The validation of the Dutch SF-Qualiveen, a questionnaire on urinary-specific quality of life, in spinal cord injury patients

Abstract

BackgroundOptimizing the patients’ quality of life is one of the main goals in the urological management of spinal cord injury (SCI) patients. In this study we validated the Dutch SF-Qualiveen, a short questionnaire that measures the urinary-specific quality of life, in SCI patients. No such measure is yet available for this patient group.MethodsIn 2015–2016 SCI patients with urinary symptomatology who visited the outpatient clinics of Urology at the Erasmus Medical Centre and Rehabilitation at Rijndam Revalidation completed the SF-Qualiveen and UDI-6 during the visit and 1–2 weeks later. The UDI-6, a urinary tract symptom inventory, served as gold standard. Controls, recruited from the Otolaryngology outpatient clinic, completed the questionnaires once. Content-, construct-, and criterion validity and reliability (internal consistency and reproducibility) of the SF-Qualiveen were determined.ResultsFifty seven SCI patients and 50 controls were included. 12 SCI patients asserted that the SF-Qualiveen covered their bladder problems (good content validity). Patients’ SF-Qualiveen scores being positively associated with severity of urinary symptoms and patients’ scores being higher than those of controls indicated good construct validity. The positive association that was found between SF-Qualiveen and UDI-6 in patients (r = 0.66–0.67, P < 0.001) and controls (r = 0.63, P < 0.001) confirmed good criterion validity. Internal consistency (Cronbach’s alpha 0.89–0.92) and reproducibility (intraclass correlation coefficient 0.94) of the SF-Qualiveen were good.ConclusionsThe Dutch SF-Qualiveen is a valid and reliable tool to measure the urinary-specific quality of life in SCI patients.

The Multiple Sclerosis Intimacy and Sexuality Questionnaire (MSISQ‐15): Validation of the Dutch version in patients with multiple sclerosis and spinal cord injury

“…To assess the urogenital function in neuro‐urological patients we advise to use the MSISQ‐15 combined with the SF‐Qualiveen. The SF‐Qualiveen is a questionnaire validated in Dutch to evaluate the urinary‐specific quality of life in MS or SCI patients …”

“…The SF-Qualiveen is a questionnaire validated in Dutch to evaluate the urinary-specific quality of life in MS or SCI patients. 17,18…”

Are EAU/ESPU pediatric urology guideline recommendations on neurogenic bladder well received by the patients? Results of a survey on awareness in spina bifida patients and caregivers

“…Traditionally, objective outcome measures such as number of infections, number of incontinence episodes, etc, were used to report or evaluate the success of a specific treatment. One of the ways to gain the patients’ perspective in the evaluation of treatment has been the creation of new outcomes measures, ie, patient‐reported outcome measures (PROMs) . These PROMs assess how the different domains of symptoms affect the QoL of patients, such as urinary incontinence, fecal incontinence, and sexuality .…”

“…One of the ways to gain the patients' perspective in the evaluation of treatment has been the creation of new outcomes measures, ie, patient-reported outcome measures (PROMs). 6,7 These PROMs assess how the different domains of symptoms affect the QoL of patients, such as urinary incontinence, fecal incontinence, and sexuality. 8 These patient-centered outcomes can be used in the design of future research.…”

Assessment of Intermittent Self-Catheterization Procedures in Patients with Neurogenic Lower Urinary Tract Dysfunction: Dutch Translation and Validation of the Intermittent Catheterization Satisfaction Questionnaire, Intermittent Catheterization Acceptance Test, Intermittent Self Catheterization Questionnaire and Intermittent Catheterization Difficulty Questionnaire

“…The Qualiveen (the only validated questionnaire to evaluate QoL of patients with NLUTD) exists in English, French and has been recently translated and validated in Dutch (SF-Qualiveen) [10].…”