2003-2013 : bilan de dix ans de recherche sur la parentalité lors de la naissance d'un enfant avec une fente oro-faciale

Habersaat, Stéphanie; Bolomey, Luce; Monnier, Maryline; Nessi, Jennifer; Borghini, Ayala; Despars, Josée; Pierrehumbert, Blaise; Ansermet, François; Müller-Nix, Carole; Hohlfeld, Judith

doi:10.3917/dev.134.0245

Cited by 6 publications

(1 citation statement)

References 15 publications

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“…Parents of children with cleft lip with or without palate (CL ± P) go through a personal journey involving at first a potential traumatic shock with guilt and grief, 1 followed by progressive acceptance, 2 built on their own adjustment to the diagnosis and leading to the development of early parental relationships. 3 Recent publications reported a significant level of postpartum depression for French mothers of children with CL ± P, 4 as well as the need for psychological support at the time of diagnosis 5 and during the first year after birth.…”

Section: Introductionmentioning

confidence: 99%

Parental and Child Diagnosis Storytelling and Self-Image in French Children With Cleft lip With or Without Cleft Palate

Gavelle

Dissaux

Dupont

et al. 2022

The Cleft Palate Craniofacial Journal

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Objective Psychosocial adjustment can be challenging for children with cleft lip with or without a cleft palate (CL ± P). Previous studies have linked social integration with self-acceptance and highlighted the impact of the parents’ stress on self-acceptance. Teasing can be linked to children having difficulties explaining their diagnosis to others. This prospective research aimed to gain a better understanding of family communication about cleft, children's oral storytelling about their cleft, and explore their self-image and perceived familial acceptance. Participants Parents and their children with CL ± P ( N = 54; average age: 5.6 years). Design Semistructured interviews with parents and structured interviews with children were conducted regarding their oral storytelling focusing on scars from cleft lip surgery. Children completed a projective test to explore their self-image and perceptions of familial acceptance. Language screening was completed with the French Wechsler Preschool Primary Scale of Intelligence-Fourth Edition. Results Only 30% of children explained their cleft in a way appropriate for peers, including presence at birth, having had surgery, and scar location. Children's ability to explain their cleft was not related to language performance, which was in the average range of 84%. Children's cleft explanations were dependent on parents’ narratives and education methods, including the use of verbal explanations and preoperative photographs. Children's storytelling was related to their self-image and perceived parental acceptance. Conclusion Cleft teams should assist families in building their cleft story based on a complete explanation with photographs and a positive and accepting approach.

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