Impact of health problems secondary to SCI one and five years after first inpatient rehabilitation

Meer, Pim van der; Post, Marcel W M; Leeuwen, Christel M. C. van; Kuppevelt, H.J.M. van; Smit, Christof A; Asbeck, F

doi:10.1038/sc.2016.103

Cited by 28 publications

(18 citation statements)

References 17 publications

(34 reference statements)

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“…In general, data seem to indicate a shift towards reduced work load after SCI [43], potentially due to physical capacity as well as increased amounts of time needed for other activities. A recent study from Van der Meer and colleagues estimated a median of 13 hours extra time per week needed for self-care, bowel-bladder care, transportation, and handicap-management [45]. Our finding of a higher work load in men mainly reflects patterns in the Swiss general population, while an increased work load of people with incomplete lesions may be related to physical capacity.…”

Section: Discussionmentioning

confidence: 60%

Labor Market Integration of People with Disabilities: Results from the Swiss Spinal Cord Injury Cohort Study

Reinhardt

Post²,

Fekete

et al. 2016

PLoS ONE

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ObjectivesWe aimed to describe labor market participation (LMP) of persons with spinal cord injury (SCI) in Switzerland, to examine potential determinants of LMP, and to compare LMP between SCI and the general population.MethodsWe analyzed data from 1458 participants of employable age from the cross-sectional community survey of the Swiss Spinal Cord Injury Cohort Study. Data on LMP of the Swiss general population were obtained from the Swiss Federal Statistical Office. Factors associated with employment status as well as the amount of work performed in terms of full-time equivalent (FTE) were examined with regression techniques.Results53.4% of the participants were employed at the time of the study. Adjusted odds of being employed were increased for males (OR = 1.73, 95% CI 1.33–2.25) and participants with paraplegia (OR = 1.78, 95% CI 1.40–2.27). The likelihood of being employed showed a significant concave relationship with age, peaking at age 40. The relation of LMP with education was s-shaped, while LMP was linearly related to time since injury. On average, employment rates were 30% lower than in the general population. Males with tetraplegia aged between 40 and 54 showed the greatest difference. From the 771 employed persons, the majority (81.7%) worked part-time with a median of 50% FTE (IRQ: 40%-80%). Men, those with younger age, higher education, incomplete lesions, and non-traumatic etiology showed significantly increased odds of working more hours per week. Significantly more people worked part-time than in the general population with the greatest difference found for males with tetraplegia aged between 40 and 54.ConclusionsLMP of persons with SCI is comparatively high in Switzerland. LMP after SCI is, however, considerably lower than in the general population. Future research needs to show whether the reduced LMP in SCI reflects individual capacity adjustment, contextual constraints on higher LMP or both.

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Section: Discussionmentioning

confidence: 60%

Labor Market Integration of People with Disabilities: Results from the Swiss Spinal Cord Injury Cohort Study

Reinhardt

Post²,

Fekete

et al. 2016

PLoS ONE

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“…2 In a recent multicenter prospective cohort study in which the objective was to describe and compare the impact of health problems secondary to SCI on functioning during home and social activities at 1 and 5 years after discharge from first inpatient rehabilitation, sexuality was one of the most frequently mentioned health problems. 3 In the study, 681 persons with SCI (25% females, 75% males) were questioned on what functional gain was most important to their QOL (including sexual function, return of sensation, walking, and bladder and bowel function). For the majority of individuals with paraplegia, regaining sexual function was their highest priority; it was the second highest priority (preceded only by regaining hand and arm function) for individuals with quadriplegia.…”

Section: Need For a Comprehensive View Of Sexuality After Spinal Cordmentioning

confidence: 99%

A Multidisciplinary Approach to Sexual and Fertility Rehabilitation: The Sexual Rehabilitation Framework

