Costs of illness and quality of life in patients with systemic lupus erythematosus in South Korea

Cho, Judy H.; Sh, Chang; Nh, Shin; By, Choi; Hj, Oh; Yoon, MJ; Ey, Lee; Lee, EB; Lee, Ta‐Jen; Yw, Song

doi:10.1177/0961203314524849

Cited by 26 publications

(22 citation statements)

References 29 publications

(44 reference statements)

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“…These findings were in agreement with a study done by Cho et al 33 and Medeiros et al 34 , they found that there was no significant difference in HRQoL between SLE patients with and without renal involvement.…”

Section: Resultssupporting

confidence: 93%

Quality of Life and It's Relation to Disease Activity in Egyptian Patients with Systemic Lupus Erythematosus

Shahba¹,

Kabbash²

2015

Egypt J of Rheumatol & Clinical Immunol

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Objective: The aim of the present work is to study the effect of Systemic Lupus Erythematosus( SLE) and its activity on the quality of life in SLE patients. Subjects and Methods: In this study, we investigated One Hundred SLE patients as regards disease activity and its impact on the quality of life (QoL). Disease activity was measured by SLE Disease Activity Index (SLEDAI), and quality of life was measured by Short Form-36 health questionnaire (SF-36). Results: Mucocutaneous, hematological and renal manifestations were present in most of the patients and arthritis in 20% . Participants with mild to moderate activity represented 47% of the SLE population in our study and 25% had severe activity. No activity was present in 28%. All domains of SF-36 were found lower in SLE patients with correlation of some domains with disease activity measured by SLEDI. This correlation was found significant with physical functioning component, role limitation due to physical health and role limitation due to emotional problems and pain. Conclusion: Physical and emotional domains of QoL are impaired to a larger extent in active lupus. However, social, environmental QoL don't correlate with the disease activity status in lupus patients. These findings may provide useful information to improve our understanding and provide better support to SLE patients beside rapid meticulous control of disease activity. [Egypt J Rheumatology & Clinical Immunology, 2015; 3(2): 95-103]

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Section: Resultssupporting

confidence: 93%

Quality of Life and It's Relation to Disease Activity in Egyptian Patients with Systemic Lupus Erythematosus

Shahba¹,

Kabbash²

2015

Egypt J of Rheumatol & Clinical Immunol

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“…SLE is a source of disability that can create a burden of poor quality of life 6, 7, 8, 9, 10. The quality of life of SLE patients is always worse than that of healthy people and remains poor even in patients with SLE without complications and organ damage 6, 11.…”

Section: Introductionmentioning

confidence: 99%

Self-care model application to improve self-care agency, self-care activities, and quality of life in patients with systemic lupus erythematosus

Kusnanto

Sari

Harmayetty

et al. 2018

Journal of Taibah University Medical Sciences

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Objectives This study aimed to examine the effect of the application of a self-care model to improve self-care agency (SCA), self-care operation, and quality of life (QoL) in patients with systemic lupus erythematosus (SLE). Methods This study employed a pre-experimental design with one pretest-posttest group. Thirty-six respondents were selected through total sampling. The experimental group was provided self-care management training, followed by four weekly home visits. Self-care agency was measured with the self-care agency scale, the other variables through self-rated abilities on the health practices scale and Lupus quality inventory. Data were analysed using paired t -tests with α < 0.05. Results SLE was common in actively working married women of childbearing age, most of whom had had SLE for 1–2 years (33.3%), with arthritis being the most common symptom (reported by 61.1%). The major flare trigger factor was physical stress (66.7%), resulting in fatigue. On average, the self-care model was able to improve SCA by 19.93%, self-care operation by 17.53%, and QoL by 12.19%. It was significantly effective in enhancing SCA, self-care operation, and QoL in patients with SLE ( p < 0.001). Conclusions The application of Orem's self-care model is effective in improving SCA, self-care, and QoL, and this study provides evidence of the benefits of its use in the nursing care of patients with SLE in a community setting. Health care providers should incorporate Orem's self-care model in nursing care to enhance SCA, self-care, and QoL in patients with SLE.

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“…Tal constatação é preocupante, haja vista o tratamento do LES acarretar para o paciente alto custo financeiro (Cho et al, 2014;Panopalis et al, 2012;Xie et al, 2012).…”

Section: Discussionunclassified

Women With Sle, Depressive Symptoms and Social Support

Santos

Vilar

Maia

2017

Psic., Saúde & Doenças

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RESUMO:O Lúpus Eritematoso Sistêmico (LES) é uma doença autoimune crônica, rara, multissistêmica. Pesquisas apontam que o LES pode acarretar danos importantes no âmbito psicológico. Elas também sugerem que o apoio social desempenha um papel importante no desenvolvimento de estratégias de enfrentamento, na gestão do LES e na depressão. Assim, este estudo tem como objetivo geral verificar a associação entre sintomas depressivos e apoio social percebido em pacientes com LES. Utilizou-se um questionário sociodemográfico, o Inventário de Depressão de Beck e a Escala de Apoio Social Percebido. Participaram 79 mulheres, com média de idade de 35,7 anos. Destas, 55,7% eram casadas. Apenas 7,59% haviam terminado o ensino superior 40,51% ainda não finalizaram o ensino médio. 89,87% tinha renda abaixo de três salários mínimos e 89,87% praticavam alguma religião. 53,17% apresentaram níveis de sintomas depressivos de leve a grave. Quando se verificou a percepção de apoio social, os resultados mostraram níveis altos pelas participantes do estudo. Encontrouse também moderada correlação entre sintomas depressivos e apoio social (r=-0,45, p>0,001) de modo que quanto maior a frequência de apoio menor os escores de depressão. Esses achados são relevantes porque sintomas depressivos nos pacientes com LES têm um caráter multicausal e multifatorial e podem permanecer despercebidos, pois muitos deles se confundem com as manifestações da doença. Eles também corroboram com outros estudos, os quais não apenas confirmam o papel preditivo do apoio social nos aspectos físicos, mas também psicológicos. Palavras-chave: Lúpus; Mulheres, Depressão, Psicologia da Saúde ___________________________________________________________________________ WOMEN WITH SLE, DEPRESSIVE SYMPTOMS AND SOCIAL SUPPORTABSTRACT: Systemic Lupus Erythematosus (SLE) is a chronic, rare, multisystem autoimmune disease. Researches indicates that SLE can cause significant damage to the psychological realm (Carr et al., 2011;Kulczycka et al., 2009). They also suggest that social support plays an important role in the development of coping strategies, in SLE management and depression. This study has as main objective verify the association between depressive symptoms and perceived social support in patients with SLE. We used a sociodemographic questionnaire, the Beck Depression Scale, and the Perceived Social Support Scale. Campus Universitário -Lagoa Nova Natal/

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Costs of illness and quality of life in patients with systemic lupus erythematosus in South Korea

Cited by 26 publications

References 29 publications

Quality of Life and It's Relation to Disease Activity in Egyptian Patients with Systemic Lupus Erythematosus

Quality of Life and It's Relation to Disease Activity in Egyptian Patients with Systemic Lupus Erythematosus

Self-care model application to improve self-care agency, self-care activities, and quality of life in patients with systemic lupus erythematosus

Women With Sle, Depressive Symptoms and Social Support

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