Neonatal Screening Program coverage in Maringá (PR), 2001 to 2006

Abstract

Objective: To evaluate the National Newborn Screening Program (NNSP) coverage in the city of Maringá, from 2001 to 2006. Methods: This is a cross-sectional research design, which verified the number of live newborns as well as the number of screened children. The study considered the children born in Maringá as well as those born in other cities but living in Maringá. Results: The NNSP did not reach the expected coverage of 100% in Maringá during the first five years of evaluation. There is a need to consider certain particularities when performing data analysis, such as the period and the place of material collection. Conclusion: Changes should be made so as to improve NNSP coverage. Furthermore, the period when the blood sample was drawn should be reconsidered and decentralized with a view to improve health care delivery. Métodos: Se trata de un estudio observacional transversal retrospectivo. Fueron verificados el número de nacidos vivos y el número de niños rastreados, considerando los nacidos vivos en Maringá y los nacidos vivos residentes en Maringá. Resultados: La cobertura del PNTN en Maringá en los cinco primeros años evaluados, no alcanzó el objetivo deseado por el programa, o sea, el 100% de los nacidos vivos. Algunas consideraciones son necesarias en el análisis de los datos, una de ellas es la época y el local en que el material es recolectado. Conclusión: Se sugieren cambios que puedan ayudar a mejorar la cobertura del Programa de Triaje Neonatal, revisar la época de la recolección de la sangre y descentralizarla para ampliar el horizonte de atención.

Difficulties experienced by the mothers of people with cystic fibrosis

“…9 Various studies have been undertaken in Paraná addressing cystic fibrosis, either in isolation or in the context of Neonatal Screening. The majority of these address epidemiological [10][11] or nutritional 12 aspects, associated health problems, 13 diagnostic tests 14 and evaluation of the Neonatal Screening Program. 15 Only two studies were identified addressing the importance of the organization of support for those with cystic fibrosis and the intersubjectivity in the context of the family.…”