitation to be a demanding process of adapting to a new life with new conditions, characterized by an inner struggle, ranging from onset of the injury to several years later (25)(26)(27)(28)(29)(30)(31).…”

“…Struggling on one's own to adapt to daily life after formal rehabilitation had ceased. After the rehabilitation had ceased, an even more vulnerable life situation than before the transition from hospital was experienced (26)(27)(28)(29)31). The participants had to continue with the adaptation without professional support.…”

“…The participants had to continue with the adaptation without professional support. In this process, they re-evaluated their life and realized the importance of finding new goals and meaning in their changed life situation (26)(27)(28)(29)31). This was experienced as a traumatic process, including grieving the loss of their former self to be able to accept the new self (26).…”

“…Being challenged with an increased understanding of the long-term consequences on everyday life following the transition to the home bilitation that was individually tailored and coordinated during all phases of the recovery (23)(24)(25)(26)(27)(28)(29)(30)(31)(32).…”