Interventions for healthcare professionals, organizations and patients to enhance quality of life for people diagnosed with palliative esophagogastric cancer: a systematic review

Cowley, Alison; Bath‐Hextall, Fiona; Cooper, Joanne

doi:10.11124/jbisrir-2016-003108

Cited by 3 publications

(3 citation statements)

References 28 publications

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“…Considering the lack of early premature symptoms in oesophageal cancer (Ghadimi et al, 2011), this disease is diagnosed at an advanced stage, which leads to poor outcomes (Lewis, Marcu, Whitaker, & Maguire, 2018). In this regard, the statistics show that only 15% of the individuals with diagnosed oesophageal cancer survive five years, which is explained by the late symptom presentation in this cancer that leads to late diagnosis (Cowley, Bath-Hextall, & Cooper, 2017;Lewis et al, 2018). The early diagnosis, commonly known as 'early stage' leads to the best results (Arnal et al, 2015).…”

Section: Discussionmentioning

confidence: 99%

Prevention behaviours of oesophageal cancer: Protocol for a mixed‐method study

Gerayllo

Morowatisharifabad

Jouybari

et al. 2019

Journal of Advanced Nursing

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Aim The aim was to implement an educational programme for the family members of patients with oesophageal cancer on prevention behaviours in Golestan province, north of Iran. Design In this mixed‐method research, qualitative and quantitative studies will be conducted. Methods This study will be carried out using an exploratory mixed‐method design in Golestan province, north of Iran in 2018–2019. The research will include three consecutive phases. At first, a qualitative study will be carried out to determine the preventive behaviour and measures of oesophageal cancer. In this phase, the participants will be selected using the purposive sampling method. Later, semi‐structured interviews will be conducted with the relatives of patients with oesophageal cancer to collect the necessary qualitative data. The second phase will include a literature review based on the information collected from the first phase. Later, a researcher‐made questionnaire will be designed based on the extended parallel process model. Furthermore, a comprehensive programme will be proposed about self‐care of the patients with oesophageal cancer. In the third phase, a quantitative quasi‐experimental research will be conducted over two groups of participants to measure the effectiveness of this programme. This research was approved by the Ethics Committee of Yazd Shahid Sadoughi University of Medical Sciences, Iran in November 2017. Discussion Educational interventions should be designed purposefully according to the needs of the target group to improve their self‐care behaviours. We also expect that this research can improve the individuals' access to high‐quality preventive behaviours with regard to oesophageal cancer. Trial registration: The project was registered on the Iranian Registry of Clinical Trials, (registration number: IRCT20180725040588N1, date registered: 2th October 2018).

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Section: Discussionmentioning

confidence: 99%

Prevention behaviours of oesophageal cancer: Protocol for a mixed‐method study

Gerayllo

Morowatisharifabad

Jouybari

et al. 2019

Journal of Advanced Nursing

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“…In recent years, the mainstay of palliative care research has focused on how care should be offered, including optimal models of delivery, timings for referral, and queries regarding who is in greatest need, and whose role it is to provide this care (18). These questions are particularly pertinent for the advanced oesophago-gastric cancer population, given the scarcity of evidence available to establish which interventions and strategies are most effective in delivering services to advanced oesophago-gastric cancer patients (19) and the limited understanding of the most effective model(s) of care for this clinical population (20).…”

