180 NeuroHealth designing a well-being app for people with neuroscience conditions using co-production principles

Abstract

IntroductionThe Neurological Alliance Patient Experience Survey 2019/2020 has highlighted the delay to access of neurological care, infrequent monitoring by specialists and a wide regional variation in referral to support services for chronic disease management in patients with neurological diagnosis.AimTo design a patient-held wellbeing app to support longitudinal symptom monitoring and provide signposting of support services for patients.MethodsThe project is led by the South London Neurosciences network, co-designed with its patient advisory group, King’s Health Partners and a medical technology firm (BMI Inc). Together, we identified key attributes which were beneficial to symptom monitoring. The app went through four cycles of devel- opment, and has been launched for public use.ResultsThe NeuroHealth app consists of 4 key sections: mood, sleep, diet and exercise, identified by the patient group as beneficial for daily symptom monitoring. Each section uses illustrations and can be customised to individual needs. Such longitudinal recordings can be shared with health professionals and may help improve joint decision-making.SummaryNeuroHealth app is a co-designed and freely available digital resource which can benefit chronic condition monitoring and self-management.