CAPriCORN: Chicago Area Patient-Centered Outcomes Research Network

Abstract

The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) represents an unprecedented collaboration across diverse healthcare institutions including private, county, and state hospitals and health systems, a consortium of Federally Qualified Health Centers, and two Department of Veterans Affairs hospitals. CAPriCORN builds on the strengths of our institutions to develop a cross-cutting infrastructure for sustainable and patient-centered comparative effectiveness research in Chicago. Unique aspects include collaboration with the University HealthSystem Consortium to aggregate data across sites, a centralized communication center to integrate patient recruitment with the data infrastructure, and a centralized institutional review board to ensure a strong and efficient human subject protection program. With coordination by the Chicago Community Trust and the Illinois Medical District Commission, CAPriCORN will model how healthcare institutions can overcome barriers of data integration, marketplace competition, and care fragmentation to develop, test, and implement strategies to improve care for diverse populations and reduce health disparities.

Impact of Practice Facilitation in Primary Care on Chronic Disease Care Processes and Outcomes: a Systematic Review

“…[69][70][71] Future studies examining the effects of practice facilitation may be enhanced by patient-specific outcomes, and electronic health records integrated across care sites, to better portray a complete understanding of patient health outcomes. 72,73 This review has several limitations by including studies with potential biases: interventional self-awareness (practice facilitation in the practice), variability in the quality and methodology of the studies, other internal or external factors influencing process and outcome measures, and reporting of studies with disease-specific quantitative process and outcome measures. The inclusion of studies from the USA and Canada prevents generalizability beyond North America.…”

Orchestrating differential data access for translational research: a pilot implementation

“…Permission and access management is an issue wider than technology, which encompasses IT solutions, policies like access audits and new personnel checking and regulatory compliance [16, 90] The access control used in REMS can be seen as a variant of a lists-based access control approach (ACL [91]). Compared to similar products [92–94], REMS is focused on granting resource access based on the commitment to a data access agreement, and the final approval from personnel with the data access control role. Moreover, REMS allows for the definition of workflows to obtain and finalise the access approval procedures, and it logs the actions during the execution of these workflows.…”

Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN CDRN

“…Initially coordinated by the Chicago Community Trust (and now by Northwestern University), CAPriCORN began as a collaboration among 11 diverse public/private healthcare institutions in the Chicago area, including a county health system, five academic medical centers, a consortium of Federally Qualified Health Centers, and two Veterans' Affairs hospitals. CAPriCORN institutions provide healthcare to over one million patients mirroring the socioeconomic and racial diversity of the region …”

“…CAPriCORN institutions provide healthcare to over one million patients mirroring the socioeconomic and racial diversity of the region. 27 The central governance body for CAPriCORN is a steering committee consisting of representatives from each of the partnering institutions along with one patient and one clinician representative.…”