Assessing quality of life in pediatric gastroschisis patients using the Pediatric Quality of Life Inventory survey: An institutional study

Carpenter, Jennifer L.; Wiebe, Taylor L.; Cass, Darrell L.; Lee, Timothy C.

doi:10.1016/j.jpedsurg.2016.02.012

Cited by 19 publications

(9 citation statements)

References 16 publications

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“…16 Another larger study showed that simple and complicated gastroschisis patients have similar quality of life after the age of two years compared to healthy children, which is reassuring when counseling the parents. 17…”

Section: Need For Surgery In Childhood and Adolescencementioning

confidence: 99%

Medium and long-term outcomes of gastroschisis

Suominen

Rintala

2018

Seminars in Pediatric Surgery

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As survival of gastroschisis patients has improved significantly, it has become apparent that longitudinal follow up strategies need to be developed. Problems concerning patients with gastroschisis are usually associated with gastrointestinal morbidity, but there is mounting evidence that also neurodevelopmental, cognitive, behavioral and late-onset auditory sequelae exist. The presence of associated anomalies, as well as complex features (bowel atresia, necrosis, volvulus, perforation) increase morbidity and impact long-term outcomes. Multidisciplinary follow-up is required, and the key elements of such follow-up are presented here.

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Section: Need For Surgery In Childhood and Adolescencementioning

confidence: 99%

Medium and long-term outcomes of gastroschisis

Suominen

Rintala

2018

Seminars in Pediatric Surgery

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“…NTDs are a major health burden that affect 0.5–2/1000 pregnancies worldwide and represent a preventable cause of stillbirth, infant death and significant lifelong morbidity [21]. CHDs and gastroschisis are other common malformations representing major causes of mortality, morbidity and disability of perinatal origin [22,23]. The aetiology of these congenital malformations is multifactorial and both genetic predisposition and environmental influences contribute to them, with nutritional deficits serving as potential contributing factors [24,25].…”

Section: Introductionmentioning

confidence: 99%

Effect of Adherence to Mediterranean Diet during Pregnancy on Children’s Health: A Systematic Review

et al. 2019

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The traditional Mediterranean diet has been shown to be a healthy eating pattern that protects against the development of many diseases in adults and children. Pregnancy is a critical period of plasticity during which foetal development may be significantly influenced by different environmental factors, including maternal nutrition. In this context, several studies have examined the potential benefits of adherence to a Mediterranean diet during pregnancy on birth outcomes, considering the Mediterranean diet as a whole rather than focusing on the effect of its individual components. In this review, we systematically summarized and discussed results of studies investigating the protective role of Mediterranean diet against foetal growth, prematurity, neural tube defects and other congenital pathologies, asthma and allergy, body weight and metabolic markers. Although current data are insufficient and randomized control trials are needed, growing evidence suggests the beneficial effect of the Mediterranean diet during pregnancy on children’s health. In this sense, strategies aiming to promote adherence to this dietary pattern might be of considerable importance to public health.

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“…"Ages & Stages Questionnaire" (ASQ) 6 : The neurological evaluation was performed using the standardized "ASQ," third edition (ASQ-3) (in French) in addition to the regular clinical examinations. ASQ was developed in 1980 as an alternative clinical evaluation of infants and young children.…”

Section: Long-term Outcome Data Collectionmentioning

confidence: 99%

“…ASQ was developed in 1980 as an alternative clinical evaluation of infants and young children. 6 The questionnaire, completed by the parents, is a neurodevelopmental anomaly-screening tool, which is validated against the Bayley Scales of Infant Development (BSID). It contains five-child development areas (communication, "gross motor," "fine motor," "problem solving," and the social and personal skills, "personal-social").…”

Section: Long-term Outcome Data Collectionmentioning

confidence: 99%

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Neurodevelopment and Health-Related Quality of Life in Infants Born with Gastroschisis: A 6-Year Retrospective French Study

et al. 2016

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Introduction Quantify quality of life (QoL) outcomes in gastroschisis children is little assessed. The primary objective was to describe the long-term outcome of newborns with gastroschisis treated in three tertiary care hospitals of France in terms of neurodevelopment and QoL. Materials and Methods The study reported was a cross-sectional, descriptive multicentric retrospective study assessing the outcome of newborns with gastroschisis, born between January 1, 2009, and December 31, 2014, treated at two large and French level III neonatal intensive care units. Long-term outcome data were assessed by questionnaires sent to the infants' parents. Questionnaires explored global health, neurological development, and quality of life (overall assessment including socio-economic and medical), Age & Stages Questionnaire, infants' quality of life (KIDSCREEN), and quality of parents' life (General Questionnaire Short Form-36). Results In this study, 50% of the survivor's families answered the assessment form (n = 33). The average follow-up age was 40 months, ranging from 8 months to 6 years. Cases of simple gastroschisis more often had a normal score for “communication” (p = 0.033), while patients who received morphine for a longer duration had significantly lower scores for the items “communication” and “problem resolving” (p = 0.024 and p = 0.011, respectively). Children's QoL was significantly lower for patients with gestational age younger than 36 weeks (p = 0.023) and for patients born following “fetal cause delivery” (p = 0.022). Parents had a significantly higher physical composite score if their child underwent primary closure (p = 0.012). Conclusion Our analyses confirm the idea that cases of complex gastroschisis and preterm delivery may lead to poorer outcome. Such hindsight (40 months in mean) allowed for an interesting assessment of development long after the patient's initial hospitalization and to confirm these results, a standardized neuropsychological evaluation of patients should be done when at least 6 years old. An accurate assessment of the social environment and its impact on the development and QoL of children will be fundamental to avoid selection bias.

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Assessing quality of life in pediatric gastroschisis patients using the Pediatric Quality of Life Inventory survey: An institutional study

Cited by 19 publications

References 16 publications

Medium and long-term outcomes of gastroschisis

Medium and long-term outcomes of gastroschisis

Effect of Adherence to Mediterranean Diet during Pregnancy on Children’s Health: A Systematic Review

Neurodevelopment and Health-Related Quality of Life in Infants Born with Gastroschisis: A 6-Year Retrospective French Study

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