Internet-Based Psychotherapy in Young Adult Survivors of Pediatric Cancer: Feasibility and Participants' Satisfaction

Seitz, D; Knaevelsrud, Christine; Duran, Gabriele; Waadt, Sabine; Goldbeck, Lutz

doi:10.1089/cyber.2014.0066

Cited by 21 publications

(27 citation statements)

References 24 publications

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“…A total of 15 interventions focused on symptom management and medication adherence [33,38,42,52,53,61-63,67,72,73], 8 on self-care [33,35,38,40,44,49,57,58,60], 15 on behavior change [35,37,40,44-47,50,54,64,65,70,71] (of which 6 addressed physical activity behavior [35,45-47,50]), 7 on negative emotions [31,40,44,49,57,58,74], 7 on physical health [33,35,44,46,47,50,63], 5 on anxiety or stress [41,43,49, 50,71,73], 5 on goal setting [35,46,47,54,64], 4 on happiness and well-being [31,40,44,70], 4 on depression [31,40,44,49], 3 focused on relationships [40,66,71], 1 on education [40], and the focus of 1 intervention was to provide entertainment [40]. Across the included studies as a collective, there were multiple occasions where the platform had more than 1 target behavior, as noted throughout this section.…”

Section: Resultsmentioning

confidence: 99%

“…None of the studies included for review used mindfulness and meditation, relaxation, or gratitude strategies. Furthermore, 14 used strategies characterized as other [31,33,34,38,39,48-50,53,54,57,58,60, 61,70]. Reported theories used to inform the intervention features included the theory of reasoned action [65], the Adolescent Resilience Model [49], the Hope Process Framework [39], the self-regulation model of health and illness [53], social cognitive theory [53], cognitive behavioral therapy [57,58], and the Symptom Management Theory [60].…”

Section: Resultsmentioning

confidence: 99%

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Digital Interventions to Support Adolescents and Young Adults With Cancer: Systematic Review

McCann¹,

McMillan²,

Pugh³

2019

JMIR Cancer

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BackgroundThe last decade has seen an increase in the number of digital health interventions designed to support adolescents and young adults (AYAs) with cancer.ObjectiveThe objective of this review was to identify, characterize, and fully assess the quality, feasibility, and efficacy of existing digital health interventions developed specifically for AYAs, aged between 13 and 39 years, living with or beyond a cancer diagnosis.MethodsSearches were performed in PubMed, EMBASE, and Web of Science to identify digital health interventions designed specifically for AYA living with or beyond a cancer diagnosis. Data on the characteristics and outcomes of each intervention were synthesized.ResultsA total of 4731 intervention studies were identified through the searches; 38 interventions (43 research papers) met the inclusion criteria. Most (20/38, 53%) were website-based interventions. Most studies focused on symptom management and medication adherence (15, 39%), behavior change (15, 39%), self-care (8, 21%), and emotional health (7, 18%). Most digital health interventions included multiple automated and communicative functions such as enriched information environments, automated follow-up messages, and access to peer support. Where reported (20, 53% of studies), AYAs’ subjective experience of using the digital platform was typically positive. The overall quality of the studies was found to be good (mean Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields scores >68%). Some studies reported feasibility outcomes (uptake, acceptability, and attrition) but were not sufficiently powered to comment on intervention effects.ConclusionsNumerous digital interventions have been developed and designed to support young people living with and beyond a diagnosis of cancer. However, many of these interventions have yet to be deployed, implemented, and evaluated at scale.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Digital Interventions to Support Adolescents and Young Adults With Cancer: Systematic Review

McCann¹,

McMillan²,

Pugh³

2019

JMIR Cancer

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“…Testing the feasibility of complex interventions and trial methods is strongly recommended to estimate important parameters and answer key uncertainties required to design controlled trials. 40 41 Given the novelty of the programme and the few intervention studies conducted with the target population, assessing the acceptability and feasibility of the programme and methods used is of great importance in guiding programme refinements and informing the planning of an efficacy trial, including the generation of hypotheses regarding mechanisms of impact.…”

