Short message service text messaging was feasible as a tool for data collection in a trial of treatment for irritable bowel syndrome

Brabyn, Sally; Adamson, Joy; MacPherson, Hugh; Tilbrook, Helen; Torgerson, David

doi:10.1016/j.jclinepi.2014.05.004

Cited by 18 publications

(9 citation statements)

References 27 publications

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“…Vaccination data collected by SMS 217 was statistically similar to data collected by telephone interview. A number of other public 218 health systems have further demonstrated the utility of SMS for data collection, including 219 collection of immunisation status [16], asthma symptoms [17], irritable bowel syndrome 220 symptoms [18], Ebolavirus symptoms [19], and pain outcomes [20]. 221…”

Section: Events Reported 181mentioning

confidence: 99%

Comparison of text-messaging to voice telephone interviews for active surveillance of adverse events following immunisation

Regan

Blyth

Tracey

et al. 2015

Vaccine

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(2015Mums (FASTMum) program began using short message service (SMS) to collect adverse 32 event information in pregnant women who recently received trivalent influenza vaccine (TIV). 33This study was designed to compare data collected via SMS and telephone for the purposes 34 of monitoring vaccine safety. 35Methods: 344 women who received TIV were randomly assigned to a telephone interview 36 group. They were telephoned seven days post-vaccination and administered a standard 37 survey soliciting any adverse events following immunisation (AEFI) they experienced. They 38 were matched by brand of vaccine, age group, and residence to 344 women who were sent 39 a SMS seven days post-vaccination. The SMS solicited similar information. AEFI reported by 40 SMS and telephone interview were compared by calculating risk ratios.

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Section: Events Reported 181mentioning

confidence: 99%

Comparison of text-messaging to voice telephone interviews for active surveillance of adverse events following immunisation

Regan

Blyth

Tracey

et al. 2015

Vaccine

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“…Brabyn et al randomized participants with irritable bowel syndrome to morning or evening text collection. Those receiving evening text messages had a slightly higher response rate (94% versus 89%, p = 0.06) but there was no difference in time to response between the groups [13]. Investigators in a study that assessed low back pain in miners sent out messages each workday 15 min before the end of the shift and each weekend day at 4 pm and received similar response rates [19].…”

Section: The Text Messagementioning

confidence: 97%

“…A 7-day study evaluating hunger hourly in 15 participants during waking hours yielded a 92% response rate within 30 min of the text prompt, with only two participants responding to fewer than 10 daily texts (out of 16) [12]. Another 7-day study where participants reported daily symptoms of irritable bowel syndrome by text message following a text prompt received 97% response within 10 h [13]. Studies of longer duration yield good response rates as well [10].…”

Section: The Text Messagementioning

confidence: 99%

“…Standard English language text messages are limited to 160 characters; non-English characters may have lower limits (e.g., 67 for Chinese). Researchers can optimize response rates and data quality by keeping messages short and asking one question at a time [12][13][14][15]. Longer messages have downsides: they may be converted to multiple messages or truncated; may lose the participant's attention; or may use up a limited text message plan, risking participant frustration and premature discontinuation.…”

Section: The Text Messagementioning

confidence: 99%

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Best practices for collecting repeated measures data using text messages

Shimoni

Nippita

Castaño

2020

BMC Med Res Methodol

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Background: Researchers and clinicians use text messages to collect data with the advantage of real time capture when compared with standard data collection methods. This article reviews project setup and management for successfully collecting patient-reported data through text messages. Methods: We review our experience enrolling over 2600 participants in six clinical trials that used text messages to relay information or collect data. We also reviewed the literature on text messages used for repeated data collection. We classify recommendations according to common themes: the text message, the data submitted and the phone used. Results: We present lessons learned and discuss how to create text message content, select a data collection platform with practical features, manage the data thoughtfully and consistently, and work with patients, participants and their phones to protect privacy. Researchers and clinicians should design text messages to include short, simple prompts and answer choices. They should decide whether and when to send reminders if participants do not respond and set parameters regarding when and how often to contact patients for missing data. Data collection platforms send, receive, and store messages. They can validate responses and send error messages. Researchers should develop a protocol to append and correct data in order to improve consistency with data handling. At the time of enrollment, researchers should ensure that participants can receive and respond to messages. Researchers should address privacy concerns and plan for service interruptions by obtaining alternate participant contact information and providing participants with a backup data collection method. Conclusions: Careful planning and execution can reward clinicians and investigators with complete, timely and accurate data sets.

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“…16 Other studies have also shown SMS acceptability, feasibility, and up to a 100% response rate. [17][18] The prompt via SMS allowed participants immediate access to the survey, while protecting their privacy by redirecting them to a site where only an identification code was required without use of any personal identifiers. Only three women (1.2% of those assessed for eligibility) were excluded due to lack of cellular phone or internet access.…”

Section: Graphic Representations Of Side Effects Over Time Are Represmentioning

confidence: 99%

Prophylactic pregabalin to decrease pain during medical abortion: a randomized controlled trial

Friedlander

Soon²,

Salcedo³

et al. 2017

Contraception

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OBJECTIVE: To evaluate whether prophylactic pregabalin reduces the level of maximum pain experienced with mifepristone-misoprostol medical abortion. METHODS: We conducted a randomized, double-blind, placebo-controlled clinical trial of women initiating a medical abortion up to 70 days of gestation. After taking mifepristone, participants were randomized to a capsule of pregabalin 300 mg or a matched placebo to be taken at the time of buccal misoprostol. All participants were dispensed ibuprofen and oxycodone with acetaminophen as additional analgesia to be taken as needed. Electronic surveys were sent via text message link at six time points over 72 hours to assess the primary outcome of maximum pain, as well as secondary outcomes such as analgesic use and adverse effects. RESULTS: From June 2015 to October 2016, 110 women were randomized to receive 300 mg of pregabalin or a matched placebo. Demographic characteristics were similar between groups. The primary outcome of maximum pain score in the pregabalin group was 5.0 versus 5.5 in the placebo group (standard deviations 2.6 and 2.2, respectively; p=0.32). More participants in the pregabalin group did not need additional analgesia. No ibuprofen was taken by 27% of the pregabalin group versus 12% placebo (p=0.04). No oxycodone with acetaminophen was taken by 69% of the pregabalin group versus 50% placebo (p=0.04). Satisfaction scores for the abortion process were highest in the pregabalin group (very satisfied: 41% versus 22%; p=0.03), as were satisfaction scores for the analgesic regimen (very satisfied: 47% versus 22%; p=0.006). CONCLUSION: Maximum pain scores were not significantly different between the pregabalin and placebo groups, though women who received pregabalin were less likely to require any iv ibuprofen or oxycodone with acetaminophen, and were more likely to report higher satisfaction scores.

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Short message service text messaging was feasible as a tool for data collection in a trial of treatment for irritable bowel syndrome

Cited by 18 publications

References 27 publications

Comparison of text-messaging to voice telephone interviews for active surveillance of adverse events following immunisation

Comparison of text-messaging to voice telephone interviews for active surveillance of adverse events following immunisation

Best practices for collecting repeated measures data using text messages

Prophylactic pregabalin to decrease pain during medical abortion: a randomized controlled trial

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