Section: Pre-registrationmentioning

confidence: 99%

Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review

Ghiglieri

Dempster

Wright

et al. 2022

Preprint

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Background Oesophago-gastric cancer is an aggressive disease with a high rate of recurrence and mortality across the disease trajectory. Reduced psychosocial functioning has been evidenced amongst those with advanced disease, however little is known about the contributing factors. Determining these factors is an important clinical consideration to inform assessment and intervention. This review aimed to synthesize the available evidence on the psychosocial functioning of individuals with advanced oesophago-gastric cancer and their carers. Methods A JBI mixed-methods systematic review. Four bibliographic databases, MEDLINE, Embase, PsycINFO, and CINAHL, were searched. Quantitative and qualitative studies were screened for inclusion and critically appraised for methodological quality. Both types of data were extracted using JBI tools for mixed-methods systematic reviews. A convergent segregated approach to synthesis and integration was used. The findings of the synthesis have been configured according to JBI methodology. Results A total of 12 studies were included in this review, including 6 quantitative studies and 6 qualitative studies. The quantitative results provide preliminary indication of several physical, biological, psychological and macro-level contextual factors associated with psychosocial functioning in this clinical population. The qualitative findings shed light on a range of physical, psychosocial, and existential challenges faced by advanced oesophago-gastric cancer patients. These multiple and often persistent challenges appear to cause considerable distress; however, patients describe the importance of maintaining a sense of normality and control over their illness and its effects. Patients value continuity and structure, however many report shortcomings when accessing care. No findings reporting the experiences from the perspective of carers were found, therefore all findings represent the perspective of the patient. Conclusions Further high-quality research is needed to understand how best to support and manage the palliative care needs of individuals living with advanced oesophago-gastric cancer. Implications for practice are discussed, suggesting that psychosocial interventions, complex symptom management and continuity of care could improve the psychosocial functioning of individuals in this setting. Pre-registration The systematic review was pre-registered at the International Prospective Register of Systematic Reviews (PROSPERO; CRD42020181273) and the protocol can be viewed on the OSF (http://osf.io/exuzf)

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“…In recent years, the mainstay of palliative care research has focused on how care should be offered, including optimal models of delivery, timings for referral, and queries regarding who is in greatest need, and whose role it is to provide this care [ 21 ]. These questions are particularly pertinent for the advanced oesophago-gastric cancer population, given the scarcity of evidence available to establish which interventions and strategies are most effective in delivering services to advanced oesophago-gastric cancer patients [ 22 ] and the limited understanding of the most effective model(s) of care for this clinical population [ 23 ].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review

Ghiglieri,

Dempster,

Wright

et al. 2023

BMC Palliat Care

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Background Oesophago-gastric cancer is an aggressive disease with a high rate of recurrence and mortality across the disease trajectory. Reduced psychosocial functioning has been evidenced amongst those with advanced disease, however little is known about the contributing factors. Determining these factors is an important clinical consideration to inform assessment and intervention. This review aimed to synthesise the available evidence on the psychosocial functioning of individuals with advanced oesophago-gastric cancer and their carers. Methods A JBI mixed-methods systematic review. Four bibliographic databases, MEDLINE, Embase, PsycINFO, and CINAHL, were searched. Quantitative and qualitative studies were screened for inclusion and critically appraised for methodological quality. Both types of data were extracted using JBI tools for mixed-methods systematic reviews. A convergent segregated approach to synthesis and integration was used. The findings of the synthesis have been configured according to JBI methodology. Results A total of 12 studies were included in this review, including 6 quantitative studies and 6 qualitative studies. The quantitative results provide preliminary indication of several physical, biological, psychological and macro-level contextual factors associated with psychosocial functioning in this clinical population. The qualitative findings shed light on a range of physical, psychosocial, and existential challenges faced by advanced oesophago-gastric cancer patients. These multiple and often persistent challenges appear to cause considerable distress; however, patients describe the importance of maintaining a sense of normality and control over their illness and its effects. Patients value continuity and structure, however many report shortcomings when accessing care. No findings reporting the experiences from the perspective of carers were found, therefore all findings represent the perspective of the patient. Conclusions Further high-quality research is needed to understand how best to support and manage the palliative care needs of individuals living with advanced oesophago-gastric cancer. Implications for practice are discussed, suggesting that psychosocial interventions, complex symptom management and continuity of care could improve the psychosocial functioning of individuals in this setting. Pre-registration The systematic review was pre-registered at the International Prospective Register of Systematic Reviews (PROSPERO; CRD42020181273) and the protocol can be viewed on the OSF (http://osf.io/exuzf).

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Interventions for healthcare professionals, organizations and patients to enhance quality of life for people diagnosed with palliative esophagogastric cancer: a systematic review

Abstract: There is currently a lack of published evidence to establish which interventions and strategies are most effective in delivering services to patients diagnosed with palliative EG cancer in terms of service structure, process and delivery.

Cited by 3 publications

References 28 publications

Prevention behaviours of oesophageal cancer: Protocol for a mixed‐method study

Prevention behaviours of oesophageal cancer: Protocol for a mixed‐method study

Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review

Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review

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