Caregiving to persons living with <scp>HIV</scp>/<scp>AIDS</scp>: experiences of Vietnamese family members

Lundberg, Pranee C.; Doan, Thoa Thi Kim; Dinh, Thu; Oach, Nhung Kim; Le, Phong Hoang

doi:10.1111/jocn.13099

Cited by 14 publications

(22 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In Thailand, Lee, Li, Jiraphongsa, and Rotheram-Borus (2010) examined how depression negatively affected the levels of caregiver burden and social support positively impacted caregiver’s quality of life. A study in Vietnam reported similar findings as previous studies that family caregivers lack education and provision of care and mostly kept a secret about family member’s HIV status to avoid stigma (Lundberg, Doan, Dinh, Oach, & Le, 2016). …”

Section: Introductionsupporting

confidence: 81%

See 1 more Smart Citation

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Hsieh¹,

Li²,

Lin³

et al. 2017

AIDS Care

View full text Add to dashboard Cite

This study examined the burden experienced by various roles of family caregivers of people living with HIV (PLH), in particular spouses vs. non-spouses. A total of 475 family members of PLH were recruited from Anhui Province, China. Participants responded to a survey using the Computer Assisted Personal Interview method. The assessment collected data on demographic characteristics and their perceived caregiver burden, which was compared between spouses and non-spouses. Multiple regression models were built to identify factors associated with caregiver burden. About 64.4% of our study participants were female and the mean age was 42.1 years. Among various relationships to PLH, almost half reported being a spouse. Spouses reported significantly higher caregiver burden than non-spouses. In addition, older age and lower family income were significantly associated with higher level of caregiver burden. Among the subsample of spouses, significantly higher level of caregiver burden was identified among wives. Future studies should give special consideration to address the needs of female spouses in order to reduce their caregiver burden.

show abstract

Section: Introductionsupporting

confidence: 81%

“…Nonetheless, spouses were rarely studied as caregivers of PLH. A Vietnamese study briefly examined gender and found no difference in regards to total caregiver burden; however, it documented several differences between older and younger caregivers in some categories of measured caregiver burden (Lundberg et al, 2016). …”

Section: Introductionmentioning

confidence: 99%

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Hsieh¹,

Li²,

Lin³

et al. 2017

AIDS Care

View full text Add to dashboard Cite

show abstract

“…17 Strengthening the link between clinics and families could be an important way to improve long-term retention in care and adherence. 29 While having trusted relationships with providers was an important facilitator of retention in care, stigma and discrimination related to HIV, sexual orientation, and/or gender identity created barriers to staying in care, as has been found in other settings. 10 There is a need for ongoing sensitization and capacity building with all staff and clinical care providers in order to continue improving the overall environment of the clinics for these key populations.…”

Section: Discussionmentioning

confidence: 99%

HIV Diagnosis, Linkage to Care, and Retention among Men Who Have Sex with Men and Transgender Women in Guatemala City

Barrington¹,

Knudston²,

Bailey³

et al. 2016

Journal of Health Care for the Poor and Underserved

View full text Add to dashboard Cite

Men who have sex with men (MSM) and transgender women are disproportionately affected by HIV in Guatemala, yet little is known about their experiences with diagnosis, linkage to care, and retention. We conducted qualitative interviews with 26 MSM and transgender women living with HIV in Guatemala City. HIV diagnosis experiences changed over time with increasing asymptomatic testing at non-governmental organizations. Fear of the physical and social impacts of HIV delayed testing, acceptance of diagnosis, and linkage to HIV care. These fears were driven by layered stigma and discrimination due to non-normative gender expressions and/or sexual orientation. Retention-specific determinants included HIV clinic dynamics and limited employment opportunities. There is an urgent need to improve support systems for early testing and linkage to care and to expand employment opportunities. Stigma and discrimination must be addressed at the family, clinic and contextual levels to reduce fear of diagnosis and improve access to care.

show abstract

“…This internalization can apply to family members as well. In Vietnam, family caregivers described a perceived need to keep their loved one’s status a secret to avoid stigma and discrimination, causing great fear, anxiety, and frustration, and limiting social support (35). …”

Section: Introductionmentioning

confidence: 99%

The Role of HIV Stigma in ART Adherence and Quality of Life Among Rural Women Living with HIV in India

et al. 2018

View full text Add to dashboard Cite

HIV stigma continues to be a barrier to physical and mental health among people living with HIV globally, especially in vulnerable populations. We examined how stigma is associated with health outcomes and quality of life among rural women living with HIV in South India (N = 600). Interviewer-administered measures assessed multiple dimensions of stigma, as well as loneliness, social support, ART adherence, time since diagnosis, and quality of life. Internalized stigma and a lack of social support were associated with a lower quality of life, while the association between internalized stigma and adherence was mediated by the use of stigma-avoidant coping strategies, suggesting that keeping one's diagnosis a secret may make it more difficult to take one's medications. These findings suggest that these women constitute a vulnerable population who need additional services to optimize their health and who might benefit from peer support interventions and stigma-reduction programs for family and community members.

show abstract

Caregiving to persons living with HIV/AIDS: experiences of Vietnamese family members

Abstract: Health care providers should consider gender, age and culture of family members of persons living with HIV/AIDS. Knowledge about HIV/AIDS, provision of care at home and in hospital, and support groups should be developed and implemented.

Cited by 14 publications

References 25 publications

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

HIV Diagnosis, Linkage to Care, and Retention among Men Who Have Sex with Men and Transgender Women in Guatemala City

The Role of HIV Stigma in ART Adherence and Quality of Life Among Rural Women Living with HIV in India

Contact Info

Product

Resources

About