Experiências do adoecimento de pessoas com anemia falciforme e estratégias de autocuidado

Abstract

Objective: To determine the experience of sick individuals with sickle cell anemia and their self-care strategies. Methods: This was a qualitative study of 17 individuals with sickle cell anemia. Data collection and analysis occurred simultaneously by open codification and categorization, according to steps in the theory based on data. This procedure led to the development of categories related to the experience of individuals who have sickle cell anemia and their self-care. Results: Experiences of patients who became chronically ill enabled the construction of strategies to better determine the disease, changes in daily life, and the manner in which it affects how patients observe and experience time. Also identified were specific skills for self-care that were developed from lessons learned and mistakes made. Conclusion: We found that individuals with sickle cell anemia had several favorable approaches for adapting to having become sick during adulthood. ResumoObjetivo: Conhecer as experiências do adoecimento de pessoas com anemia falciforme e suas estratégias para o autocuidado. Métodos: Pesquisa qualitativa realizada com 17 pessoas com anemia falciforme. A coleta e a análise dos dados ocorreram simultaneamente, realizando-se a codificação aberta e sua categorização, segundo os passos da Teoria Fundamentada nos Dados. Tal procedimento deu origem a categorias relativas à experiência do adoecimento de pessoas com anemia falciforme e autocuidado. Resultados: As experiências com o adoecimento crônico possibilitaram a construção de estratégias para conhecer melhor a doença, determinaram mudanças na vida cotidiana, e afetaram o modo como cada pessoa observa e vivencia o tempo e como as habilidades específicas para o autocuidado foram desenvolvidas a partir dos aprendizados e deslizes cometidos. Conclusão: Constatou-se que as pessoas com anemia falciforme apresentaram vários elementos favoráveis em busca de adaptação ao adoecimento na fase adulta.

“Waiting for a miracle”: Spirituality/Religiosity in coping with sickle cell disease

“…The literature has pointed to an increase in scientific production that evidences the appreciation of spiritual aspects, demonstrating a positive relationship between S/R and coping with illness. Studies demonstrate that higher levels of involvement with religion are positively associated with indicators of psychological well-being, and with less depression, suicidal ideation and behaviors, and drug and alcohol abuse (7,(9)(10)(11) .…”

Produção acerca de gênero nos doutorados em enfermagem no brasil

“…Health professionals should understand their needs not only clinical and pathological, but emotional, affective, social and family, without discrimination. 13 Other chronic conditions were emphasized in four theses selected for the study, focusing on breast cancer, myocardial revascularization and the presence of lesions and body scars. In theses six and 15, it was evidenced that breast cancer does not affect the sexual life of the couple, despite the concern of women with physical appearance, being necessary to the health team a preparation to understand demands of this nature in the services.…”

Self-care practice in people with sickle cell anemia

“…"No. No one has ever explained it to me yet [...] in the city where we live nobody talks about it" (SCA 7 ).…”

“…The self-care practice should be shared with all health professionals, as a meeting between people, that is, a collective construction, believing that such practices can be changed from the disease-centered model to a model that favors the everyday practice of individuals and their families in the search for health care (7) . This prerogative is in accordance with the principles of Health Promotion in the population context, as it empowers people to take care of themselves by providing the necessary information for such.…”