Cuidados paliativos: desafios para cuidadores e profissionais de saúde

Alves, Railda Fernandes; Andrade, Samkya Fernandes de Oliveira; Melo, Myriam Oliveira; Cavalcante, Kílvia Barbosa; Angelim, Raquel Medeiros

doi:10.1590/1984-0292/943

Cited by 21 publications

(36 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The origin of the philosophy of PC is linked to the emergence of hospices (guesthouses). Hospices originated in the Middle Ages, and their outbreak influenced the pilgrimages of Christians to the holy places, due to the long distances traveled for months and even years [16].…”

Section: Political Perspectives Of Palliative Care In the Healthcare mentioning

confidence: 99%

Palliative Care Network in Brazil

Munis¹,

Pessalácia²,

Boaventura³

et al. 2019

Palliative Care

View full text Add to dashboard Cite

Brazil is a country with great diversity and distinct realities, so there is a proportional challenge and complexity in offering a unified and integrated system which is accessible, of quality, and effective. Population aging and the increased incidence of chronic-degenerative noncommunicable diseases (NCDs) increase the need for palliative care (PC); however, public policies still need to be implemented so that this care encompasses adequate funding, professional training, and guaranteed medication. The first national policy for PC was recently proposed, providing guidelines for the organization of PC, emphasizing the importance of integration between the different levels of care and services in the Brazilian health system (SUS). Nevertheless, the challenges of this policy include the training of professionals, communication in the network, the absence of integrated health information systems, and effective mechanisms to finance this new modality of care.All this complexity includes social plurality, more than one level of multidisciplinary and multiprofessional care, which receives resources from various sources and presents structural and technological inequality [4].The organization of health has isolated levels that do not communicate with each other. Primary healthcare (PHC) is not related to secondary care, and none of them are related to tertiary care [1]. Thus, the lack of communication between healthcare levels prevents comprehensive care [6].Comprehensiveness is part of the guidelines of the Unified Health System (SUS). It is a guiding concept of care that aims at treating each individual with respect, in his/her totality, valuing his/her needs and characteristics [7].The healthcare networks (HCN) emerge within this context, mainly to interconnect the care levels and to integrate care itself [4].The concept of HCN proposes a polyarchy, i.e., democratic, person-centered structure where health services communicate at all levels, and no level is more or less important than the other. It allows comprehensive care with promotional, preventive, curative, caregiving, rehabilitative, and palliative interventions. Thus, it offers a humanized and quality service to the population [8].The Administrative Rule 4279, of December 30, 2010, regulates HCNs. It establishes guidelines for the organization of HCNs within the scope of the SUS. The networking system was necessary for a better health policy, a new structure based on the covenants for health, life, and in defense of the SUS, which assume responsibility for the regionalization and the health situation of Brazil and for strengthening the policy, principles, and guidelines of the SUS. PHC is the major coordinator of care, the gateway and communication center between users and health professionals. It distributes and redistributes assistance for all levels of healthcare horizontally, according to the needs. This explains the concept of networks [5].The basic elements for the development of networks are well-defined population, based on registers performed on prim...

show abstract

Section: Political Perspectives Of Palliative Care In the Healthcare mentioning

confidence: 99%

Palliative Care Network in Brazil

Munis¹,

Pessalácia²,

Boaventura³

et al. 2019

Palliative Care

View full text Add to dashboard Cite

show abstract

“…Assim como foi possível observar que existem dificuldades no relacionamento entre os profissionais de saúde (ALVES, MELO, SOUSA, 2014;ALVES et al, 2015;LEVISKI, LANGARO, 2014).…”

Section: Id On Line Multidisciplinary and Psycology Journalunclassified

“…Quanto ao significado atribuído aos cuidados paliativos, foi percebido principalmente como alívio da dor, acolhimento à família da criança doente e a utilização de medicamentos para o alívio da dor e do sofrimento (ALVES et al, 2015;CARDOSO et al, 2013). E complementando a ideia, Leviski, Langaro (2014), afirmam que os cuidados paliativos são importantes para promoção de qualidade de vida e de morte.…”

Section: Id On Line Multidisciplinary and Psycology Journalunclassified

“…Esse dado corrobora com a pesquisa realizada Hermes, Lamarca (2013), quando afirmam que é necessário uma reformulação das grades curriculares para que os profissionais possam ser estimulados a debaterem a temática de cuidados paliativos e assim adquirir propriedades para trabalhar com os pacientes que estão fora das possibilidades curativas e com situações de morte. Quanto ao papel do psicólogo na equipe multiprofissional de cuidados paliativos, ainda é um trabalho que envolve muitas dúvidas, sendo necessário uma maior sistematização para a atuação dos profissionais (ALVES et al, 2015).…”

