Factors associated with vision-related quality of life in Brazilian patients with
            glaucoma

Machado, Lílian; Kawamuro, Mariana; Portela, Renata; Fares, Nikoly T.; Bergamo, Vinicius Campos; Souza, Leonardo Moraes de; Paranhos, Augusto; Prata, Tiago S.; Gracitelli, Carolina P. B.

doi:10.5935/0004-2749.20190089

Cited by 9 publications

(13 citation statements)

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“…2017; Machado et al. 2019). Furthermore, studies that have utilized more generic health‐related quality of life (HRQoL) instruments that evaluate physical, psychological and functional well‐being, lack longitudinal setting or have a small study population (Wolfram et al.…”

Section: Introductionmentioning

confidence: 99%

“…The impact of glaucoma on the quality of life (QoL), mental health and visual acuity (VA) has been previously assessed in many countries through cross-sectional studies. However, most of these studies have utilized vision-related QoL instruments, and therefore, the results may not be generalizable (Freeman et al 2008;Medeiros et al 2015;Jones et al 2017;Machado et al 2019). Furthermore, studies that have utilized more generic health-related quality of life (HRQoL) instruments that evaluate physical, psychological and functional well-being, lack longitudinal setting or have a small study population (Wolfram et al 2013;Jung & Park 2016).…”

Section: Introductionmentioning

confidence: 99%

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Improving health‐related quality of life in glaucoma during 11 years and its association with vision loss and treatment of the disease

Purola

Nättinen

Parkkari

et al. 2021

Acta Ophthalmologica

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Purpose: To evaluate the impact of glaucoma on health-related quality of life (HRQoL) and mental health in the ageing population of Finland. Methods: Altogether 7380 and 5774 Finnish individuals aged 30 years and older with known eye disease status were studied in 2000 and 2011, respectively, in two population-based surveys, including an 11-year follow-up of 4683 participants. Data on HRQoL (EQ-5D-3L, 15D), depression (BDI), psychological distress (GHQ-12) and eye disease diagnoses were obtained from self-reported assessments. Information on glaucoma was complemented with the medication, diagnosis and eye surgery data obtained from the Finnish Health Registries. Distance visual acuity was assessed using the Snellen eye chart test. In logistic regression analyses, data were corrected for age, gender and the most common comorbidities. Results: Glaucoma patients with verified diagnosis (n = 192 in 2000, n = 202 in 2011) and individuals with self-suspected glaucoma (n = 100 in 2000, n = 41 in 2011) showed a significant decrease in their HRQoL. Glaucoma was also associated with worsened overall mental health based on BDI and GHQ-12 results. Visual impairment associated with glaucoma is the major determinant of the reduced HRQoL and mental health. Neither glaucoma medication nor glaucoma surgery affected these parameters. The impact of glaucoma on HRQoL and mental health diminished between 2000 and 2011 in a crosssectional setting. The newly diagnosed glaucoma during the 11-year follow-up had a minimal effect on them. Conclusion: Glaucoma patients show reduced HRQoL and mental health, which is associated with vision loss regardless of the awareness or treatment of the disease. However, this effect seems to be diminishing over time, and the newly diagnosed glaucoma did not show a significant effect on either HRQoL or mental health.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Improving health‐related quality of life in glaucoma during 11 years and its association with vision loss and treatment of the disease

Purola

Nättinen

Parkkari

et al. 2021

Acta Ophthalmologica

View full text Add to dashboard Cite

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“…A necessidade de apoio da família e de cuidadores para a realização de atividades de vida diárias (AVDs) é notória 2 . O glaucoma vai progressivamente reduzindo o campo visual o que acarreta mais dificuldade para enxergar os objetos com clareza, limitando a realização das AVDs, como se alimentar, se vestir, ler, escrever e até tomar banho 5,7,11,19,23 . A falta de autonomia aumenta com o avanço da severidade da doença, de modo que quanto maior deficiência visual, mais dependência de outras pessoas, afetando as relações sociais de pacientes glaucomatosos 24,25 .…”

