Experiences of family members of children diagnosed with autism spectrum disorder

Magalhães, Juliana Macêdo; Rodrigues, Thalia Alves; Neta, Marly Marques Rêgo; Damasceno, Carolinne Kilcia Carvalho Sena; Sousa, Kayo Henrique Jardel Feitosa; Arisawa, Emília Ângela Lo Schiavo

doi:10.1590/1983-1447.2021.20200437

Cited by 3 publications

(1 citation statement)

References 10 publications

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“…As shown by Beck et al [ 59 ], even positive factors can influence stress; in fact, they found that both limited prosocial behaviours and behavioural problems were associated with high levels of stress. Parents of children with ASD score higher on levels of stress than other groups of parents [ 60 ]. The daily challenges of caring for the child are endless, and affect all aspects of the child’s care as well as the parent’s mental health and ability to manage the needs of the child and family [ 61 ].…”

Section: Discussionmentioning

confidence: 99%

Autism and ADHD: A Literature Review Regarding Their Impacts on Parental Divorce

et al. 2023

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Introduction: The change in family structure as a consequence of divorce can be a traumatic event for a child that can undermine his or her emotional security. For this reason, it becomes a major health concern. Many divorce-related risk factors have been identified, including attention deficits or autism spectrum disorder (ASD) in children. The aim of this review is to evaluate if and how a diagnosis of ASD or attention deficit hyperactivity disorder (ADHD) in children is associated with an increase in divorce within families. Method: Searches were performed in two databases evaluating studies focusing on articles pertaining to the topic. A total of 20 articles were found, but only 8 were included in the study according to the criteria. Results: The results showed that divorce does not appear to be specifically related to a diagnosed pathology of the child, but rather presents itself as a risk factor in certain situations. In particular, this occurs when the coping strategies required to deal with the diagnosis are dysfunctional. However, it would appear that families in which there are children with ADHD have a greater chance of divorce than families in which there is a child with a diagnosis of ASD. It may be hypothesised that in the latter case, parents receiving a diagnosis early in the child’s life have more time to develop adaptive strategies to cope with the condition than parents with children with ADHD who mostly find themselves having to deal with their child’s behavioural problems at a school age. Moreover, ASD is a disorder more likely genetic than environment-related, so parents receive more socio-medical support, and they are less likely to blame themselves or be blamed by others.

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Section: Discussionmentioning

confidence: 99%

Autism and ADHD: A Literature Review Regarding Their Impacts on Parental Divorce

et al. 2023

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Does Function Level of Individuals With Autism Spectrum Disorder Affect The Family Impact?

Öztürk

Karabıçak

Cavlak

2023

International Journal of Disabilities Sports and Health Sciences

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Objective: The aim of our study is to examine the effect of differences in the levels of functionality of individuals with autism spectrum disorder (ASD) on level of family involvement. Methods: Our study has been carried out with the relatives of ASD individuals attending Aydın Efeler Municipality Autism Sports and Life Center. The functional independence levels of children was assesed by using The Pediatric Functional Independence Criterion (WeeFIM), and The Family Impact Scale (FIS) was used to measure the impact on the families of children with chronic disabilities. Results: Our study was completed with the assessment of 98 individuals diagnosed with ASD (age=10.17±5.11, gender=15 female/83 male) and 98 pairs of their parents. As a result of the study, the total WeeFim score was determined as 94.73 ±20.26 (independent) and the family impact scale scores were determined as 63.03 ± 12. The correlation analysis showed the sub WeeFIM impact the financial burden my family, self-care, communication, social status were statistically significant and weak correlation score between the total score (p

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The Importance of Parental Participation in the Aba Intervention

Ferreira

Soares

Leão

2022

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Among all the developmental disorders that can affect a child, one of them is Autism or that has been standing out in recent years due to the high incidence of cases, also reflecting the need for greater scientific production to understand its paradigms. As a disorder that greatly affects the quality of life of children and their country, it requires an increasingly complex treatment approach. One of the known approaches to the treatment of autism is Applied Behavior Analysis, better known as ABA, which, in addition to a trained team, requires great participation from both countries. Therefore, the objective of this work was to analyze the results of the scientific literature on the importance of the participation of two countries in the ABA intervention. For this, an integrative literature review was carried out in the VHL and Pubmed databases, using the terms “family AND autism spectrum disorder”, applied behavioral analysis AND autism” and “applied behavioral analysis AND family” as descriptors and markers. A total of 1,865 articles were found, and after application of the Relevance Tests I and II, a sample of 9 analyzed articles was obtained. The articles address the importance of both countries in the application of the ABA method, reinforcing the needs of two non-treatment responsibilities and defining the possibilities of intervention shared with the country.

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Experiences of family members of children diagnosed with autism spectrum disorder

Cited by 3 publications

References 10 publications

Autism and ADHD: A Literature Review Regarding Their Impacts on Parental Divorce

Autism and ADHD: A Literature Review Regarding Their Impacts on Parental Divorce

Does Function Level of Individuals With Autism Spectrum Disorder Affect The Family Impact?

The Importance of Parental Participation in the Aba Intervention

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