What parents say about disclosing the end of their pregnancy due to fetal abnormality

Hunt, Kate; Ziébland, Sue; Wyke, Sally

doi:10.1016/j.midw.2011.10.006

Cited by 20 publications

(22 citation statements)

References 16 publications

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“…Attempts to regain control over the situation include controlling their social environment by limiting contact with others 27,40 and self-disclosure. 27,28,30,37 These strategies are both for self-protection and attempts at controlling emotions. Others reclaim control through their decisions post-termination, e.g.…”

Section: Resultsmentioning

confidence: 99%

“…28 The role of health professionals Information as empowerment Women value timely, clear and unbiased information that they can understand about the abnormality, the termination procedure and what to expect post-termination. 31,35,36 Advice on how to disclose the end of the pregnancy to others, 37 including their own children, and information about what to expect emotionally long-term are also important but these are seldom provided by health professionals. Some women report having to source information themselves, 38,39 which some resent, 39 while others consider it an integral part of their coping process.…”

Section: Resultsmentioning

confidence: 99%

“…34 This leads women to censor themselves, 27,28,30,38 only sharing part of their story, 34,37,39 labelling their experience a miscarriage or only disclosing the full story to a selected few. 37 Partial disclosure can be a double-edged sword, protecting women from potentially hurtful reactions, while hindering healing through the inability to access support. 37 By only sharing part of their story, women may be unable to fully process their loss, undermining their identity as a bereaved mother.…”

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

“…37 Partial disclosure can be a double-edged sword, protecting women from potentially hurtful reactions, while hindering healing through the inability to access support. 37 By only sharing part of their story, women may be unable to fully process their loss, undermining their identity as a bereaved mother. Hence, some women choose full disclosure − they want people to know.…”

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

“…Hence, some women choose full disclosure − they want people to know. 37 Generally women who have chosen full disclosure report positive experiences. 30,37 Disenfranchised grief Whether women disclose their full story or not, women's grief is disenfranchised as their loss is generally not sanctioned by society.…”

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

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Termination of pregnancy for fetal abnormality: a meta-ethnography of women’s experiences

Lafarge¹,

Mitchell

Fox

2014

Reproductive Health Matters

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Due to technological advances in antenatal diagnosis of fetal abnormalities, more women face the prospect of terminating pregnancies on these grounds. Much existing research focuses on women's psychological adaptation to this event. However, there is a lack of holistic understanding of women's experiences. This article reports a systematic review of qualitative studies into women's experiences of pregnancy termination for fetal abnormality. Eight databases were searched up to April 2014 for peer-reviewed studies, written in English, that reported primary or secondary data, used identifiable and interpretative qualitative methods, and offered a valuable contribution to the synthesis. Altogether, 4,281 records were screened; 14 met the inclusion criteria. The data were synthesised using meta-ethnography. Four themes were identified: a shattered world, losing and regaining control, the role of health professionals and the power of cultures. Pregnancy termination for fetal abnormality can be considered as a traumatic event that women experience as individuals, in their contact with the health professional community, and in the context of their politico-socio-legal environment. The range of emotions and experiences that pregnancy termination for fetal abnormality generates goes beyond the abortion paradigm and encompasses a bereavement model. Coordinated care pathways are needed that enable women to make their own decisions and receive supportive care.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

Section: The Power Of Cultures Stigma and Secrecymentioning

confidence: 99%

See 3 more Smart Citations

Termination of pregnancy for fetal abnormality: a meta-ethnography of women’s experiences

Lafarge¹,

Mitchell

Fox

2014

Reproductive Health Matters

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Parental response to severe or lethal prenatal diagnosis: a systematic review of qualitative studies

et al. 2017

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Termination of pregnancy for fetal anomalies: Parents' preferences for psychosocial care

Dekkers

Stapersma

et al. 2019

Prenatal Diagnosis

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Objective To investigate, from the perspective of women and partners, at what stage of a termination of pregnancy (TOP) for fetal anomalies psychosocial care (PSC) is most meaningful, what topics should be discussed, and who should provide PSC. Method A cross‐sectional retrospective cohort study was conducted with a consecutive series of 76 women and 36 partners, who completed a semi‐structured online questionnaire. Results Overall, women expressed a greater need for PSC than their partners. Parents expressed a preference for receiving support from a maternal‐fetal medicine specialist to help them understand the severity and consequences of the anomalies found and to counsel them in their decision regarding termination. Parents showed a preference for support from mental healthcare providers to help with their emotional responses. Forty‐one percent of the women visited a psychosocial professional outside of the hospital after the TOP, indicating a clear need for a well‐organised aftercare. Conclusion Different disciplines should work together in a complementary way during the diagnosis, decision making, TOP, and aftercare stages. Parents' need for PSC should be discussed at the beginning of the process. During aftercare, attention should be paid to grief counselling, acknowledgement of the lost baby's existence, and possible future pregnancies.

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What parents say about disclosing the end of their pregnancy due to fetal abnormality

Cited by 20 publications

References 16 publications

Termination of pregnancy for fetal abnormality: a meta-ethnography of women’s experiences

Termination of pregnancy for fetal abnormality: a meta-ethnography of women’s experiences

Parental response to severe or lethal prenatal diagnosis: a systematic review of qualitative studies

Termination of pregnancy for fetal anomalies: Parents' preferences for psychosocial care

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