Elliott

Hocaloski

Carlson

2017

Topics in Spinal Cord Injury Rehabilitation

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Many studies have identified improvement in sexual function as a priority for persons with spinal cord injury (SCI). Due to the various secondary sensory, motor, and autonomic consequences following SCI and due to the complexity of sexuality per se, this area can be overwhelming to many health care professionals. The literature indicate that sexual and fertility rehabilitation must be addressed in a biopsychosocial manner and include various disciplines. The multidisciplinary utilization of a Sexual Rehabilitation Framework (SRF) allows the medical and/or psychosocial factors that impede or improve sexual and reproductive function to be examined. The SRF is a user-friendly and simplified way to proactively address the major biopsychosocial areas of sexuality and to create a plan of action for the person with SCI. It is an adjunct tool to the full sexual history, and it encourages all disciplines involved in SCI rehabilitation to address the issue of sexual function in the same manner as they would other activities of daily living. Eight areas are included in the SRF: sexual drive/interest, sexual functioning, fertility and contraception, factors associated with the condition, motor and sensory influences, bladder and bowel influences, sexual self-view and self-esteem, and partnership issues. The use of the SRF is encouraged in both inpatient and outpatient settings. Multidisciplinary or interdisciplinary team work is encouraged in sexual and fertility rehabilitation to move clinicians toward providing proactive and comprehensive care for individuals with SCI or other chronic disabilities.

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“…The presence of pain at times is related to the presence of other SHCs such as spasticity, pressure sore, contractures, urinary tract infection (21,37). Pain has an impact on many dimensions of health namely quality of life (17,37); health (20); occupation (21); social life (22) and is a barrier to self-management (23). In agreement with the literature, the participants in this study expressed how pain made them worry, affected their sleep and mobility and limited their social participation.…”

Section: Discussionmentioning

confidence: 99%

“…The impact of secondary health conditions is the main issue patients with SCI complain about and must not be underestimated. Secondary health conditions have been reported to limit the quality of life (17,19); health (20); participation at work (21); social life (22) and to be a barrier to selfmanagement (23). There are many studies that have explored lived experiences of SCI (21,24,25) and unmet care needs (24)(25)(26).…”

Section: Introductionmentioning

confidence: 99%

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

Pilusa

Myezwa

Joanne

2019

Preprint

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Background Long-term rehabilitation that includes preventive care for people with spinal cord injury is key to promoting health. There is evidence that secondary health conditions (SHCs) are prevalent complications across the continuum of care for people with spinal cord injury, leading to recurrent hospitalization and poor quality of life. In order to develop a context-based prevention model of care and strategies in South Africa, there is a need to understand the lived experiences of people with spinal cord injury (SCI).Aim To describe people with spinal cord injury’s experiences of secondary health conditions and the impact these have on their wellbeing.Methods A qualitative descriptive design using semi-structured interviews was adopted. Purposive sampling was used to collect data from 17 participants with SCI who attend outpatient medical care at a tertiary rehabilitation hospital in Gauteng, South Africa. Primary data were collected from August 2018-July 2019. All interviews were transcribed verbatim and analysed using a thematic analysis approach.Results People with spinal cord injury experience a range of secondary health conditions, of which pain, bowel and bladder issues were the most common. The presence of SHCs had an impact on the psychological, physical and social wellbeing of the participants.Conclusion There is a need for prevention interventions (health education and screening) for SHCs throughout the continuum of care and at all levels of prevention. Further research on factors influencing the prevention and management of SHCs is needed.

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Impact of health problems secondary to SCI one and five years after first inpatient rehabilitation

Abstract: The impact of health problems after SCI is considerable and hardly diminishes over time. These results emphasize the need for structured long-term care for people with SCI.

Cited by 28 publications

References 17 publications

Labor Market Integration of People with Disabilities: Results from the Swiss Spinal Cord Injury Cohort Study

Labor Market Integration of People with Disabilities: Results from the Swiss Spinal Cord Injury Cohort Study

A Multidisciplinary Approach to Sexual and Fertility Rehabilitation: The Sexual Rehabilitation Framework

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

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