Inventário simplificado de qualidade de vida na epilepsia infantil: primeiros resultados

Fernándes, Paula Teíxeira; Souza, Elisabete Abib Pedroso de

doi:10.1590/s0004-282x1999000100008

Cited by 15 publications

(15 citation statements)

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“…The demystification of beliefs and prejudices, through a social support with correct and appropriate information about the disease and its treatment, supplied in the parents' groups, influenced the family positively and also guaranteed more effective care in the attendance to the child with epilepsy promoting better adjustment 3,[16][17][18] .…”

Section: Discussionmentioning

confidence: 99%

Identification of family variables in parents' groups of children with epilepsy

Fernándes

Souza

2001

Arq. Neuro-Psiquiatr.

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-Objective: To verify the effectiveness of the support group in the identification of family variables linked to epilepsy. Method: Pre-test were applied to parents of 21 children with benign epilepsy of childhood recently diagnosed, from 5 to 15 years, who participated in the groups at HC/Unicamp. There was a presentation of an educational video, discussion and application of the post-test 1. After six months, the post-test 2 was applied. Results: The beliefs were: fear of swallowing the tongue during the seizures (76.19%) and of a future mental disease (66.67%). Facing the epilepsy, fear and sadness appeared. 76.19% of the parents presented overprotection and 90.48%, expected a new seizure. In the post-test 1, the parents affirmed that the information offered had modified the beliefs. In the post-test 2, 80.95% didn't report great doubts about epilepsy and 90.48% considered their relationship with their children better. Conclusions: The demystification of beliefs supplied from the groups influenced the family positively, prevented behavior alterations and guaranteed effective care in the attendance to the child with epilepsy.KEY WORDS: childhood epilepsy, family variables. Epilepsy is a common chronic neurological disease in childhood with high incidence of psycho-social difficulties that affect the social adjustment and the quality of child's life and his family 1 . The diagnosis of a chronic disease like epilepsy, generates a series of feelings in the parents, that almost always include: fear, anger, guilt, sadness, anxiety, confusion, denial, concern, fear of the epilepsy coming on accompanied by personality disorders and fear of the effects of medications 2 . These feelings usually provoke inappropriate behavior in the parents, such as: overprotection, permissiveness, rejection and low expectation in relation to their children. The parents treat them as sick, believing that any activity can precipitate a seizure 3 . Many times, the excess of care leads the parents to end up forgetting about the other members of the family. From these reactions, the children learn quickly that there is something wrong with them and consequently they begin to present inadequate behavior of dependence, insecurity, irritability, immaturity. The parents, in this way, perpetuate the stigma, influencing their children to feel apprehensive and full of prejudice in relation to epilepsy. In this context, the family begins to have less proximity and more restrictions of behavior, activities and communication 3 . As the seizures are unexpected and they happen in an unexpected frequency, the parents use inap- Identificação de variáveis familiares em grupos de pais de crianças com epilepsia RESUMO -

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Section: Discussionmentioning

confidence: 99%

Identification of family variables in parents' groups of children with epilepsy

Fernándes

Souza

2001

Arq. Neuro-Psiquiatr.

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“…A partir do levantamento de relatos dos pais de crianças com epilepsia (em grupos de apoio realizados no Ambulató-rio de Epilepsia Infantil da FCM/Unicamp, desde 1997) e de temas da literatura (Souza & cols., 1998;Fernandes & A epilepsia infantil é uma das doenças crônicas mais comuns na infância e seu diagnóstico mostra dificuldades psicossociais, comportamentais e de ajustamento familiar, que parecem estar relacionadas a crenças irracionais e à qualidade da interação pais e filhos.…”

Section: Os Protocolosunclassified

“…Consequentemente, a dinâ-mica familiar traz uma alta prevalência de comportamentos alterados, dificuldades de aprendizagem, alterando o ajustamento psicossocial da criança e sua qualidade de vida (Austin, 1989;Seidenberg, Beck & Geisser, 1986), que é um conceito subjetivo da pessoa sobre aquilo que ela tem e pode ser definido como senso de bem-estar físico, psicológico e social (Silva & De Marchi, 1997;Souza & Guerreiro, 1996). Souza, 1999), foram elaborados protocolos psicológicos de investigação para identificar aspectos importantes que afetam a vida da criança portadora de epilepsia e sua família: as variáveis psicológicas e familiares e o impacto da doença na dinâmica familiar e no comportamento da criança.…”

Section: Os Protocolosunclassified

“…Quando se identifica precocemente as variáveis psicoló-gicas relacionadas à epilepsia, é possível atuar de maneira mais efetiva e positiva na dinâmica familiar, controlando o ajustamento da criança e sua família (Fernandes & Souza, 1999). É importante identificar se houve mudança na percepção dos pais em relação a seus próprios comportamentos e atitudes, aos comportamentos dos filhos e à própria doença.…”

Section: Protocolos Na Epilepsia Infantilunclassified

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Protocolos de investigação de variáveis psicológicas na epilepsia infantil

Fernándes

Souza

2001

Psic.: Teor. e Pesq.

