Translation and cultural adaptation of the Functional Assessment of Chronic Illness Therapy – Cervical Dysplasia (FACIT-CD) to evaluate quality of life in women with cervical intraepithelial neoplasia

Abstract

Objective To translate and perform the cultural adaptation of the tool Functional Assessment of Chronic Illness Therapy – Cervical Dysplasia (FACIT-CD) to the Portuguese language.Methods A descriptive cross-sectional study, with translation and cultural adaptation of the assessment tool performed according to international guidelines and the Functional Assessment of Chronic Illness Therapy (FACIT) protocol group. It involved eight experts, six from Brazil, one from Portugal and one from the United States. After translation and back-translation of the tool, the semantic analysis process was carried out. We randomly included 20 women aged between 18 and 70 years with altered cervical cytology exam, seen at the Department of Prevention and Gynecologic Oncology - Hospital de Câncer de Barretos.Results The sample consisted of women with low education level. In the first pre-test, ten women participated and half of them considered the questions CD1, CD2 and CD3 as difficult, because they did not understand the meaning of the term “pelvic area”. The question CD5, “I worry about spreading the infection”, was also considered difficult to understand by five women. After the reconsideration of the expert committee and FACIT group, the second pre-test was performed. At this stage, we concluded that the previously raised understanding problems had been solved.Conclusion The translated version of FACIT-CD in universal Portuguese language is equivalent to the original version in English and was easily understood by patients with cervical intraepithelial neoplasia.

Translation and Cultural Adaptation of NIH Toolbox Cognitive Tests into Swahili and Dholuo Languages for Use in Children in Western Kenya

“…Many prior studies have also utilized cognitive interviews to further refine translations (Fregnani et al, 2017;Huang et al, 2012;Marangu et al, 2017;Masquillier, Wouters, Loos, & Nöstlinger, 2012). Within East Africa, cognitive interviews have aided in Swahili translation and interpretation of questions on a tuberculosis-related stigma questionnaire (Marangu et al, 2017) and helped find contextual differences in the Dholuo, Luganda, and Eastern African English translations of a health-related quality of life questionnaire, which necessitated revision (Masquillier et al, 2012).…”

Quality of Life in Amazonian Women during Cervical Cancer Treatment: The Moderating Role of Spirituality

“…Hospital Anxiety and Depression Scale (HADS) [24,25]: This instrument includes 14 items scored from 0 to 3, resulting in a maximum score of 21 for each subscale (anxiety and depression); the higher the score, the greater the number of symptoms of anxiety and depression. A global score indicates psychological morbidity or distress.…”