Women’s perceptions of their involvement in treatment decision making for early stage breast cancer

O’Brien, Mary Ann; Charles, Cathy; Whelan, Timothy J.; Ellis, Peter; Gafni, Amiram; Lovrics, Peter

doi:10.1007/s00520-013-1718-6

Cited by 14 publications

(13 citation statements)

References 38 publications

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“…Indeed, ideas of patients' family members about treatment options may influence patients . Furthermore, cancer patients are known to search for information beyond consultations, eg, on the internet, in books, through other media, or by consulting others with experience with cancer . Our and others' findings highlight the importance of including a so‐called time out in cancer treatment decision making, with at least two consultations, to make important decisions.…”

Section: Discussionmentioning

confidence: 83%

“…The interview guide (Box S1) was informed by a systematic literature search conducted in October 2014 on what SDM in oncology constitutes according to cancer patients and oncologists …”

Section: Methodsmentioning

confidence: 99%

“…We kept focus on whether aspects were or were not SDM specific, but we did not explicitly ask whether aspects were required for SDM or not. Third, to encourage further elaboration, we presented the participants with 19 paper‐based cards, each describing one SDM element, collected from qualitative studies about SDM in oncology and from often‐cited SDM models (Box S1). Finally, we asked patients about their disease characteristics.…”

Section: Methodsmentioning

confidence: 99%

“…6 Also, qualitative studies in oncology indicate that both patients and oncologists consider patient behaviours as part of SDM. [16][17][18][19][20] Therefore, the aim of the present study was to construct a model of SDM about cancer treatment by conducting an extensive consultation of stakeholders, informed by the literature.…”

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confidence: 99%

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Shared decision making in oncology: A model based on patients', health care professionals', and researchers' views

et al. 2018

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Objective To construct a model of shared decision making (SDM) about cancer treatment by conducting an extensive consultation of stakeholders, informed by the literature. Methods We interviewed 76 stakeholders: cancer patients, potential future patients, oncologists, nurses, and SDM‐researchers. We asked, “If I say ‘Doctors and patients making decisions together about cancer treatment,’ what does this make you think about?” Ideas were further solicited by presenting 19 cards each describing a possible SDM element. Interviews were inductively coded and analysed, and the emerging themes were integrated into a model. Results The model that was based on participants' views assigns specific roles in SDM to both oncologists and patients. Oncologists determine possible treatments, emphasise the importance of patients' opinion, explain treatment options, get to know patients, guide patients, and provide treatment recommendations. Patients ask questions, express thoughts and feelings, consider options, offer opinions, and decide or delegate decisions to oncologists. Outside consultations, patients search for information, prepare questions, and consider options. Conclusions Next to oncologists' role, cancer patients also have a clear role in SDM about cancer treatment, during and outside consultations. Patients should receive the support they need to fulfil this requirement.

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Section: Discussionmentioning

confidence: 83%

“…The interview guide (Box S1) was informed by a systematic literature search conducted in October 2014 on what SDM in oncology constitutes according to cancer patients and oncologists …”

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

mentioning

confidence: 99%

See 2 more Smart Citations

Shared decision making in oncology: A model based on patients', health care professionals', and researchers' views

et al. 2018

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“…Previous qualitative research on breast cancer has been useful to explore factors that affect the utilization of health services, including those investigating the women's perceptions about their role in deciding the appropriate treatment 13 , and their concerns and needs after receiving an abnormal mammogram 14 . Qualitative researchers have also looked at reasons for the rejection of conventional medical treatment and the adoption of alternative medicine 15 , and others have studied experiences regarding discrimination in the provision of medical care 16 .…”

Section: Introductionmentioning

confidence: 99%

Medical therapeutic itineraries of women with breast cancer diagnosis affiliated to the People's Health Insurance in San Luis Potosí, central Mexico

2015

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This study aims to describe the medical itineraries followed by breast cancer women affiliated to the People's Health Insurance in San Luis Potosí, central Mexico. We used an ethnographic approach based on oral histories of 12 women diagnosed with breast cancer in the year prior to the first meeting. Two face-to-face sessions per participant lasting 60 minutes each were conducted followed by a telephone interview. Content and diachronic analyses were used. Three main itineraries were identified: (1) diagnostic process, (2) final diagnosis to treatment, and (3) cancer control and relapse. Findings suggested that infrastructure and human resources to adequately screen and timely diagnose breast cancer were scant and insufficiently trained, respectively. Deferral of medical assessment was related with lack of information about breast cancer consequences, with women being afraid of a positive result, and with economic constraints. The current screening program needs to be redesigned to prevent diagnostic delays, as these seem to explain the high frequency of advanced stages reported at the time of diagnosis.

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Empowering patients in decision‐making in radiation oncology – can we do better?

et al. 2020

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The decision as to whether or not a patient should receive radiation therapy as part of their cancer treatment is based on evidence-based practice and on recommended international consensus treatment guidelines. However, the merit of involving the patients' individual preferences and values in the treatment decision is frequently overlooked. Here, we review the current literature pertaining to shared decision-making (SDM) in the field of radiation oncology, including discussion of the patient's perception of radiation therapy as a treatment option and patient involvement in clinical trials. The merit of decision aids during the SDM process in radiation oncology is considered, as are patient preferences for active or passive involvement in decisions about their treatment. Clarity of terminology, a better understanding of effective strategies and increased resources will be needed to ensure SDM in radiation oncology becomes a reality.

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Women’s perceptions of their involvement in treatment decision making for early stage breast cancer

Cited by 14 publications

References 38 publications

Shared decision making in oncology: A model based on patients', health care professionals', and researchers' views

Shared decision making in oncology: A model based on patients', health care professionals', and researchers' views

Medical therapeutic itineraries of women with breast cancer diagnosis affiliated to the People's Health Insurance in San Luis Potosí, central Mexico

Empowering patients in decision‐making in radiation oncology – can we do better?

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