Section: Id On Line Multidisciplinary and Psycology Journalunclassified

“…Os cuidadores profissionais e não profissionais reconhecem a necessidade do psicólogo na equipe de cuidados paliativos, já que este profissional está apto para disponibilizar aos familiares, paciente e equipe uma escuta especializada, ajudando-os a elaborar os sentimentos decorrentes do agravamento da doença (ALVES et al, 2015).…”

Section: Id On Line Multidisciplinary and Psycology Journalunclassified

See 2 more Smart Citations

Equipe Multiprofissional de Cuidados Paliativos da Oncologia Pediátrica: Uma Revisão Sistemática

Oliveira¹,

Maranhão²,

Barroso³

2017

IDonline

View full text Add to dashboard Cite

Resumo: A presente pesquisa objetivou realizar uma revisão sistemática sobre o papel da equipe multiprofissional de cuidados paliativos em oncologia pediátrica nas bases de dados PePSIC, SciELO e BVS, dos últimos cinco anos (2012)(2013)(2014)(2015)(2016), a coleta dos artigos ocorreu através da combinação de descritores. De modo geral, os resultados foram organizados em três categorias: 1) Repercussões do câncer infantil na vivência familiar; 2) Tipos de coping utilizados na hospitalização e; 3) Cuidados paliativos -experiência de pacientes, familiares e profissionais da equipe multiprofissional. Foi possível observar que a temática abordada nesse estudo ainda é insipiente na literatura e que a graduação não prepara os profissionais para a atuação em cuidados paliativos. O câncer provoca mudanças na dinâmica familiar exigindo troca de papéis assumidos na família. É reconhecida a importância da humanização, porém ainda existem inúmeras dificuldades para executá-la, além de ser possível observar que o câncer pediátrico mobiliza tanto o paciente quanto os familiares e profissionais a buscarem formas de enfrentar e ressignificar o sofrimento. Quanto ao psicólogo na equipe de cuidados paliativos percebe-se que é reconhecida a importância atuação visto que este é o profissional capacitado para ouvir e acolher o sofrimento de todos os envolvidos (paciente, familiar, profissionais) dando espaços a questões psicológicas e emocionais decorrentes do adoecimento e hospitalização.Palavras-Chave: Cuidados Paliativos. Psicologia. Oncologia. Pediatria. Equipe Multiprofissional. Multiprofessional Pediatric Oncology Palliative Care Team:A Systematic ReviewAbstract: The present study aimed to perform a systematic review on the role of the multiprofessional team of palliative care in pediatric oncology in the databases PePSIC, SciELO and BVS, of the last five years (2012)(2013)(2014)(2015)(2016), the collection of articles occurred through the combination of descriptors. In general, the results were organized into three categories: 1) Repercussions of childhood cancer in family life; 2) Types of coping used in hospitalization and; 3) Palliative care -experience of patients, families and professionals of the multiprofessional team. In general, the results were organized into three categories: 1) Repercussions of childhood cancer in family life; 2) Types of coping used in hospitalization; 3) Palliative care -experience of patients, families and professionals from the multiprofessional team. It was possible to observe that a thematic approach in this study is still insipient in the literature and that an undergraduate does not prepare the professionals for an actuation in palliative care. Cancer causes changes in the family dynamics requiring the exchange of assumed roles in the family. The importance of humanization is recognized, but there are still many difficulties to carry it out. It is also possible to observe that pediatric cancer mobilizes both the patient and family members and professionals to seek ways to face and reframe s...

show abstract

Nursing students' perceptions of palliative care

et al. 2020

View full text Add to dashboard Cite

Objective: to understand the perceptions of nursing students at a public university about palliative care. Methods: qualitative research, carried out with 66 nursing students, from the sixth to the ninth period in progress. A script was used with questions about perceptions, experiences during the course and whether or not there was an approach to the contents of the undergraduate course in palliative care. Data compiled by content analysis. Results: two thematic categories emerged: fear and frustration, divisors in the search for dignity in terminality and incipience in academic training and a reductionist view of palliative care. Conclusion: there was a need to obtain knowledge aimed at comprehensive care for human beings, in the most humanistic perspective, which respects the needs of individuals, especially when related to palliative care.

show abstract

Cuidados paliativos: desafios para cuidadores e profissionais de saúde

Cited by 21 publications

References 11 publications

Palliative Care Network in Brazil

Palliative Care Network in Brazil

Equipe Multiprofissional de Cuidados Paliativos da Oncologia Pediátrica: Uma Revisão Sistemática

Nursing students' perceptions of palliative care

Contact Info

Product

Resources

About