Perfil dos pacientes acometidos pela hanseníase atendidos no Ambulatório de Dermatologia do Hospital Evangélico de Curitiba

Abstract

BACKGROUND: Leprosy or Hansen's disease is a chronic infectious disease with worldwide distribution. Although it is a curable disease, it remains as a public health problem, with Brazil being the second most endemic country in the world. The skin lesions and neural damage, which lead to physical disabilities, affect the patients' self-esteem, cause a decrease in quality of life and interfere in the patients' lives. OBJECTIVE: Identify the profile of the patients affected by leprosy seen at the Outpatient Clinic of Dermatology of Hospital Evangélico de Curitiba and characterize the levels of quality of life of the sample in the week prior to the survey by means of the Dermatology Life Quality Index questionnaire. METHOD: Application of the Dermatology Life Quality Index to 22 patients diagnosed with leprosy in the period from May to October 2009. RESULTS: Among the 22 patients who participated in the study, 55% were male and 45% were female, with a mean age of 50.2 years. The scores obtained with the Dermatology Life Quality Index ranged from 1 to 25 points, with a mean of 10.23. Most of the patients (50%) had scores in the range severe or very severe; 31.8% of the patients obtained scores in the range mild or moderate, and 18.2% of the patients reported that there was no impairment of their quality of life. CONCLUSION: The profile of the patients affected by leprosy in this study were men, with a mean age of 50 years and presenting the multibacillary form of the disease. The application of the Dermatology Life Quality Index questionnaire allowed us to verify that the score severe or very severe for quality of life was predominant in the sample, with higher impact on women and no significant difference concerning pauci or multibacillary leprosy. Keywords: Dermatology; Indicators of quality of life; Leprosy Resumo: FUNDAMENTOS: A hanseníase é uma enfermidade infecto-contagiosa, com distribuição mundial. Apesar de curável, permanece como um problema de saúde pública, sendo o Brasil o segundo país mais endêmico do mundo. As lesões cutâneas e o acometimento neural, que levam às principais incapacidades físicas, pioram a autoestima dos doentes, levam a uma queda da qualidade de vida e interferem na vida dos mesmos. OBJETIVO: Traçar um perfil dos pacientes acometidos pela hanseníase, atendidos no Ambulatório de Dermatologia do Hospital Evangélico de Curitiba, e caracterizar os níveis de qualidade de vida da amostra na semana prévia à pesquisa, por meio do questionário Dermatology Life Quality Index. MÉTODO: Aplicação do Dermatology Life Quality Index em 22 pacientes diagnosticados com hanseníase no período de maio a outubro de 2009. RESULTADOS: Em meio aos 22 pacientes que participaram do estudo, encontraram-se 55% do sexo masculino e 45% do sexo feminino, com idade média de 50,2 anos. Os escores obtidos na aplicação do Dermatology Life Quality Index variaram de 1 a 25 pontos, sendo a média 10,23. A maioria dos pacientes (50%) apresentou escore na dimensão do grave ou muito grave; 31,8% dos pacientes, do leve...

Quality of life profile and correlated factors in chronic leg ulcer patients in the mid-west of São Paulo State, Brazil

“…However, the absence of validation did not prevent this instrument from being used in similar studies about other skin conditions. 7,10,34-36 …”

Caracterização da qualidade de vida de pessoas com hanseníase em tratamento ambulatorial Characteristics of people of quality of life with leprosy in outpatient treatment

“…However it is important to highlight other studies which suggest that multibacillary patients present a greater impairment of quality of life compared to paucibacillary, once to represent the Group of individuals classified with the most severe clinical forms of the disease, have greater physical, psychological and social commitment. 30,8 Following controversial patterns the results presented, physiopathological gravity of leprosy justifies the presence of cutaneous ulcers resulting from serious physical disabilities compromising, so the functional capacity of individuals sick and consequently your QOL. 7,31 The process of illness associated with chronic diseases encourages the development of motor disabilities, psychological and social, limiting individuals and directly affecting their quality of life.…”

“…7 Skin lesions and neuromotor commitment, leading the main physical disability in leprosy, worsening even more the self-esteem of patients, which leads to a significant drop in the quality of life and interferes directly in the social relations. 8 In view of the current situation of leprosy in Brazil, the various factors that influence negatively on patients' quality of life and the impact that leprosy causes in the lives of individuals with this disease, this study aims to characterize the quality of life of patients with Hansen's disease, in a public hospital complex of reference for pathology located in the city of João Pessoa-PB.…”

Perfil epidemiológico, clínico e qualidade de vida de crianças com hanseníase em um município hiperendêmico

“…Ele é realizado através da poliquimioterapia (PQT) e do acompanhamento do indivíduo durante o tratamento, com o intuito de diagnosticar e tratar as intercorrências que podem surgir durante ou após a PQT. Serve também para prevenir incapacidades e deformidades físicas advindas da doença 12 . Nas crianças, a terapêutica medicamentosa é ajustada de acordo com a idade e o peso 13 .…”