Avaliação da qualidade de vida relacionada à saúde em crianças com distúrbios funcionais da defecação

Abstract

Objective: To evaluate the health-related quality of life in children with functional defecation disorders. Methods:One hundred children seen consecutively were enrolled and subdivided into three subsets according to the Roma II classification criteria: functional constipation (n = 57), functional fecal retention (n = 29) and nonretentive functional soiling (n = 14). The generic instrument Child Health Questionnaire -Parent Form 50 (CHQ-PF50 ® ), was used to measure quality of life and to assess the impact of these disorders from the point of view of parents. The instrument measures physical and psychosocial wellbeing in 15 health domains, each of which is graded on a scale from 0 to 100, with higher values indicating better health and greater wellbeing. Ten of these are then used to obtain two aggregated and summary scores: the physical and psychosocial scores.Results: No statistically significant differences were detected between subsets in terms of demographic or anthropometric characteristics. In 14 domains, children with defecation disorders scored lower than healthy children. When subsets were compared, statistically significant differences were detected between children with nonretentive functional soiling (lower scores) and those with functional constipation. Physical and psychosocial scores for the entire sample were lower than those for the group of healthy children used as controls. Conclusions:The CHQ-PF50 ® was considered adequate for demonstrating compromised quality of life in children with functional defecation disorders, as has been reported for other diseases, being a useful tool for making treatment decisions and for patient follow-up.J Pediatr (Rio J). 2006;82(6):421-5: Quality of life, defecation disorders, constipation.

Fatores associados à qualidade de vida de pessoas com Espinha Bífida

“…Ela é composta por 50 itens e 15 subdimensões 8,14 . A escala CHQ-PF50 foi considerada como um instrumento eficaz para decisões terapêuticas e acompanhamento do indivíduo 30 .…”

Efeitos dos exercícios aquáticos no condicionamento físico de indivíduos com paralisia cerebral após cirurgia ortopédica

“…A qualidade de vida foi verificada através do questionário (VII) Child Health Questionnaire (CHQ,: questionário sobre qualidade de vida relacionada à saúde do individuo com PC, seus domínios estão relacionados com indicadores objetivos e subjetivos de felicidade e satisfação; e pode indicar uma percepção subjetiva (12,29) .…”

Relação entre independência funcional e qualidade de vida na paralisia cerebral

“…Dessa forma, o estresse dos pais e a dificuldade com as estratégias de enfretamento podem afetar negativamente os escores de qualidade de vida (17). De acordo com o estudo de Faleiros e Machado (32), diferenças têm sido observadas quando os questionários de qualidade de vida são respondidos pelas crianças e pelos pais. Entretanto, em razão das dificuldades cognitivas apresentadas por crianças com esse quadro clínico, a obtenção de respostas por elas é muito complicada (33).…”