Section: Discussionunclassified

“…O glaucoma é uma neuropatia óptica crônica assimétrica, que ocasionaa degeneração das células ganglionares da retina,cujos axônios formam o nervo óptico e conduzem informações para o córtex visual primário 1,2 . A perda de axônios gera declínio da acuidade visual e perda de campo visual correspondente [3][4][5][6][7] . Na atualidade, é a principal causa de perda de visão no mundo, sendo um grande problema de saúde pública 5,[8][9][10][11] .…”

Section: Introductionunclassified

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O impacto do glaucoma na qualidade de vida: uma revisão sistemática

Queiroz

Mota

2021

R. Saúde

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O glaucoma é uma neuropatia óptica crônica assimétrica, que ocasiona a degeneração lenta e progressiva das células ganglionares da retina, cujos axônios formam o nervo óptico e conduzem informações para o córtex visual primário. O objetivo do presente estudo é avaliar o impacto do glaucoma na qualidade de vida do indivíduo. Foi realizada uma revisão sistemática de literatura, retrospectiva, transversal, qualitativa, com as bases SciELO, LILACS e a National Library of Medicine do PubMed, com artigos em inglês ou português, publicados entre 2015 e 2020, disponíveis por completo em meio eletrônico e estudos do tipo relato de caso, ensaio clínico, ensaio clínico controlado randomizado ou artigo original. Aqueles artigos que não se adequaram ao tema ou duplicados foram excluídos. Em 21 artigos (33%) foram observados que o glaucoma exerce uma grande influência no domínio físico, 20 (31%) abordaram a relevância do ambiente no manejo da doença, 15 (23%) descrevem a relação com problemas psicológicos, enquanto que 8 (13%) relatam a influência do glaucoma nas relações sociais. Os indivíduos precisam lidar com limitações psicológicas, ambientais e sociais desde o momento do diagnóstico. Reduzir a taxa de deterioração do campo visual possui efeito significativo na QV, sendo o diagnóstico tardio o fator de risco mais importante para deficiência visual e cegueira. O estudo evidenciou os efeitos deletérios do glaucoma na QV, ressaltando a necessidade de abordar holisticamente os pacientes glaucomatosos a fim de amenizar o impacto da doença que, além de elevada prevalência, causa cegueira irreversível e afeta diferentes domínios da QV.

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Impact of vision on generic health‐related quality of life – A systematic review

Purola

Koskinen

Uusitalo

2023

Acta Ophthalmologica

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The aim of the study was to provide an overview on the relation between vision and generic health‐related quality of life (HRQoL) in general populations worldwide. We conducted a systematic review to identify articles that have evaluated the relation of binocularly measured distance visual acuity (VA) and HRQoL in adults at population level around the world. Used search terms were related to visual acuity, vision loss, visual impairment and HRQoL. We identified 780 articles, of which 12 satisfied the eligibility criteria. The studies were conducted in the USA, Europe, Asia and Australia. Generic HRQoL was measured using EQ‐5D, 15D, SF‐36, SF‐12 and/or WHOQoL. Nine studies reported a trend between decreasing VA and deteriorating HRQoL of at least some degree. Vision loss was mostly associated with dimensions related to physical health and capability, including self‐care, mobility and usual activities. Mental dimensions – vitality and social functioning in particular – were also affected, although the results were inconsistent. Six studies compared the impact of different medical conditions on HRQoL, all of which reported that the impact of visual impairment was equal or stronger compared with other major medical conditions. In conclusion, generic HRQoL instruments are sensitive to detect the relation between vision and HRQoL, as they cover dimensions influenced by vision. Declining vision is associated with reduced functioning, which leads to dependence and isolation – both major factors in an individual's well‐being. This phenomenon showed surprising similarity around the world and therefore emphasises the global burden of vision loss at both individual and societal level and encourages its prevention and treatment.

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Factors associated with vision-related quality of life in Brazilian patients with glaucoma

Cited by 9 publications

References 0 publications

Improving health‐related quality of life in glaucoma during 11 years and its association with vision loss and treatment of the disease

Improving health‐related quality of life in glaucoma during 11 years and its association with vision loss and treatment of the disease

O impacto do glaucoma na qualidade de vida: uma revisão sistemática

Impact of vision on generic health‐related quality of life – A systematic review

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