Family close but friends closer: exploring social support and resilience in older spousal dementia carers

Donnellan, Warren; Bennett, Kate; Soulsby, Laura

doi:10.1080/13607863.2016.1209734

Cited by 55 publications

(61 citation statements)

References 29 publications

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“…In dementia caregiving, interpersonal resources refer to the instrumental and psychological supports from the state, community, and from family members [14]. As a type of interpersonal resource, social support's buffering effect on dementia caregivers' subjective burden has been well documented [15,16]. Informal dementia care imposed heavy financial burden on families, and material supports could be of critical importance in tackling dementia caregiving burden for families in developing countries [17].…”

Section: Introductionmentioning

confidence: 99%

“…Informal dementia care imposed heavy financial burden on families, and material supports could be of critical importance in tackling dementia caregiving burden for families in developing countries [17]. Moreover, welfare service provision from the state, NGOs, as well as the instrumental and psychological supports from friends and family members could play a positive role in dealing with dementia caregiving burden [16,18].…”

Section: Introductionmentioning

confidence: 99%

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Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Yan-chun

Yang

2020

IJERPH

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Caregiving burden significantly effects the physical and mental health of family dementia caregivers. While the association between objective caregiving burden (OCB) and subjective caregiving burden (SCB) of family dementia caregivers is well documented, little is known as with how the association is moderated by the configuration of intrapersonal resource (e.g., immanent justice reasoning) and interpersonal resource (e.g., social support). The present study collected cross-sectional data on 157 major family caregivers of non-institutionalized persons with dementia in an urbanizing region of Western China’s Sichuan Province. They responded to questions on daily time spent on caregiving, the short version of Zarit Burden Interview (ZBI), a sub-scale of a caregiver meaning scale, Social Support Rating Scale (SSRS), and demographic questions. Controlling for the demographic variables of the caregivers, this study found that the objective and subjective dementia caregiving burden were significantly associated (p < 0.001), and immanent justice reasoning was positively correlated with subjective burden (p < 0.01). Moreover, the association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both high (p < 0.001), but neutral when social support was high and immanent justice reasoning was low. The association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both low (p < 0.05), but neutral when social support was low and immanent justice reasoning was high. This research suggests the importance of developing intervention programs that consider the configuration of the external supporting resources and internal meaning-making of caregiving of the family dementia caregivers.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Yan-chun

Yang

2020

IJERPH

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“…4–7 Similarly, the challenges encountered by those who care for people with dementia—either on a formal or informal basis—are increasingly acknowledged. 8 There have been a number of studies 9–11 and policy initiatives 12 13 focusing on this particular group.…”

Section: Introductionmentioning

confidence: 99%

Understanding the needs and experiences of people with young onset dementia: a qualitative study

et al. 2018

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AimDespite an estimated 40 000 people diagnosed with young onset dementia (YOD) in the UK, there is a general lack of awareness of the condition when compared with late onset dementia. The aim of this study was to explore the experiences and needs of people living with YOD (younger than 65 years) and gain an understanding of the issues that impact on them.SettingParticipants’ homes, support group premises or university rooms.Participants14 people with a diagnosis of YOD from a northern UK city.DesignSemistructured, in-depth interviews were audio recorded, transcribed and analysed cross-sectionally following principles of interpretative phenomenological analysis.ResultsFour superordinate themes are reported on ‘process of diagnosis’, ‘the impact of living YOD’, ‘needs of people with YOD’ and ‘living well with YOD’. Nine subordinate themes captured participant experiences of developing cognitive difficulties, after being diagnosed with YOD, and subsequently living with the condition. Key issues that emerging included a lack of general awareness of YOD; how this can delay help seeking; commonalities in prediagnosis trajectories; retrospective understanding of prediagnosis symptom patterns; the difficulties of obtaining a firm diagnosis; the importance of face-to-face support and difficulties associated with daily living. Participants also described the emotional and psychological impact of the condition and the importance of formal and informal support networks.ConclusionsPeople who have a diagnosis of YOD regard themselves as distinct from older people with dementia. Despite similar symptoms, the context in which they experience the condition creates a range of distinct psychosocial concerns not commonly well addressed by health and social care services. As awareness of YOD continues to grow, the development (or adaptation) of services that take into account the idiosyncratic needs of people with YOD should be addressed.

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“…Previous research into this variance has considered pathological factors related to dementia; functional, cognitive and behavioural disturbance and stage of dementia (Mioshi 2013) and the socio-demographic characteristics of the carer (Roth et al 2001). More recent research has focused on resources which promote wellbeing such as coping styles (Roche et al 2015) and social support (Donnellan et al 2016). Resilience has been suggested to be the intervening factor between risks associated with caring and utilisation of personal and community resources (Mohaupt 2009;Windle and Bennett 2011).…”

Section: Introductionmentioning

confidence: 99%

The role of resilient coping in dementia carers' wellbeing

Jones

Mioshi

2019

British Journal of Neuroscience Nursing

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Background: Carers of people with dementia are at risk of psychological distress. However some carers experience positives outcomes and resilient coping may account for this variance in carers' wellbeing. Aim: To assess the role of resilient coping in dementia carers' wellbeing. Methods: A cross-sectional survey of carers measured resilient coping, depression, anxiety, stress and burden. First, group comparisons between carers with high, medium and low resilient coping were made. Next, mediation analyses were conducted to identify if resilient coping was a mediator in the relationships between carer wellbeing and distress. Results: Carers (n=110) were aged 30-80+ years; 66% female; 72% provided 40+ hours care per week; 23% were highly resilient. High resilient carers report significantly less distress than low resilient carers. Resilient coping was a partial mediator in the relationships between wellbeing and depression, anxiety, stress and burden. Conclusions: Interventions promoting or maintaining resilient coping may reduce morbidity in family carers.

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Family close but friends closer: exploring social support and resilience in older spousal dementia carers

Abstract: Family and friend support is not always sufficient to facilitate resilience. Support functions facilitate resilience only if they are perceived to match need. Implications of these findings are discussed.

Cited by 55 publications

References 29 publications

Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Objective and Subjective Dementia Caregiving Burden: The Moderating Role of Immanent Justice Reasoning and Social Support

Understanding the needs and experiences of people with young onset dementia: a qualitative study

The role of resilient coping in dementia carers' wellbeing

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