Psychotropic medication use in adolescents with intellectual disability living in the community

Doan, Tan; Ware, Robert S.; McPherson, Lyn; Dooren, Kate van; Bain, Christopher; Carrington, Suzanne; Einfeld, Stewart; Tonge, Bruce John; Lennox, Nicholas

doi:10.1002/pds.3484

Cited by 27 publications

(15 citation statements)

References 56 publications

(133 reference statements)

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“…The system for coding medication use (WHO ; WHOCC – ATC/DDD ) has been used in other studies of medication use in individuals with ID (Scheifes et al ; Doan et al ). The ATC system groups medications into 14 categories according to the organs or system on which they act or their chemical, pharmacological or therapeutic characteristics (Doan et al ). Medication was independently coded by an Intellectual Disability Nurse, with research experience, who was an independent and supplementary prescriber (v300 Qualification).…”

Section: Methodsmentioning

confidence: 99%

“…The system for coding medication use (WHO 2014; WHOCC -ATC/DDD 2014) has been used in other studies of medication use in individuals with ID (Scheifes et al 2013;Doan et al 2014).…”

Section: Medication Datamentioning

confidence: 99%

“…Socio‐demographic factors associated with higher prevalence rates of psychotropic medication are male gender (McGillivray and McCabe ; Delafon et al ; Doan et al ) and older age (Holden and Gitlesen ; Singh and Matson ; Deb et al ; Sheehan et al ). Kiernan et al () found different prevalence rates in different districts of the UK and hypothesised that this may be due to different organisation in psychiatric services for people with ID.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Prevalence of psychotropic medication use and association with challenging behaviour in adults with an intellectual disability. A total population study

Bowring

Totsika

Hastings

et al. 2017

J intellect Disabil Res

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Section: Methodsmentioning

confidence: 99%

“…The system for coding medication use (WHO 2014; WHOCC -ATC/DDD 2014) has been used in other studies of medication use in individuals with ID (Scheifes et al 2013;Doan et al 2014).…”

Section: Medication Datamentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Prevalence of psychotropic medication use and association with challenging behaviour in adults with an intellectual disability. A total population study

Bowring

Totsika

Hastings

et al. 2017

J intellect Disabil Res

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show abstract

“…These diagnoses and their subsequent coding were checked by a general practitioner with extensive experience in intellectual disability medicine. 17 Symptoms and conditions were coded according to the International Statistical Classification of Disease and Related Health Conditions (ICD-10) 14 and are reported by chapter.…”

Section: Discussionmentioning

confidence: 99%

A health advocacy intervention for adolescents with intellectual disability: a cluster randomized controlled trial

Lennox

McPherson

Bain

et al. 2016

Develop Med Child Neuro

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“…As a result of a high burden of diseases [7][8][9], polypharmacy, whose definition may vary across studies but most frequently denotes the use of 5 or more medications [10], is frequent among this population [11][12][13][14] and nonadherence can be an issue [15]. A study in primary care in the Netherlands revealed that 75% of people with DDs received medication compared with 59% individuals in the matched control group [16].…”

Section: Introduction Backgroundmentioning

confidence: 99%

Identifying Medication Management Smartphone App Features Suitable for Young Adults With Developmental Disabilities: Delphi Consensus Study (Preprint)

Salgado¹,

Fedrigon²,

Omichinski³

et al. 2017

Preprint

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BACKGROUND Smartphone apps can be a tool to facilitate independent medication management among persons with developmental disabilities. At present, multiple medication management apps exist in the market, but only 1 has been specifically designed for persons with developmental disabilities. Before initiating further app development targeting this population, input from stakeholders including persons with developmental disabilities, caregivers, and professionals regarding the most preferred features should be obtained. OBJECTIVE The aim of this study was to identify medication management app features that are suitable to promote independence in the medication management process by young adults with developmental disabilities using a Delphi consensus method. METHODS A compilation of medication management app features was performed by searching the iTunes App Store, United States, in February 2016, using the following terms: adherence, medication, medication management, medication list, and medication reminder. After identifying features within the retrieved apps, a final list of 42 features grouped into 4 modules (medication list, medication reminder, medication administration record, and additional features) was included in a questionnaire for expert consensus rating. A total of 52 experts in developmental disabilities, including persons with developmental disabilities, caregivers, and professionals, were invited to participate in a 3-round Delphi technique. The purpose was to obtain consensus on features that are preferred and suitable to promote independence in the medication management process among persons with developmental disabilities. Consensus for the first, second, and third rounds was defined as ≥90%, ≥80%, and ≥75% agreement, respectively. RESULTS A total of 75 responses were received over the 3 Delphi rounds—30 in the first round, 24 in the second round, and 21 in the third round. At the end of the third round, cumulative consensus was achieved for 60% (12/20) items in the medication list module, 100% (3/3) in the medication reminder module, 67% (2/3) in the medication administration record module, and 63% (10/16) in the additional features module. In addition to the medication list, medication reminder, and medication administration record features, experts selected the following top 3 most important additional features: automatic refills through pharmacies; ability to share medication information from the app with providers; and ability to share medication information from the app with family, friends, and caregivers. The top 3 least important features included a link to an official drug information source, privacy settings and password protection, and prescription refill reminders. CONCLUSIONS Although several mobile apps for medication management exist, few are specifically designed to support persons with developmental disabilities in the complex medication management process. Of the 42 different features assessed, 64% (27/42) achieved consensus for inclusion in a future medication management app. This study provides information on the features of a medication management app that are most important to persons with developmental disabilities, caregivers, and professionals.

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Psychotropic medication use in adolescents with intellectual disability living in the community

Abstract: Adolescents with intellectual disability use a wide range of psychotropic medications. Being male and having major behaviour problems are associated with the use of psychotropic medications. Research examining the rationale for psychotropic prescribing in this population is needed.

Cited by 27 publications

References 56 publications

Prevalence of psychotropic medication use and association with challenging behaviour in adults with an intellectual disability. A total population study

Prevalence of psychotropic medication use and association with challenging behaviour in adults with an intellectual disability. A total population study

A health advocacy intervention for adolescents with intellectual disability: a cluster randomized controlled trial

Identifying Medication Management Smartphone App Features Suitable for Young Adults With Developmental Disabilities: Delphi Consensus Study (Preprint)

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