Section: Discussionmentioning

confidence: 99%

“… 39 Another study examined the feasibility and preliminary efficacy of an ICBT programme to reduce symptoms of post-traumatic stress and anxiety among adolescent and young adult survivors of cancer during childhood and found the intervention to be acceptable and efficacious with pre-post medium effect sizes on post-traumatic stress and anxiety which were sustained at 3-month follow-up. 40 41 However, to the best of our knowledge, no study has evaluated guided ICBT specifically developed to reduce symptoms of anxiety and depression among adolescents and young adults diagnosed with cancer during adolescence who have completed cancer treatment.…”

Section: Introductionmentioning

confidence: 99%

Guided internet-administered self-help to reduce symptoms of anxiety and depression among adolescents and young adults diagnosed with cancer during adolescence (U-CARE: YoungCan): a study protocol for a feasibility trial

et al. 2017

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IntroductionA subgroup of adolescents and young adults diagnosed with cancer during adolescence reports elevated levels of anxiety and depressive symptoms and unmet needs for psychological support. Evidence-based psychological treatments tailored for this population are lacking. This protocol describes a feasibility study of a guided-internet-administered self-help programme (YoungCan) primarily targeting symptoms of anxiety and depression among young persons diagnosed with cancer during adolescence and of the planned study procedures for a future controlled trial.Methods/analysisThe study is an uncontrolled feasibility trial with a pre-post and 3-month follow-up design. Potential participants aged 15–25 years, diagnosed with cancer during adolescence, will be identified via the Swedish Childhood Cancer Registry. 30 participants will be included. Participants will receive YoungCan, a 12-week therapist-guided, internet-administered self-help programme consisting primarily of cognitive–behavioural therapy organised into individually assigned modules targeting depressive symptoms, worry and anxiety, body dissatisfaction and post-traumatic stress. Interactive peer support and psychoeducative functions are also available. Feasibility outcomes include: recruitment and eligibility criteria; data collection; attrition; resources needed to complete the study and programme; safety procedures; participants' and therapists' adherence to the programme; and participants' acceptability of the programme and study methodology. Additionally, mechanisms of impact will be explored and data regarding symptoms of anxiety, depression, post-traumatic stress, body dissatisfaction, reactions to social interactions, quality of life, axis I diagnoses according to the Mini International Neuropsychiatric Interview and healthcare service use will be collected. Exploratory analyses of changes in targeted outcomes will be conducted.Ethics/disseminationThis feasibility protocol was approved by the Regional Ethical Review Board in Uppsala, Sweden (ref: 2016/210). Findings will be disseminated to relevant research, clinical, health service and patient communities through publications in peer-reviewed and popular science journals and presentations at scientific and clinical conferences.Trial registration numberISRCTN97835363.

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“…53 Telehealth interventions have been shown feasible in delivering AYA care; patient satisfaction is high and telehealth does not affect the relationship and trust between AYAs and their clinicians. [54][55][56][57][58]…”

Section: Accessing Digital Health Information In Disparity Settingsmentioning

confidence: 99%

Evaluating and providing quality health information for adolescents and young adults with cancer

Grace

Schweers

Anazodo

et al. 2019

Pediatric Blood & Cancer

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Adolescents and young adults (AYAs, 15-39 years old) are an ideal population to benefit from the ever-expanding number and variety of cancer information and health resources available via the Internet and other digital platforms. However, the ability of individual AYAs to fully utilize such resources depends on their degree of health literacy. Across the trajectory of cancer care, an important role for the oncology clinician is assisting AYAs and caregivers in accessing quality health information consistent with their level of health literacy. Working from the premise that all AYAs with cancer and their caregivers deserve to be empowered with maximal knowledge about their condition, this review provides information to assist oncology clinicians in (1) understanding the variety of contemporary online resources that are currently available, including their strengths and limitations; (2) evaluating the quality of health information; and (3) recommending specific health information resources to their AYA patients. K E Y W O R D S adolescent and young adult, health communication, health education, health information, health literacy, health promotion, patient education

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Internet-Based Psychotherapy in Young Adult Survivors of Pediatric Cancer: Feasibility and Participants' Satisfaction

Cited by 21 publications

References 24 publications

Digital Interventions to Support Adolescents and Young Adults With Cancer: Systematic Review

Digital Interventions to Support Adolescents and Young Adults With Cancer: Systematic Review

Guided internet-administered self-help to reduce symptoms of anxiety and depression among adolescents and young adults diagnosed with cancer during adolescence (U-CARE: YoungCan): a study protocol for a feasibility trial

Evaluating and providing quality health information for adolescents and young adults with cancer

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