The Experience of Cancer in American Indians Living in Oklahoma

Craft, Melissa; Patchell, Beverly; Friedman, Jack R.; Stephens, Lancer; Dwyer, Kathleen

doi:10.1177/1043659616634169

Cited by 5 publications

(8 citation statements)

References 30 publications

(33 reference statements)

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“…Such spirits could represent a loved one, an unknown person, or a special animal. Two articles articulated the belief in animal spirits (McGrath, 2007;McGrath & Phillips, 2008a), and two identified the importance of being able to connect with the spirits of deceased family members (Craft et al, 2017;Walker & Thompson, 2009). For example, some indigenous people are open to messengers and/or signs that are received from animals that death is approaching (McGrath & Phillips, 2008a;Walker & Thompson, 2009).…”

Section: Indigenous Spiritualitymentioning

confidence: 99%

“…For example, some believe that spirits have both positive and negative attributes and can be harmful (Walker &Thompson, 2009). Regardless of such beliefs, communicating and connecting with spirits brought peace and comfort to many indigenous people (Craft et al, 2017).…”

Section: Indigenous Spiritualitymentioning

confidence: 99%

“…Twenty articles contributed to the QOL theme (Burhansstipanov, 2005;Burhansstipanov et al, 2010;Burhansstipanov et al, 2012;Cavanagh et al, 2016;Colclough & Brown, 2014;Craft et al, 2017;Dennis & Washington, 2018a, 2018bEide, 2007;Gifford et al, 2019;Hafner, 2016;Haozous et al, 2016;Haozous & Knobf, 2013;Johnston et al, 2013;McGrath & Phillips 2008b;Pelusi & Krebs, 2005;Roh et al, 2018;Sawchuk et al, 2016;Schill & Caxaj, 2019;Schrader et al, 2009). These studies emphasized important health care issues affecting QOL.…”

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

“…Articles focused on QOL were primarily qualitative, with only three being quantitative. While two articles specifically measured cancer survivors' QOL (Burhansstipanov et al, 2010;Burhansstipanov et al, 2012), the remaining articles targeted QOL priorities identified by NA (Burhansstipanov, 2005), cancer experiences (Cavanagh et al, 2016;Craft et al, 2017;Eide, 2007;Haozous et al, 2016;Haozous & Knobf, 2013;Pelusi & Krebs, 2005), spirituality and survivorship (Gifford et al, 2019;Roh et al, 2018), and barriers to achieving QOL (Sawchuk et al, 2016). Although not all the articles specifically focused on spiritual QOL at EOL, access to quality personalized care and communication with providers were identified as important EOL-related themes.…”

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

“…For instance, financial concerns (Burhansstipanov et al, 2010;Haozous et al, 2016;Sawchuk et al, 2016) have been reported. Moreover, service delays (Burhansstipanov et al, 2010;Craft et al, 2017;Haozous et al, 2016;Sawchuk et al, 2016) and difficulty obtaining treatment and prescriptions (Burhansstipanov, 2005;Craft et al, 2017) also affect QOL for NA and other indigenous people.…”

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

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Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review

2020

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Introduction: While spirituality and quality of life (QOL) are essential components of end-of-life (EOL) care, limited studies have examined these constructs for indigenous peoples. Therefore, the purpose of this article was to examine the state of the science regarding spirituality and QOL at EOL for indigenous people, particularly Native Americans. Method: The Arksey and O’Malley (2005) framework guided this scoping review, which examined 30 articles that included qualitative and quantitative studies, commentary papers, and reviews. Results: The findings identified five spiritual dimensions: the life and death journey, a belief in spirits, tribally grounded traditions, dominant cultural religion influences, and a family focus. QOL indicators included survivorship, optimization of holistic health, communication, and access to appropriate resources. Death rituals were important EOL elements. Discussion: Given the importance of spirituality to QOL for indigenous people, clinicians must be knowledgeable and responsive to indigenous spiritual needs to promote QOL at EOL.

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Section: Indigenous Spiritualitymentioning

confidence: 99%

Section: Indigenous Spiritualitymentioning

confidence: 99%

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

Section: Quality Of Life At End Of Lifementioning

confidence: 99%

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Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review

2020

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Cultural Advocacy for Indigenous Individuals With Serious Illness

Ford,

Dahlin

2024

Am J Hosp Palliat Care

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Indigenous American (I.A.) individuals with serious illness and their families have unmet needs. Often, this group is viewed as a minority within a minority. Numerous health challenges exist within the I.A. populations resulting in dire health care situations. Historical trauma and mistrust of the healthcare system impacts access to quality palliative care by this marginalized population. Given the range of social, spiritual, and cultural issues, the interprofessional team needs increased knowledge specific to the I.A. population to ensure holistic, culturally sensitive care. Utilizing a case study, this article reviews of the needs of I.A. individuals with serious illness and essential skills. The aim is empower palliative care clinicians the knowledge to provide culturally sensitive and congruent care to I.A. individuals with serious illness and their community.

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Financial hardship screening among Native American patients with cancer: a qualitative analysis

Anderson-Buettner,

Janitz,

Doescher

et al. 2024

BMC Health Serv Res

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Background Cancer-related financial hardship is an increasingly recognized concern for patients, families, and caregivers. Many Native American (NA) patients are at increased risk for cancer-related financial hardship due to high prevalence of low income, medical comorbidity, and lack of private health insurance. However, financial hardship screening (FHS) implementation for NA patients with cancer has not been reported. The objective of this study is to explore facilitators and barriers to FHS implementation for NA patients. Methods We conducted key informant interviews with NA patients with cancer and with clinical staff at an academic cancer center. Included patients had a confirmed diagnosis of cancer and were referred to the cancer center through the Indian Health Service, Tribal health program, or Urban Indian health program. Interviews included questions regarding current financial hardship, experiences in discussing financial hardship with the cancer care and primary care teams, and acceptability of completing a financial hardship screening tool at the cancer center. Clinical staff included physicians, advanced practice providers, and social workers. Interviews focused on confidence, comfort, and experience in discussing financial hardship with patients. Recorded interviews were transcribed and thematically analyzed using MAXQDA® software. Results We interviewed seven patients and four clinical staff. Themes from the interviews included: 1) existing resources and support services; 2) challenges, gaps in services, and barriers to care; 3) nuances of NA cancer care; and 4) opportunities for improved care and resources. Patients identified financial challenges to receiving cancer care including transportation, lodging, food insecurity, and utility expenses. Patients were willing to complete a FHS tool, but indicated this tool should be short and not intrusive of the patient’s financial information. Clinical staff described discomfort in discussing financial hardship with patients, primarily due to a lack of training and knowledge about resources to support patients. Having designated staff familiar with I/T/U systems was helpful, but perspectives differed regarding who should administer FHS. Conclusions We identified facilitators and barriers to implementing FHS for NA patients with cancer at both the patient and clinician levels. Findings suggest clear organizational structures and processes are needed for financial hardship to be addressed effectively. Supplementary Information The online version contains supplementary material available at 10.1186/s12913-024-11357-6.

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The Experience of Cancer in American Indians Living in Oklahoma

Cited by 5 publications

References 30 publications

Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review

Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review

Cultural Advocacy for Indigenous Individuals With Serious Illness

Financial hardship screening among Native American patients with cancer: a qualitative analysis

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