Qualitative assessment of self-identity in people with advanced dementia

Batra, Sadhvi; Sullivan, Jeffrey; Williams, Beverly Rosa; Geldmacher, David S.

doi:10.1177/1471301215601619

Cited by 19 publications

(16 citation statements)

References 16 publications

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“…This study found consensus on the core elements of personhood incorporating: interests and preferences; lifecourse experiences; social interaction; family; and place. The findings reflect both theoretical and empirical evidence on the self (Sabat and Harré, 1992;Sabat and Collins, 1999;Batra et al, 2016) and on relational personhood (Kitwood, 1997;Nowell et al, 2013;Borley and Hardy, 2017), including familial roles (Cohen-Mansfield et al, 2006). This study provides further support for the inclusion of these core elements into person-centred care models (Brooker, 2007;Fazio et al, 2018).…”

Section: Discussionsupporting

confidence: 76%

A multiple perspective view of personhood in dementia

Hennelly

O’Shea

2021

Ageing and Society

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Personhood has been a key influence on the development of person-centred care models in dementia. However, there is ambiguity around the concept and interpretation of personhood, and what it means in practical terms for the delivery of care to people with dementia. This study examines the conceptualisation of personhood within the formal care system for people with dementia in Ireland. A multiple perspective study design examines the experiences of personhood in dementia from the perspectives of people with dementia, family carers and a range of formal carers. Semi-structured interviews with participants were conducted in both community and long-term care settings. Interpretative phenomenological analysis is used to examine the data. A total of 31 participants were interviewed: eight people with dementia, eight family carers and 15 formal carers. There is general consensus on the core elements of personhood among all participants: interests and preferences; lifecourse experiences; social interaction; family; and place. However, there is ambiguity among family carers and formal carers in the interpretation of changes to personhood as the disease progresses. Interpersonal and structural barriers to supporting personhood are identified by all participants. The findings provide guidance on the traits of personhood-enhancing care, including effective communication skills, and the potential of health and social care reform to support the core elements of personhood among people with dementia.

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Section: Discussionsupporting

confidence: 76%

A multiple perspective view of personhood in dementia

Hennelly

O’Shea

2021

Ageing and Society

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“…Research has shown that the Self 1 is preserved among persons with advanced dementia. Even when they almost entirely answer "yes" or "no" to questions, they still show that they can experience themselves as "I" (32,60). Still it seems reasonable to suggest that we can help persons preserve their feeling of being an I by making them feel that they are seen and listened to, that is that they are.…”

Section: Strengthening Self 1 Communionmentioning

confidence: 99%

“…Studies based on the Harré-Sabat theory of selfhood have shown that among persons with mild to moderate dementia, Self 1 was not affected during the course of dementia, whereas Selves 2 and 3 were (13)(14)(15). A few studies using that theory concern persons with advanced dementia (e.g., 24,[31][32][33]. Studies that do not use the Harré-Sabat theory have found that some aspects of sense of self were preserved while other aspects were reduced among persons with advanced dementia (e.g., [34][35][36][37].…”

Section: Selfhoodmentioning

confidence: 99%

Sense of Self among Persons with Advanced Dementia

Norberg

2019

Alzheimer’s Disease

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As humans, we have a sense of self, and at best, we are proud of our abilities and feel respected by other persons. Persons with dementia have been regarded losing their self. Quantitative research has shown that this is true, while qualitative research has shown that parts of self are severely affected while other parts remain even among persons with advanced dementia. These persons sometimes keep feeling "still the same" as before getting dementia. Their memory deficits help as does support from other persons. The theory of three aspects of self by the psychologists Rom Harré and Steven Sabat are presented, that is, the feeling that we are, who we are, and who we are together with other persons. Based on empirical research, suggestions will be given about how by promoting experiences of at-homeness, dignity, and being oneself related to others we can help persons with advanced dementia experience themselves as valuable persons.

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“…To be respected and seen by others as capable human beings are of the highest importance for all humans, as described in theories of PCC by Kitwood (1997). He further described that this is particularly important in the context of dementia because personal interactions may help or hinder a person's desire to maintain identity despite increasing cognitive impairment, which was also discussed in previous studies focussing on the identity of people with dementia (Batra et al, 2016;Brown Wilson, 2017;Hedman et al, 2018).…”

Section: Discussionmentioning

confidence: 90%

Important aspects of home care service: An interview study of persons with dementia

et al. 2020

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Background and Aim Because of the policy of ‘ageing in place’ and a decreasing number of beds in residential settings, more persons with dementia live at home with support from home care services. However, previous studies have revealed more unmet needs and a lower quality of life in this group than in other groups. Because few qualitative studies are performed in which persons with dementia have the opportunity to tell their own stories and describe what they find important, this study aimed to interview persons with dementia and describe their views on the important aspects of receiving home care service. Methods The study used a qualitative approach, and 14 persons with dementia participated in the interviews. The interviews were analysed using qualitative content analysis. Findings The findings revealed one overarching theme. The importance of being supported as a unique and capable human, that is the persons with dementia stated that despite their dementia diagnoses, it was important to be seen as a person with capabilities, although in need of support. This theme was built on three subthemes: being seen as a person, being informed and involved, and being part of a relationship. Conclusions Our study showed that persons with dementia are able to express, formulate and reflect on their needs and preferences about their daily care as well as what is important to them when receiving home care service. Therefore, their point of view should be taken into consideration when planning, providing and evaluating care.

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Qualitative assessment of self-identity in people with advanced dementia

Cited by 19 publications

References 16 publications

A multiple perspective view of personhood in dementia

A multiple perspective view of personhood in dementia

Sense of Self among Persons with Advanced Dementia

Important aspects of home care service: An interview study of persons with dementia

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