Palliative care at the end of life in pediatric oncology: a nursing perspective

Abstract

Objectives: To identify the knowledge of nursing professionals about palliative care in pediatric oncology and their needs for end-of-life care. Method: A descriptive study with a qualitative approach, carried out in a federal hospital in Rio de Janeiro specialized in oncology. 29 nursing professionals from the pediatric inpatient sector participated in semi-structured interviews between July and August 2019. Data submitted to textual lexicographic analysis with Iramuteq. Results: Professionals are aware of the use of comprehensive care, centered on the family, aimed at comfort, and dignified death. They highlighted the need for psychological support for the nursing team, in addition to effective communication with a multidisciplinary team and carrying out actions for professional training in pediatric palliative care. Final considerations: A study showed care that is consistent with the precepts of palliative care and points out gaps in training, highlighting the need for professional training with a view to quality care.

Paliar, cuidando além da dor: uma reflexão dos profissionais de saúde na oncologia pediátrica

“…Assim, os dados selecionados permitiram a construção do Quadro 2 para interpretação posterior das informações. No que se refere aos objetivos dos estudos, observou-se que a maioria dos pesquisadores se preocupou em descrever ou conhecer as experiências e percepções e os significados dos CPP (16,17,18,23,24,25,27,28) . Já os demais estudos (19,20,21,22,26,29) abordam as intervenções e ações envolvidas no cuidado de enfermagem prestado às crianças e às suas famílias.…”

“…Por isso, a partir do diagnóstico, recomendam-se os cuidados junto ao tratamento convencional (19) . Esse deve ocorrer de maneira ativa e total, ou seja, um cuidado intenso e global para os pacientes e seus familiares no intuito de proporcionar suporte permanente a todos os aspectos (físicas, psicológicas, sociais e espirituais) que envolvem a vida dessas crianças e adolescentes (16) .…”

“…O CP infantojuvenil deve iniciar logo após o diagnóstico e concomitantemente ao tratamento curativo para preconizar o alívio da dor, do sofrimento e promover a autonomia da família com a participação do paciente. Essa abordagem é importante mesmo que a criança ou adolescente tenha expectativa de cura (16) .…”

Care Transition From the Perspectives of Oncological Patients and the Multiprofessional Care Team

“…In the context of oncology, hospital readmissions are frequent. However, they might be avoided or reduced in number if their associated factors were known 4 . A study carried out in Brazil identified evaluated hospital readmissions and concluded that possible causes of these readmissions were due to conditions of in-hospital care, patients’ clinical status, and social and environmental issues 5 .…”

“…However, they might be avoided or reduced in number if their associated factors were known. 4 A study carried out in Brazil identified evaluated hospital readmissions and concluded that possible causes of these readmissions were due to conditions of in-hospital care, patients' clinical status, and social and environmental issues. 5 On the contrary, when there is continuity in the care plan, the quality, safety, and patient satisfaction contribute to a decrease in preventable hospitalizations and readmissions; therefore, they contribute to reducing health service costs.…”