Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Janssen, Eveline P. C. J.; Vugt, Marjolein de; Köhler, Sebastian; Wolfs, Claire; Kerpershoek, Liselot; Handels, Ron; Orrell, Martin; Woods, Bob; Jelley, Hannah; Stephan, Astrid; Bieber, Anja; Meyer, Gabriele; Engedal, Knut; Selbæk, Geir; Wimo, Anders; Irving, Kate; Hopper, Louise; Marques, Maria J.; Gonçalves-Pereira, Manuel; Portolani, Elisa; Zanetti, Orazio; Verhey, Frans R.J.

doi:10.1080/13607863.2016.1255716

Cited by 28 publications

(34 citation statements)

References 42 publications

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“…The different established caregiver profiles (Janssen, et al, 2017) have demonstrated their predictive value when examining dementia care use. The profiles include a broad range of information relating to the person with dementia and the informal caregiver, and therefore can provide useful information for professionals.…”

Section: Resultsmentioning

confidence: 99%

“…The two low strain groups have in common at baseline (Janssen, et al, 2017) low levels of relative stress, higher levels of sense of coherence and a more internal locus of control, together with a higher proportion of care recipients with mild dementia and less neuropsychiatric symptoms. This profile, for both age groups, appears, over a 12-month period, to be associated with less risk of admission to hospital or care home , and lower uptake of home social care.…”

Section: Discussionmentioning

confidence: 99%

“…Caregiver profiles were established in a previous study (Janssen, et al, 2017) with a latent class analysis, combining both baseline characteristics of the person with dementia and the informal caregiver. Five profiles were identified reflecting demographics of the informal caregiver, and the subjective and objective burden: younger caregivers experiencing low strain; younger caregivers experiencing high strain; older caregivers experiencing low strain; older caregivers experiencing high strain; and a cluster of older caregivers providing support to people with dementia with a high level of needs, but reporting comparatively low strain, described as the older intermediate strain group.…”

Section: Caregiver Profilesmentioning

confidence: 99%

“…The low strain profiles were associated with higher caregiver quality of life and a longer perseverance time (perceived ability to continue providing care at home), while the high strain profiles were associated with more depressive symptoms (Janssen, et al, 2017). Since these caregiver profiles encompass a broad range of variables reflecting the complex interplay of several relevant factors of the person with dementia and informal caregivers, they may have utility in exploring the use of formal dementia care services.…”

Section: Introductionmentioning

confidence: 99%

“…When considering care (non)-use, there seems to be a complex interplay between factors related to the person with dementia and to the informal caregiver (Janssen et al, 2017). In a previous article based on the Actifcare baseline data (Janssen, et al, 2017) five different caregiver profiles were established (Older Low Strain, Older Intermediate Strain, Older High Strain, Younger Low Strain, Younger High Strain) following a latent class analysis. A table with detailed information concerning the variables compromising these profiles is presented in the appendix.…”

Section: Introductionmentioning

confidence: 99%

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Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

Kerpershoek

Woods

Wolfs

et al. 2018

Aging & Mental Health

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Peer reviewed versionCyswllt i'r cyhoeddiad / Link to publication Dyfyniad o'r fersiwn a gyhoeddwyd / Citation for published version (APA):ABSTRACT Objectives: Previously developed dementia caregiver profiles defined by caregiver age and burden, have been associated with caregiver quality of life, depression and perseverance time. The current aim was to investigate whether these caregiver profiles could predict subsequent service use. In addition, non-personal (e.g. meals on wheels) and supportive services (e.g. Alzheimer cafe) in early dementia were investigated as predictors.Methods: A total of 451 dyads of people with dementia and their informal caregivers from eight European countries were followed for one year. People were included if they did not use formal (personal) care but were expected to do so within 1 year. Logistic regression analyses were used with four clusters of service use as dependent variables (home social care, home personal care, day care and admission). The independent variables were caregiver profiles, and non-personal and supportive services at baseline.Results: Caregiver profiles were significant predictors of service use; those experiencing high strain were more likely to use formal care. The use of low-intensity, less intrusive services at baseline significantly predicted the use of home personal care and admission at follow-up. The use of day care at follow-up was predicted by the baseline use of supportive services.Conclusion: Caregiver profiles are valuable predictors for service use: this knowledge can aid professionals in ensuring optimal access to services, which is important for maintaining independence at home. In addition, the use of supportive and less intrusive, non-personal services in the early stages of dementia is to be advised.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Caregiver Profilesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

Kerpershoek

Woods

Wolfs

et al. 2018

Aging & Mental Health

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The mediating role of sense of coherence on mental health outcomes in carers of older dependent relatives: A longitudinal study

López‐Martínez

Orgeta

Frías-Osuna

et al. 2020

Int J Geriat Psychiatry

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Background: Sense of coherence (SOC) is an important protective factor for carer well-being but research to date remains cross-sectional, focusing primarily on the direct effects of SOC on carers' mental health. The study's aim was to investigate the mediating role of SOC in the longitudinal relationship between caregiver strain and carers' psychological health, and its stability over time. Methods: Prospective longitudinal study conducted in Jaén (Spain) with a probabilistic sample of 132 carers of older people, with data collected at baseline and at 1-year follow-up. We measured SOC, caregiver strain, anxiety and depressive symptoms, and several care-recipient characteristics and intensity of care provided. We used multiple linear regression modelling and the Sobel test to analyse mediation effects. Results: SOC was significantly negatively longitudinally associated with both anxiety (β ¼ À 0.38, p ¼ 0.001) and depressive symptoms (β ¼ À 0.28, p ¼ 0.023), after controlling for several confounders. SOC mediated both the relationship between caregiver strain and anxiety, and caregiver strain and depressive symptoms (Sobel test: p < 0.001 for anxiety and p < 0.001 for depressive symptoms). Differences between baseline and 1-year follow-up SOC scores were not statistically significant (p ¼ 0.617). Conclusions: SOC appears to buffer the impact of caregiver strain on symptoms of depression and anxiety in informal carers of older people. Our data showed that SOC is an important psychological resource for carers that remained relatively stable under non-experimental conditions over a period of 1 year in this sample. The findings suggest that interventions aimed at strengthening SOC may protect carer psychological well-being.

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2017

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Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Cited by 28 publications

References 42 publications

Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study

The mediating role of sense of coherence on mental health outcomes in carers of older dependent relatives: A longitudinal study

Wie zorgt er voor de mantelzorger?

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