The Valuation of Informal Care in Cost-of-Illness Studies: A Systematic Review

Oliva‐Moreno, Juan; Trapero-Bertran, Marta; Peña-Longobardo, Luz María; Rubio, Raúl del Pozo

doi:10.1007/s40273-016-0468-y

Cited by 103 publications

(107 citation statements)

References 88 publications

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“…As the need for methodological work is increasingly recognized, approaches to valuation of informal care are now being proposed, which will greatly contribute to addressing the recognized gaps in methodological knowledge and will therefore enhance the robustness of future analyses. 55 One example is the need for approaches for valuation of informal care that quantify the spillover effects on caregivers, including the emotional, financial, and health burden.…”

Section: How Caregiving Costs Add To the Burden Of Heart Disease And mentioning

confidence: 99%

“…43 As expected, the caregiving needs of Alzheimer disease bring the highest cost compared with those of stroke, mental illness, cancer, and multiple sclerosis. 55 However, detailed comparisons with other diseases that rely on consistent methodology are lacking. Hence, it is challenging to examine how caregiving costs for other chronic diseases compare with costs for CVD.…”

Section: Caregiving Costs In Noncardiovascular Chronic Conditionsmentioning

confidence: 99%

See 1 more Smart Citation

Projected Costs of Informal Caregiving for Cardiovascular Disease: 2015 to 2035: A Policy Statement From the American Heart Association

Dunbar¹,

Khavjou²,

Bakas³

et al. 2018

Circulation

195

102

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INTRODUCTION:In a recent report, the American Heart Association estimated that medical costs and productivity losses of cardiovascular disease (CVD) are expected to grow from $555 billion in 2015 to $1.1 trillion in 2035. Although the burden is significant, the estimate does not include the costs of family, informal, or unpaid caregiving provided to patients with CVD. In this analysis, we estimated projections of costs of informal caregiving attributable to CVD for 2015 to 2035. METHODS:We used data from the 2014 Health and Retirement Survey to estimate hours of informal caregiving for individuals with CVD by age/sex/race using a zero-inflated binomial model and controlling for sociodemographic factors and health conditions. Costs of informal caregiving were estimated separately for hypertension, coronary heart disease, heart failure, stroke, and other heart disease. We analyzed data from a nationally representative sample of 16 731 noninstitutionalized adults ≥54 years of age. The value of caregiving hours was monetized by the use of home health aide workers' wages. The per-person costs were multiplied by census population counts to estimate nation-level costs and to be consistent with other American Heart Association analyses of burden of CVD, and the costs were projected from 2015 through 2035, assuming that within each age/sex/racial group, CVD prevalence and caregiving hours remain constant. RESULTS:The costs of informal caregiving for patients with CVD were estimated to be $61 billion in 2015 and are projected to increase to $128 billion in 2035. Costs of informal caregiving of patients with stroke constitute more than half of the total costs of CVD informal caregiving ($31 billion in 2015 and $66 billion in 2035). By age, costs are the highest among those 65 to 79 years of age in 2015 but are expected to be surpassed by costs among those ≥80 years of age by 2035. Costs of informal caregiving for patients with CVD represent an additional 11% of medical and productivity costs attributable to CVD. CONCLUSIONS:The burden of informal caregiving for patients with CVD is significant; accounting for these costs increases total CVD costs to $616 billion in 2015 and $1.2 trillion in 2035. These estimates have important research and policy implications, and they may be used to guide policy development to reduce the burden of CVD on patients and their caregivers.

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Section: How Caregiving Costs Add To the Burden Of Heart Disease And mentioning

confidence: 99%

Section: Caregiving Costs In Noncardiovascular Chronic Conditionsmentioning

confidence: 99%

Projected Costs of Informal Caregiving for Cardiovascular Disease: 2015 to 2035: A Policy Statement From the American Heart Association

Dunbar¹,

Khavjou²,

Bakas³

et al. 2018

Circulation

195

102

View full text Add to dashboard Cite

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“…The most recent studies regard prevalence of MS and suggest an increasing prevalence (85). Several works estimate the COI of MS (86), measure its socioeconomic effects (87), or carry out budget impact analyses (88).…”

Section: % Of Patientsmentioning

confidence: 99%

Living with Multiple Sclerosis in Europe: Pharmacological Treatments, Cost of Illness, and Health-Related Quality of Life Across Countries

