Outcome instruments in moderate-to-severe adult traumatic brain injury: recommendations for use in psychosocial research

Abstract

These recommendations provide a coherent framework along with identified outcome instruments to guide psychosocial research in moderate-to-severe TBI. Adherence to the recommendations will enable data-pooling and comparison across studies and research settings facilitating consistent measurement across the lifespan.

Discourse and cognition in speakers with acquired brain injury (ABI): a systematic review

“…The significant paucity of formal discoursebased assessments is likely to underpin the lack of data here, underscoring a need for greater attention to the development of suitable tools. Recommendations for the use of common outcome measurements aim to improve consistency of psychosocial research in ABI (e.g., Honan et al 2017). This highlights the need to develop and evaluate standardized discourse protocols, which supports recently published recommendations that encourage clinicians and researchers to use discourse-based resources such as TBI Bank (see http://www.talkbank.org/tbibank/) to assess communication following ABI (Honan et al 2017, MacWhinney et al 2011.…”

“…This highlights the need to develop and evaluate standardized discourse protocols, which supports recently published recommendations that encourage clinicians and researchers to use discourse‐based resources such as TBI Bank (see http://www.talkbank.org/tbibank/) to assess communication following ABI (Honan et al . , MacWhinney et al . ).…”

“…Recommendations for the use of common outcome measurements aim to improve consistency of psychosocial research in ABI (e.g., Honan et al 2017). This highlights the need to develop and evaluate standardized discourse protocols, which supports recently published recommendations that encourage clinicians and researchers to use discourse-based resources such as TBI Bank (see http://www.talkbank.org/tbibank/) to assess communication following ABI (Honan et al 2017, MacWhinney et al 2011. Raising awareness of the clinical utility of these resources, may improve consistency of discourse research, and facilitate translation of the results into the clinical context.…”

Outcome assessment after traumatic brain injury – Authors' reply

“…While the feasibility of achieving the aspiration of Maas and colleagues is being explored, the findings from new tools need to be related to information gained from the reflective global indices that have been used extensively over four decades. 4 We, therefore, welcome the recommendation by Mass and colleagues to continue concurrent use of the Glasgow Outcome Scale (GOS) and Extended Glasgow Outcome Scale (GOSE). In an overview in 2016, 5 these scales showed significant differences in outcome in 29% of 112 randomised controlled trials in which they were used as an endpoint.…”

“…1,2 Our first observation relates to freezing of gait (FOG), which is characterised by sudden and brief episodes of inability to produce effective forward stepping. 4 Three phenotypes of FOG have now been recognised, the most common being that of alternating trembling of the legs with the feet remaining in place. The two other phenotypes are shuffling forward with very short steps and complete akinesia without any observable leg movement.…”