Patients’ perception of their involvement in shared treatment decision making: Key factors in the treatment of inflammatory bowel disease

Veilleux, Sophie; Noiseux, Isabelle; Lachapelle, Nathalie; Kohen, R; Vachon, Luc; Guay, Brian White; Bitton, Alain; Rioux, John D.

doi:10.1016/j.pec.2017.07.028

Cited by 34 publications

(32 citation statements)

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“…The current study was part of a larger research program aimed at translating genetic discoveries into a personalized approach for the treatment of inflammatory bowel diseases [48] for which an online questionnaire was specifically developed. One of the sections of this questionnaire was designed to better understand the concerns raised by the tests/procedures among IBD patients, the transfer of information from the physician to patients and the patients’ understanding of these tests/procedures, as well as the rate of prescriptions, the reasons patients refuse to undergo such tests/procedures and the sociodemographic profile of the participants (Additional file 1: Online Questionnaire).…”

Section: Methodsmentioning

confidence: 99%

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

et al. 2019

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Background Inflammatory Bowel Disease (IBD) with its high incidence and prevalence rates in Canada generates a heavy burden of tests and procedures. The purpose of this study is to gain a better understanding of the transfer of information from physician to patient, as well as the patient understanding and perceptions about the tests and procedures that are ordered to them in the context of IBD diagnosis and monitoring. Methods An online questionnaire was completed by 210 IBD patients in Canada. Information on the five most-often used tests or procedures in IBD diagnosis/monitoring was collected. These include: general blood test, colonoscopy, colon biopsy, medical imaging and stool testing. Results The general blood test is both the most ordered and most refused tool. It is also the one with which patients are the least comfortable, the one that generates the least concern and the one about which physicians provide the least information. The stool test is the test/procedure with which patients are the most comfortable. Procedures raise more concerns among patients and physicians provide more information about why they are needed, their impact and the risks they present. Very little information is provided to patients about the risks of having false positives or negative tests. Conclusions This study provides an initial understanding of patient perceptions, the transfer of information from a physician to a patient and a patient’s understanding of the tests and procedures that will be required to treat IBD throughout what is a lifelong disease. The present study takes a first step in better understanding the acceptance of the test or procedure by IBD patients, which is essential for them to adhere to the monitoring process. Electronic supplementary material The online version of this article (10.1186/s12876-019-0946-8) contains supplementary material, which is available to authorized users.

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Section: Methodsmentioning

confidence: 99%

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

et al. 2019

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“…Humble clinicians may be effective at these tasks because they seek out ways for patients to be involved in the process of care and they focus on the patients and not themselves. Thus, humble clinicians may present more behaviors that patients find more appealing, such as asking open-ended questions and involve patients in decision making [20,32,33].…”

Section: Discussionmentioning

confidence: 99%

“…For example, when clinicians focus on their patients and value patients as partners in the process of care, they may be more likely to engage patients in motivational interviewing [18] or shared decision making [19]. These actions are likely to result in more patient satisfaction [20].…”

Section: Its Interpersonal Component Includes Holding Egalitarian Belmentioning

confidence: 99%

Humble doctors, healthy patients? Exploring the relationships between clinician humility and patient satisfaction, trust, and health status

Huynh

Dicke-Bohmann

2020

Patient Education and Counseling

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Objective: In medicine, numerous commentaries implore clinicians (e.g., physicians, physician assistants, nurse practitioners) to display more humility. However, given the complex power dynamics between patients and clinicians, one should not presume that patients desire and appreciate humble clinicians. This paper examines the relationship between clinician humility and patient outcomes, and aims to provide empirical evidence for the significance of clinician humility. Methods: In two studies, patients (N = 497) recalled their most recent visit to a clinician through an online survey platform (Qualtrics). Patients rated their clinician's humility, their satisfaction and trust with their clinician, and their health status. They also provided demographic information (e.g., gender, race, subjective SES), details about their clinician (e.g., gender, race, professional status) and information about their last medical visit with this clinician (e.g., purpose of visit, wait time during visit). Results: Through hierarchical multiple regression, we demonstrated that clinician humility positively predicted patient satisfaction, trust, and selfreport health (only in Study 2) above and beyond patient, clinician, and visit characteristics. Conclusion: The results demonstrated that clinician humility can predict important patient outcomes above and beyond objective characteristics of the medical interaction. Practice Implications: These findings may shape clinician-patient interactions by validating the pursuit of humility during medical encounters.

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“…Shared decision-making in treatment decisions: This includes discussion about the choice of treatments (e.g., thiopurines, biologics or surgery) and allows more information to emerge for better decisions. There is some evidence that shared decision-making is associated with greater satisfaction and adherence in the use of biologics in rheumatoid arthritis, whereas in IBD, shared decision-making has been associated with greater satifaction and lower anxiety [10,11].…”

Section: How Can Patients Help?mentioning

confidence: 99%

Improving the quality of care for inflammatory bowel disease

Travis

2019

Intest Res

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Great strides have been achieved in the development of quality-of-care measures and standards for inflammatory bowel disease (IBD) over the last decade. The central structural component of care in IBD revolves around the multidisciplinary team, which should be equipped with the necessary resources to operate and implement decisions. Process measures have been defined by interest groups and can be adapted into process tools for the delivery of care for various patient subgroups and clinical scenarios. The emerging treat-to-target approach to IBD management may be used to achieve optimal long-term and holistic patient-centred outcomes, such as survival, control of inflammation and disease progression, symptomatic remission, quality of life and complications. Other important quality-of-care outcome measures for IBD include disutility of care, healthcare utilization and other patient-reported outcomes such as nutritional status and impact of fistulae. The current challenge for healthcare providers and health systems is the integration of quality-of-care structures and processes into clinical practice, and the consistent delivery of updated evidence-based quality IBD care to various patient populations by individual health care providers. Finally, the awareness and appreciation for quality of care in IBD is increasing in Asia, and Asian healthcare institutions should be encouraged to take the lead in improving the quality of care in IBD.

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Patients’ perception of their involvement in shared treatment decision making: Key factors in the treatment of inflammatory bowel disease

Cited by 34 publications

References 50 publications

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures

Humble doctors, healthy patients? Exploring the relationships between clinician humility and patient satisfaction, trust, and health status

Improving the quality of care for inflammatory bowel disease

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