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RESUMO -A epilepsia é uma condição crônica comum na infância, cujo diagnóstico mostra dificuldades psicossociais e de ajustamento familiar, que parecem estar relacionadas com crenças e qualidade da interação pais-filhos. Este trabalho teve como objetivo esquematizar estratégias de investigação para as variáveis familiares e psicológicas: crenças, impacto da doença, relacionamento familiar, identificação de mudanças. A partir do levantamento de relatos dos pais de crianças com epilepsia e de aspectos da literatura, foram elaborados questionários psicológicos para identificar as importantes variáveis que afetam a vida da criança com epilepsia e sua família. Diante deste contexto, pode-se concluir que o uso de protocolos de investigação mais adequados facilita a avaliação psicológica e garante a coleta de dados.Palavras-chave: epilepsia infantil; protocolos; relacionamento familiar; avaliação psicológica. Investigation Protocols of Psychological Variables in Infantile EpilepsyABSTRACT -Epilepsy is a common chronic condition in the childhood and its diagnosis reveals psychological, social and family difficulties, that seem to be related with beliefs and quality of parents-children interaction. The purpose of this paper is to schematize investigation strategies for the psychological variables: beliefs, impact of the disease, family relationship, identification of changes. Based upon collected reports of epileptic children's parents and upon surveyed aspects of the literature, psychological questionnaires were elaborated to identify important variables that affect the child's epilepsy life and his family. The use of more appropriate investigation procedures facilitates the psychological evaluation and ensures the collection of data.Key words: infantile epilepsy; investigation protocols; family relationship; psychological evaluation.Para se fazer uma avaliação adequada de pessoas com epilepsia, é preciso considerar não apenas os aspectos relacionados à doença (tipo, frequência e severidade das crises, etiologia, etc), mas também os aspectos comportamentais, psicológicos, culturais, sociais, emocionais e a qualidade de vida.A partir de trabalhos realizados (Souza, Nista, Scotoni & Guerreiro, 1998) e de relatos dos pais de crianças com epilepsia, verificou-se a necessidade de se criar instrumentos em que todas estas áreas pudessem ser investigadas, para haver um tratamento mais efetivo com prevenção de comportamentos inadequados e consequente redução do stress e melhora na qualidade de vida, promovendo assim um melhor ajustamento das crianças e suas famílias.Este trabalho teve como objetivo esquematizar estratégi-as de investigação específicas para as variáveis psicológi-cas, relativas a crenças, ao impacto da doença na família, ao relacionamento familiar, a identificação de mudanças.

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“…The constant difficulties of the patient who has epilepsy during the learning process, together with the social and family environment, make them more likely to suffer from anxiety [4]. Considering these aspects, precocious diagnosis and treatment, providing less loss of life quality is the primary goal of the health team, school and family.…”

Section: Introductionmentioning

confidence: 99%

Learning Disorder Secondary Epilepsy: A Case Report

Omena¹,

Ribeiro²,

Filho³

et al. 2016

WJNS

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Introduction: Epilepsy is a syndrome characterized by the presence of seizures that can affect the cognitive performance of the individual. Neuropsychology has studied the idiopathic epilepsies to understand if the behavioral and cognitive impairments are associated with electrical discharges in the brain, and not with an injury itself. Objective: To identify cognitive impairments of a child with epilepsy associated with diagnosis of learning disorder. Method: The sample consists of a child diagnosed with epilepsy, nine years old, from Maceió-AL. The methodology applied is a qualitative and descriptive study of a case report. Neuropsychological tests are applied for that purpose. Results: The results of the tests show cognitive deficits, impaired attention, memory and slowness of reasoning. Conclusion: Despite the results, it cannot be said in this case that epilepsy was the only factor that triggered the learning disorder, because the child had related comorbidities.

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Inventário simplificado de qualidade de vida na epilepsia infantil: primeiros resultados

Cited by 15 publications

References 12 publications

Identification of family variables in parents' groups of children with epilepsy

Identification of family variables in parents' groups of children with epilepsy

Protocolos de investigação de variáveis psicológicas na epilepsia infantil

Learning Disorder Secondary Epilepsy: A Case Report

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