Translation, cross-cultural adaptation and validation of the vitiligo-specifi c health-related quality of life instrument (VitiQoL) into Brazilian Portuguese

Boza, Juliana Catucci; Kundu, Roopal V.; Fabbrin, Amanda Rodrigues; Horn, Roberta de Freitas; Giongo, Natalia Piccinini; Cestari, Tânia Ferreira

doi:10.1590/abd1806-4841.20153684

Cited by 21 publications

(23 citation statements)

References 31 publications

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“…As in previous studies with VitiQoL, there was a correlation between the VitiQoL and the DLQI and the individual patient's assessment of the severity of the disease [4,8] . Similarly, other specific questionnaires for vitiligo had shown a correlation with the DLQI [25,27,28] .…”

Section: Discussionsupporting

confidence: 72%

“…We had already found a similar result when we validated the VitiQoL to Brazilian Portuguese [8] , because, in both studies, as well as in the original VitiQoL study [4] , the single item that most contributed to the total score was related to the frustration about the skin condition (question 2). This aspect is quite important, since it has already been observed that selfesteem of patients is greatly affected and that stigmatization is very present in the disease, as already assessed in previous studies [20,21] .…”

Section: Discussionsupporting

confidence: 58%

“…An exploratory factor analysis with oblique rotation yielded 3 factors: participation limitation, stigma, and behavior. The instrument was translated, culturally adapted and validated into Brazilian Portuguese (VitiQoL-PB) [8] .…”

mentioning

confidence: 99%

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Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

et al. 2016

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Background: Vitiligo can negatively affect a patient's quality of life (QoL). A specific questionnaire has been developed and validated in the English language: the vitiligo-specific quality-of-life instrument (VitiQoL). The instrument was translated, culturally adapted and validated into Brazilian Portuguese (VitiQoL-PB). Objective: The aim of this study was to assess the QoL in adult patients through the VitiQoL and Dermatology Life Quality Index (DLQI) and in pediatric patients through the Children's Dermatology Life Quality Index (CDLQI) in a sample of patients with vitiligo. Methods: Subjects were selected from a dermatological outpatient clinic and from a private practice in Porto Alegre. The QoL of pediatric patients was evaluated using the CDLQI questionnaire. In adult patients we used the VitiQoL-PB and the DLQI. Results: A strong correlation between the scores of the total VitiQoL and DLQI was observed (r = 0.81; p < 0.001). The factor that most contributed to the final score of VitiQoL was stigma. In our sample, women had higher scores than men (p < 0.05). Psychiatric problems were associated with lower QoL. In the pediatric population, the median score of the CDLQI was 3 (interquartile range 1.3-7.3). There was a statistically significant correlation between the child's age and the CDLQI score (r_s = 0.41, p = 0.044). Conclusion: This study confirms that the VitiQoL is easy to administer and adds important information about the impact of vitiligo on a South American population. Stigmatization is very present in the disease. There are groups of patients that are more vulnerable, like women, patients with psychiatric diseases and adolescents.

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Section: Discussionsupporting

confidence: 72%

Section: Discussionsupporting

confidence: 58%

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Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

et al. 2016

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“…1 This instrument has only been published in English, and we have been contacted by other health professionals to provide a validated version in Portuguese.…”

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confidence: 99%

“…After the English version publication of the vitiligo questionnaire, and once the Brazilian Portuguese version is published, the impact of vitiligo on the quality of life might be assessed by a specific instrument in Brazil. 1,2 Therefore, it will yield a more complete and reliable evaluation of patients both in medical offices and in new clinical trials.…”

mentioning

confidence: 99%

Vitiligo-specific instrument on quality of life - Brazilian Portuguese version

Boza

Giongo

Cestari

2016

An. Bras. Dermatol.

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Prevalence and burden of vitiligo in Africa, the Middle East and Latin America

Al Hammadi,

Silva de Castro,

Parmar

et al. 2023

Skin Health and Disease

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Vitiligo is a common chronic autoimmune disorder characterized by skin and hair depigmentation that affects 0.5%–2.0% of the global population. Vitiligo is associated with diminished quality of life (QoL) and psychosocial burden. The burden of vitiligo may vary based on skin tone and cultural differences as well as geographical variations in disease awareness, societal stigma, healthcare systems and treatment options. Data on the burden and management of vitiligo in Africa, the Middle East and Latin America are scarce. Literature searches using terms covering vitiligo in Africa, the Middle East and Latin America were conducted using PubMed to identify relevant publications that focused on disease prevalence and burden, QoL and psychosocial impact and disease management between 2011 and 2021. Most of the reviewed studies were conducted in the Middle East, and most Latin American studies were from Brazil. Most studies involved small patient numbers and may not be generalizable. Reported prevalence of vitiligo ranged from 0.18% to 5.3% in Africa and the Middle East, and from 0.04% to 0.57% in Latin America. In several studies, prevalence was higher among female participants. Generally, non‐segmental vitiligo was the dominant clinical variant identified and the age at onset varied widely across studies. Common comorbidities include autoimmune diseases such as Hashimoto's thyroiditis, alopecia areata and diabetes. Few treatment guidelines exist in these regions, with the exceptions of guidelines published by the Brazilian and Argentinian Societies of Dermatology. There is a clear unmet need for large epidemiological studies with uniform methodology to accurately ascertain the true prevalence of vitiligo in Africa, the Middle East and Latin America. Additional data on vitiligo burden and management in Africa and Latin America are also needed, along with local disease management guidelines that consider genetic variation, psychosocial burden and socioeconomic diversity in all 3 regions.

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Translation, cross-cultural adaptation and validation of the vitiligo-specifi c health-related quality of life instrument (VitiQoL) into Brazilian Portuguese

Cited by 21 publications

References 31 publications

Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

Quality of Life Impairment in Children and Adults with Vitiligo: A Cross-Sectional Study Based on Dermatology-Specific and Disease-Specific Quality of Life Instruments

Vitiligo-specific instrument on quality of life - Brazilian Portuguese version

Prevalence and burden of vitiligo in Africa, the Middle East and Latin America

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