Prioritizing a Research Agenda: A Delphi Study of the Better Outcomes Through Research for Newborns (BORN) Network

Simpson, Elizabeth A.; Goyal, Neera K.; Dhepyasuwan, Niramol; Flaherman, Valerie J.; Chung, Esther K.; Kohorn, Isabelle Von; Burgos, Anthony E.; Taylor, James A.

doi:10.1542/hpeds.2014-0003

Cited by 28 publications

(13 citation statements)

References 16 publications

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“…The network was established in 2010 and was sponsored by the American Pediatric Association; it has been described previously. 14 At the time of the survey, the network included an estimated 360 members from 97 newborn nursery sites located in 34 states. Cumulatively, these sites had an annual birth rate of >400 000 infants.…”

Section: Methodsmentioning

confidence: 99%

“…The Better Outcomes through Research for Newborns (BORN) network represents 97 nurseries in 34 states across the United States. 14 The participating members are primarily general pediatricians and represent the provider group that most commonly cares for well term newborns during the birth hospitalization. Clinicians in this network were surveyed to determine the extent of clinical practice variation in the approach to sepsis screening and management among well-appearing term newborns.…”

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confidence: 99%

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Variation in Sepsis Evaluation Across a National Network of Nurseries

et al. 2017

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Section: Methodsmentioning

confidence: 99%

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confidence: 99%

Variation in Sepsis Evaluation Across a National Network of Nurseries

et al. 2017

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“…19 The BORN Network (https://www.academicpeds.org/research/research_BORN.cfm) is a national collaborative of pediatric clinicians and researchers who evaluate neonatal care in the birth setting and in the transition to home. The goal of the BORN Network is to conduct collaborative research to establish a firm evidence-base for routine care of the term and late preterm infant.…”

Section: Introductionmentioning

confidence: 99%

Wide Variation Found in Care of Opioid-Exposed Newborns

Bogen

Whalen

Kair

et al. 2017

Academic Pediatrics

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Background Standardized practices for the management of neonatal abstinence syndrome (NAS) are associated with shorter lengths of stay, but optimal protocols are not established. Aim Identify practice variations for newborns with in-utero chronic opioid exposure among hospitals in the Better Outcomes through Research for Newborns (BORN) network. Methods Nursery site leaders completed a survey about hospitals’ policies and practices regarding care for infants with chronic opioid exposure (≥3 weeks). Results The 76/95 (80%) respondent hospitals were in 34 states, varied in size (<500–>8000 births and <10–>200 opioid-exposed infants/year), with most affiliated with academic centers (89%). Most (85%) had protocols for newborn drug exposure screening; 95% used risk-based approaches. Specimens included urine (81%), meconium (73%) and umbilical cords (10%). Of sites (88%) with NAS management protocols, 77% addressed medical management, 72% nursing care, 72% pharmacologic treatment and 58% supportive care. Morphine was the most common first-line pharmacotherapy followed by methadone. Observation periods for opioid-exposed newborns varied; 57% observed short-acting opioid exposure for 2–3 days while 30% observed for ≥5 days. For long-acting opioids, 71% observed for 4–5 days, 19% for 2–3 days and 8% for ≥7 days. Observation for NAS occurred mostly in Level 1 nurseries (86%); however most (84%) transferred to NICUs when pharmacologic treatment was indicated. Conclusion Most BORN hospitals had protocols for the care of opioid-exposed infants, but policies varied widely and characterize areas of needed research. Identification of variation is the first step toward establishing best practice standards to improve care for this rapidly growing population.

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“…The Delphi process is a formalised method for obtaining consensus, whereby participants respond to successive questionnaires that aim to identify common principles or proposals 9 10. It is used for multiple purposes, including determining common priorities for research 11–14. Responses are qualitative (free text comments) and quantitative (assigning ranks/scores).…”

Section: Methodsmentioning

confidence: 99%

Priorities for collaborative research using very preterm birth cohorts

Zeitlin

Sentenac

Morgan

et al. 2020

Arch Dis Child Fetal Neonatal Ed

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ObjectivesTo develop research priorities on the consequences of very preterm (VPT) birth for the RECAP Preterm platform which brings together data from 23 European VPT birth cohorts.Design and settingThis study used a two-round modified Delphi consensus process. Round 1 was based on 28 research themes related to childhood outcomes (<12 years) derived from consultations with cohort researchers. An external panel of multidisciplinary stakeholders then ranked their top 10 themes and provided comments. In round 2, panel members provided feedback on rankings and on new themes suggested in round 1.ResultsOf 71 individuals contacted, 64 (90%) participated as panel members comprising obstetricians, neonatologists, nurses, general and specialist paediatricians, psychologists, physiotherapists, parents, adults born preterm, policy makers and epidemiologists from 17 countries. All 28 initial themes were ranked in the top 10 by at least six panel members. Highest ranking themes were: education (73% of panel members' top 10 choices); care and outcomes of extremely preterm births, including ethical decisions (63%); growth and nutrition (60%); emotional well-being and social inclusion (55%); parental stress (55%) and impact of social circumstances on outcomes (52%). Highest ranking themes were robust across panel members classified by background. 15 new themes had at least 6 top 10 endorsements in round 2.ConclusionsThis study elicited a broad range of research priorities on the consequences of VPT birth, with good consensus on highest ranks between stakeholder groups. Several highly ranked themes focused on the socioemotional needs of children and parents, which have been less studied.

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Prioritizing a Research Agenda: A Delphi Study of the Better Outcomes Through Research for Newborns (BORN) Network

Abstract: Research priorities of clinicians include criteria for medically indicated formula supplementation of the breastfed newborn, management of neonatal abstinence syndrome and management of newborns at-risk for sepsis.

Cited by 28 publications

References 16 publications

Variation in Sepsis Evaluation Across a National Network of Nurseries

Variation in Sepsis Evaluation Across a National Network of Nurseries

Wide Variation Found in Care of Opioid-Exposed Newborns

Priorities for collaborative research using very preterm birth cohorts

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