Gitto

2017

Multiple Sclerosis: Perspectives in Treatment and Pathogenesis

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More than 700,000 people suffer from multiple sclerosis (MS) in Europe. This implies that more than 1 million people are affected by this disease through their role as caregivers and family members. Given its relevant impact, MS deserves consideration by epidemiologists, clinicians, psychologists, social scientists and other scholars. Such interdisciplinarity is stressed in the present contribution, which focuses on various aspects of socioeconomic burden. Starting from considerations about the epidemiology of the disease in Europe, as outlined by the MS Barometer, a comparative survey based on data collected by the national MS societies and launched in 2008, a brief literature review for each European country mentioned in the report was carried out with the following key terms: "multiple sclerosis," "cost of illness," and "health-related quality of life (HRQoL)." The consideration of the level of assistance provided, the access to rehabilitation centers, and the availability of pharmacological treatments, Drugs, Costs and Quality of Life for MS Patients in Europe 18especially innovative therapies, reveal how there are still huge differences across Europe. Literature contributions are mostly oriented toward HRQoL studies and the impact of new pharmacological treatments. There are less studies focusing on compliance: this may be the consequence of a higher awareness of the disease among the patients and a strengthened cooperation with the physicians. Some suggestions about foreseeable and desirable lines of research conclude the contribution.

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“…Primary caregiver is defined as the individual acting as caregiver of the patient for a minimum of 6 weeks, without receiving financial compensation, with direct emotional involvement and living at home with the patient [1] [2]. Primary caregiver is thus subjected to emotional and physical stress derived from the objective burden of the tasks required for patient's care and normally the financing of a significant part of the care expenses and of course the emotional load that all of this represents [3] [4].…”

mentioning

confidence: 99%

“…In Spain, the economic impact derived from care was1.74.9% of Spanish Gross Domestic Product,(GDP) in 2008 [4] while the need for geriatric patient'scaregivers will be about 2.5 million people by 2060 [5]; and this emerging population of caregivers will be subjected to an already recognized physical and psychological stress with its longterm health implications.…”

mentioning

confidence: 99%

Stress Management in Primary Caregivers: A Health Challenge

Aguiló

López-Barbeito

García

et al. 2017

TMLAI

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Technology based advances in healthcare are leading to social changes that, in turn, will require innovative responses from health systems. Mainly due to these advances, life expectancy grows so, the aging of world population increases and with it the percentage of chronic patients. Because ofthese two factors: aging people and chronic patients, new needs are posed to the current health system. Together with these patients,a population of nonprofessional caregivers emerges playing a key role in the care process. However, the impact of the care burden on their health is usually underminedalthough an increasing number of studies report caregiver associated diseases. One of the challenges that arise from health systems: To acknowledgeand to take care this population of caregivers,to avoid the socalled burned caregiver syndrome as well as to reduce the risks of comorbidities associated with the caregiver's stress by setting up appropriate interventions.Having in mind all these considerations, from the Clinic Hospital in Barcelona we are starting to work ona biofeedback program involvingdifferent populations of caregivers: 30 caregivers of oncological patients and 30 caregivers of geriatric patients and the corresponding control group. The project that is presented in this paper is aiming to determine if these therapies can become effective interventions to reduce the stress that represents the caregiver syndrome. The followup of the project willfocus on the possibility to indirectly demonstrate if the decrease of stress actually results in a decrease of the derived diseases and of the total cost that it entails.

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The Valuation of Informal Care in Cost-of-Illness Studies: A Systematic Review

Abstract: This paper identifies several aspects that should be enhanced to promote comparability between studies and countries, and it sends key messages for incorporating informal care costs to adequately measure the economic impact of diseases.

Cited by 103 publications

References 88 publications

Projected Costs of Informal Caregiving for Cardiovascular Disease: 2015 to 2035: A Policy Statement From the American Heart Association

Projected Costs of Informal Caregiving for Cardiovascular Disease: 2015 to 2035: A Policy Statement From the American Heart Association

Living with Multiple Sclerosis in Europe: Pharmacological Treatments, Cost of Illness, and Health-Related Quality of Life Across Countries

Stress Management in Primary Caregivers: A Health Challenge

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